Archive for May, 2020

Myths of Fibromyalgia – Myth 2/6

May 12, 2020

While it is reported that the  average age one isi diagnosed is 35 to 45 years old anyone at any age can have fibromyalgia.  It is more difficult to diagnose children because it’s much more common in adults but it is believed that up to  7% of children have Fibromyalgia.

A Fibromyalgia diagnosis can possibly take up to years. Symptoms include body-wide pain, debilitating fatigue,, poor sleep and mood problems.As these symptoms are common in so many possible conditions,and lack of accurate testing, it is mostly a diagnosis of elimination.

With so many symptoms that exist with co-morbid conditions it is sometimes difficult to determine who is causing what. And just to make things interesting, Fibromyalgia symptoms can wax and wane over time.

Adding in the fact that these symptoms must exists for a minimum of 3 months before a Fibromyalgia diagnosis will even be considered and that many people do not get these types of symptoms checked out u til they are debilitation, these are some of the reasons  why it can take a long time to get an accurate diagnosis.

Taking that all into consideration, there is no way to tell how long the average person takes to get a correct diagnosis though estimates are at 5 years. Because of that, it is almost impossible to determine the average age of someone with Fibromyalgia.

Myself, we believe my Fibromyalgia symptoms slowly started in the summer of 1993 while in college & fighting.mononucleosis. I was first diagnosed as “having symptoms consistent with Fibromyalgia” in 2006 in my early 30s.

Myths of Fibromyalgia – Myth 1/6

May 12, 2020

Fibromyalgia is not a rare disease, as it occurs in 2–8% of the general population. In Canada that’s between  0.7 &  3 million people  In the UK that’s between  1.3 &  5.3 million people. IIn the US. that’s from 6.6 to a whopping 26 million people.IIt

has also been shown that patients with a family history have an increased risk of developing the illness of up to  8.5x more likely.

Fibro in its earliest form has been known of since the 1800’s when physicians wrote about a condition that leaded to pain, fatigue and disturbed sleep initially called muscular rheumatism or neurasthenia and believed it to be the result of stress.

In 1824, a physician in Edinburgh described tender points and in 1880 a psychiatrist in the United States wrote about a group of symptoms including widespread pain, fatigue and psychological problems.

We are not alone.

May 11, 2020

No matter how much we  Fibromites would like to be the only one because we don’t want other people to experience this, we are unfortunately not alone.

But we are together in this to support each other..

May 12th Worldwide Zoom Call!!

May 8, 2020

Let’s unite around the world on the 28th anniversary of May12th international Awareness Day!

We’re holding a Marathon ZOOM call from 10am-midnight ET so we can connect with peers around the world and hear from some guest speakers. You can join the call at https://us02web.zoom.us/j/92782761974. Drop in when you can and stay as long as you are able.

COVID-19 has forced cancellation of many events but we won’t be silenced by it. May12th is our day so let’s enjoy it by hearing from all of you. Share what you were able to do this year or what you had hoped to do this year and let’s come up with ideas for next year and the 30th anniversary. Let’s chat and get to know each other and make new connections.

Let’s try to have as many cities and countries as possible represented during the call. Please invite your friends, family, caregivers, healthcare providers, news media, elected officials so they can learn about us and May12th awareness.

Everyone is welcome!

Please see http://www.facebook.com/groups/May12th/ or http://www.facebook.com/may12th.awareness for more activities.

May 1st – May is Fibromyalgia Awareness Month!

May 1, 2020

May is Fibromyalgia Awareness Month

Wear your purple with pride this month, even if only in your backyard or on your balcony..