Archive for May, 2020

Went for a Hike..

May 31, 2020

I’ve been feeling good the last few days.. Got in some exercise on Friday and Lilly & I went for a little hike yesterday, Saturday – probably 1.5 km (about a mile)

After we got home from our adventure we sat down in from of the tv to eat.. I watched 2 episodes of CSI before Lilly barked to let me know she wanted out. So I started to move. *That* is when my body informed me that I overdid it..

So, I was on a good day & my walking is back down to less than 1.5k on a hiking trail. Just before COVID19 lockdown, I went with my sister & her kids and my fellow cub leader & her son.. We hiked the Barred Owl trail at Long Sault conservation area.. that was 2.9 km (about 2mikes), on snow & ice, carrying my 15lb dog about 1/3rd of the way cuz she didn’t like the king walk on the ice. So, you can tell my fitness, ability & tolerance levels have dropped significantly.

Hopefully I can start getting out more for walks (that might lead to jogs) now that the weather’s finally warming up..

Wish me luck!!

Crying in Pain Today

May 26, 2020

Yesterday, I had had a very physically stressful day and after dinner decided to have a nap before I did  some work prior to going to bed for the night. So at 7pm, I lay down in bed, still in my clothing, figuring I’d wake up on my own in an hour or two. That did not happen.

Instead I woke up at almost 6 a.m. this morning, on my back. Not a lot of people know this, but that is the second worst position for me to sleep in (my tummy is the worst). With falling asleep at that time, I did not take my nighttime medications, so needless to say, I was in excruciating pain. 

I rolled over, took my nighttime meds & curled up with Lilly, my Shih poo,  to go back to sleep. I was in tears less than an hour later.

For those who know me well, know that I do not typically cry for physical pain. I did not cry for my multiple concussions, my various surgeries, my ongoing chronic pain issues, or attacks from IBS, gallstones or kidney stones. I’m more of an emotional crier.

So for me to be in tears due to pain is pretty bad. Fortunately, I do have another layer a pain medication that I was able to take. And seeing as I’m able to write this post, I must be feeling a little bit better. 🙂

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And I know some people are going to want to comment, inquiring if I’m dealing with addiction to opiates. To that I recommend reading my previous article on “Addiction vs Dependance“.

I wish everyone a healthy happy painfree & COVID-free day.

Myths of Fibromyalgia – Myth 6/6

May 12, 2020

While Pain is the top symptom follow by debilitating fatigue, there is a list of over 200 possible symptoms of Fibromyalgia. Note, you can have two different symptoms that show up at different times.

May 12th – International Awareness Day

May 12, 2020

Myths of Fibromyalgia – Myth 5/6

May 12, 2020

 

 

Different people react differently. There is a post I did somewhere titled  My Fibro is Not your Fibro. While 2 people may both have the same condition, their pain & other symptoms can be on opposite ends of the spectrum.

Multiple Chemical Sesitivities Day

May 12, 2020

Today, May12th is also Multiple Chemical Sesitivities Awareness Day. This is signified by a green ribbon.

 

May 12th, 2020

May 12, 2020

Myths of Fibromyalgia – Myth 4/6

May 12, 2020

This is so wrong. While there is no cure, this can be managed.

Pharmaceutical options include Lyrica, Gabapentin, Savella ( US), Cymbalta, SSRI anti-depressants such as Paxil or Prozac, trycyclics anti-depressants like Amitriptyline, muscle relaxants like Flexeril or Baclofen, sedatives for sleep such as Imovane, pain medications from Tylenol to Tramadol to Fentanyl (not my recommendation) or Medical Marijuana in its synthetic & natural forms where available. Also available at many pain clinics are injectable pain treatments. These include trigger point & nerve injections, lidocaine infusion and epidural for accompanying issues. 

Other non-prescription medical practitioners that may help include osteopathy, physiotherapy, occupational therapy, chiropractic, acupuncture, RMT, as well as those who practice Biofeedback therapy and CBT.

Vitamin supplements have been recommended. While a daily vitamin is good for almost everyone, there are many others that are suggested to help Fibromyalgia. Depending on who you talk to, these include vitamins A, B, C, D, & E, zinc, magnesium, calcium, 5-HTP, SAMe, fish oil/Omega 3s, Saint John’s Wart, and melatonin. Additionally a healthy diet is always optimum. Include  fruits, vegetables, whole grains and low-fat dairy if you’re not sensitive to them, healthy oils, legumes, and low-fat protein, like fish and chicken. Try to limit alcohol, sugar, caffeine & processed foods, and remove MSG &: Aspartame. It is also recommended to reduce or remove heavy foods such as dairy because of possible links to serotonin. Please talk to a doctor before making any significant diet changes.

Exercise such as mild stretching, walking, yoga (there is chair yoga & even a video of yoga for fibro floating around), tai chi and water aerobics can be helpful. For those in betters shape, try aquafit classes, jogging/running, swimming and hot or power yoga. Again, please speak to your doctor before making significant changes to your fitness routine.

Meditation & mildfulness have also helped many. 

Home treatments include cold such as ice packs,  heat such as heating pads, hot baths or a hot tub, muscle rubs like A535.

Most importantly is self-care. This includes reducing stress, getting sufficient healthy sleep, regular exercise, ensuring your home environment is safe comfortable & healthy and pacing one’s self as per your current abilities.

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My personal regime? It’s changed over time & sine is currently on hold due to COVID19. I currently take a muscle relaxants, a sedative when needed, synthetic & natural CBD/THC, an an-inflammatory but that’s not really for the fibro), and Tylenol 3’s. I take melatonin most nights & have sedatives for when needed. I also get trigger & nerve point injections. In the winter, I also get an epidural or 2 for the OA in my lower back.

I try to watch my diet, but I love sugar & dairy. I also forget to eat sometimes.  I also take Vitamin D supplements.

I have multiple muscle rubs depending on what the pain is as well as both a heating pad & heating blanket. I also find, for me, orgasms help me relax.

Once COVID19 clears I will again have access to osteopathy, physiotherapy, massage, and my gym for the hot tub, yoga, aquafit and eventually back to Arriba.   In the mean time I am trying to get out for walks, jogs, or do the online classes from my gym but lack of motivation is getting to me. 

Admittedly, what I’m missing most is the hot tub.  And the social aspect with the other “Y” ladies.

Myths of Fibromyalgia – Myth 3/6

May 12, 2020

 

 

While Fibromyalgia does impact women twice as much as men, anyone of any race, age or gender can have the condition.

CFS/ME Awareness Day

May 12, 2020

 

Today, May12th is also Chronic Fatigue Syndrome & Myalgic Encephalomyelitis Awareness Day. This is signified by a blue ribbon.