Archive for the ‘Fibromyalgia’ Category

Recent ER Visits

October 22, 2021

A few weeks back, I was talking to my mom about my health and we were discussing one of my previous trips to the emergency room. The visit in question was due to mental health not physical but it’s still triggered a thought in my head.

I used to be a fairly regular patient when I lived in East Toronto.. At my worst I was in the ER at either Centenary or Scarborough General 2-3 times a month for quite a while.

With this conversation, I came to the realization that I haven’t been to the ER or the hospital since covid started, and the world shut down March 2020.

This means that I had not had to go to the ER for my pain at all for almost a year & a half! Personally, I think that’s pretty good!


Before anyone tells me that a trip to the ER is pointless & they will just accuse me of wanting drugs and won’t take me seriously. I believe I’ve actually addressed this issue previously.

When I go to the ER, I’m not looking for narcotics. What I want is big shot of toradol and some sort of stronger muscle relaxant. What this does is it calms down my osteoarthritis which makes the rest of the issues significantly more manageable.

There is even one doctor there at Oshawa General who also used to be at Centenary where I used to go when I lived in Toronto. Because of being a frequent flyer when I was in Toronto, this physician knows me on sight, knows my likely issue, and will turn around and say “Toradol shot?” And he writes the order for me. I can be gone in minutes once I’m in the back when he’s there.

Food Choices with Fibro X

October 19, 2021

The one other thing that many Fibromites have is common, but varies greatly is MCS – Multiple Chemical Sensitivities.

MCS is considered, in the most part, an environmental illness – a condition activated by the things in the world around us . Possible triggers that set off people’s symptoms vary including tobacco smoke, auto exhaust, perfume, insecticide, new carpet, chlorine, and more. Other chemicals that can set someone of are also in food or beauty products like moisturizers, or facial cleaners..

But there are also chemicals in our food.. Some of those chemicals are pretty scary.. I’m allergic to a binding chemical in food, but its also in the adhesive in bandaids & the other is found in moisturizers.. So makes you wonder..

My MCS issues in the way of food are Xanthan Gum, Guar Gum & Carrageenan.. This limits my food so I cant eat:

  • Ice Cream / Frozen Yogurt
  • Breaded foods like Chicken fingers & fish sticks
  • Sauces including mayo, bbq sauce & salad dressing
  • Most dessert
  • Most premade meals
Foods most take for granted that I shouldnt even touch

I also react to certain products but i dont know why such as KD. The brand name Mac & Cheese does a number on me, but other brands dont.. Another example is Campbell’s Chunky Soup – Beef, but I can eat any other chunky soup by Campbell’s.

As you can see, I cant eat alot of pre-processed food.. Whats sucks the most is the Ice cream & desserts. Only ice cream I can have is Haagen-Dazs.

And yet every one is different. Some people react to sulphites, some to food dyes, and others are sensitive to certain products like milk but not cheese. It makes no sence but there it is.

Food Choices with Fibro IX

October 12, 2021

Sugar is a kind of cellulose, that is to say, a material that offers energy for the body. This perk often appeals to people whose fibro symptoms leave them exhausted. In large amounts, sugar can pack on the pounds, causing fibro patients to experience even more pain. An article in the Journal of Pain found that overweight FM patients agonized more extreme symptoms, including sleep problems, stiffness, and pain. If you are yearning anything sweet, Batayneh says, go for the things having natural sugars, like a slice of fruit.

Sugar…Sweet, sweet sugar…

i definitely agree that with being smaller does help with the physical stress on my body and significantly lowered my pain level.

While I have lost a shit-ton of weight, I still very much have my sweet tooth.. Yum!! Probably why I’m stalled for over a year..

Various Sweets
More Sweet Desserys.

Sensitivity

October 8, 2021

In doing a bit of research about chronic illness and the story “The Princess and the Pea” I found an article written by a woman talking about her sensitivities. One of them being being able to feel the pain but the other or another is being an empath and being sensitive to stuff around her.

Being an Empath: My first year in New York, I saw a therapist who worked out of her apartment. I’d visited her there many times. One day, I walked in, and the moment I crossed the threshold, I stopped dead in my tracks. Something was different. My eyes scanned the apartment looking for what had changed, and as someone who was called the princess and the pea for being persnickety and whatnot, I was very familiar with the precise placement of everything in that area of her apartment. But as I looked around, I realized that nothing had moved, yet I could feel an immense change in the space. My eyes continued to search for the cause, but they never found it. What’s wrong? my therapist asked. Something’s different. I can’t figure out what it is. She gasped a bit, and she told me: I didn’t move anything, but I decided to move, and this week I began emotionally disconnecting from the space. You must be able to feel it.I’d certainly felt something. It’d hit me like a thud. Perhaps her emotional connection had previously imbued the space with a particular energy? Who knows, but since that time four years ago, I’ve increasingly worked to harness the power of my sensitivity. The same sensitivity that drew me to choose my Grandpa’s high school yearbook from hundreds of books in a used bookstore. The sensitivity that warned me when something was wrong with one friend and told me when another friend would find a home. The sensitivity that allowed me to feel the mountains in the middle of New York City. And the sensitivity that allowed me to smell faulty wiring in the half bath of my parents’ home and sense its danger and beg my mom to call the firemen. It’s a good thing you called, they said, this would have started a fire at any moment.It’s really this sensitivity

Now given what she posted, I have to say I’ve had brushes to the other side myself… The most noticeable was the premonition I had..

My Premonition: In the Spring of 2001 I was living in Williston North Dakota, and commuting to work in Watford City.. One day on my way to work, I suddenly had a very strong and impactful image hit me while I was driving, so I had to pull over.. It was about my bff.. She and another friend were driving some place. My bff can’t drive, so she was in the passenger side. What the premonition showed me was the two of them getting into a bad accident. The other car made contact on the Driver’s side, throwing the friend clear. Their car however was propelled around a street lamp, causing my bff to die instantly. Needless to say, I stayed pulled over for about an hour, blubbering my eyes out. Intellectually, I know it wasn’t real, but it felt *so* real that I could not help having an appropriate emotional response..

What happened? In February of 2002, the unthinkable did happen. While not the exact same as my previous vision, it was still true. There was just one big change : It was not my bff & her friend, but my sister & her partner (she was a cop).. however the other facts were the same: getting hit in the driver’s side, the vehicle being spun, her partner in the driver’s seat getting thrown the vehicle wrapping around a tree instantly killing her.

While this is not the only time I’ve had this sort of thing happen, it was the biggest, the most noticeable and the most important one I’ve had.

Has anyone else had experiences like this?

Food Choices with Fibro VIII

October 5, 2021

Dairy products, unless lactose intolerant, for many people, whether or not they have FM, are lactose deprived and have gas and bloating that can slow them down after they eat dairy merchandises or drink milk. Try excluding milk based merchandises like yogurt, cheese & frozen desserts from your diet for some weeks to see whether your symptoms progress.

Milk, cream, butter, yogurt (natural and strawberry), cottage cheese and cheeses

If you do feel recovering, look for calcium rich dairy substitutes, like soy milk, along with tuna, broccoli, and salmon.

The Princess & the Pea

October 1, 2021

For those not familiar with the story. See Below. It was also made into a movie in ’02.

The princess slept on a pile of twenty mattresses and twenty feather beds and still did not sleep well due to the small pee in the middle of the bed under all those mattresses .

I am convinced that the princess in this story had some sort of chronic illness.. From the description, she could have any of the following: Ehlers-Danlos Syndrome, Fibromyalgia, CFS/ME, Rheumatoid or Osteo- Arthritis, Allodynia, Complex Regional Pain Syndrome, Sensory Processing Disorder (In conjunction with or due these other conditions.

The American National Library of Medicine says “Possibly the princess in Hans Christian Andersen’s ‘The Princess and the Pea’ suffered from FMS since chronic sleep disturbances are typical in FMS. These sleep disturbances have been attributed to a dysfunction in the systems regulating sleep and wakefulness resulting in loss of deep sleep. ” That can be said about the other conditions I mentioned as well..

If you do a search of “The Princess and the Pea, chronic illness”, you will get a long list of articles believing that the lass in the story wasn’t just ‘sensitive’, but had a chronic illness. While all of the conditions I mentioned above, it seems Fibromyalgia to be the most common conspiracy theory..

What do you think? Does she have a chronic illness? Which one?


The Story – The Princess and the Pea

A pile of 40 mattresses with a pra under the bottom one

Once upon a time, there was a prince who lived in a wealthy kingdom. When he had reached the proper age, his mother, the queen, decided the time was right for her son to find a bride.

The prince, however was determined not to marry just any girl, but that his future wife should be a “real” princess. So he traveled the world and searched in all the kingdoms and met with all the princesses, but he still wasn’t satisfied.

One evening there brewed a terrible storm, with thunder, lightning, and rain. It was really frightful! In the midst of it all came a knock at the town gate. The old king went to open it.Who should be standing outside but a young lass, and what a sight she was in all that rain and wind. Water streamed from her hair down her clothes into her shoes, and ran out in the heals.

She claimed to be a real Princess. Although no one believed her, she was invited in to stay for the night.

The queen decided to test the young girl’s claim of nobility – without saying a word, the queen went to the bedroom stripped back the bedclothes, and put a single pea in the bottom of the bed. The queen then took 20 mattresses and stacked them on top of the pea and took 20 eiderdown feather beds and piled them on the mattresses. Up on top of all these the princess was to spend the night.

The next morning when the girl woke up, the queen asked how she slept. “Oh very poorly!” she said. “I scarcely closed my eyes all night. Heaven only knows what was in the bed, but I was lying on something hard, and now I am black and blue all over my body. It’s horrible!”“

They saw at once that she must be a real princess when she had felt the pea through twenty mattresses and twenty feather beds. Nobody but a real princess could have such a delicate skin.So the prince took her to be his wife, for now he was sure that he had found a real princess

Food Choices with Fibro VII

September 28, 2021

The study also showed that low alcohol drinkers have lower severity of fibromyalgia symptoms and better quality of life than non-drinkers.

Alcohol intolerance is a rarely seen symptom yet most people who have FM or ME/CFS find that they can no longer drink much, if any, alcohol.

Alcohol, no matter the kind, can be devastating to Fibromites.

While a few are able to occasionally have one or two drinks with only minimal problems, for others even a very small alcoholic beverage can trigger a severe flare or relapse that may last for days, weeks or sometimes even months.

So, for most, alcohol is so obvious that it’s was not even originally in the list. So, you have to stop drinking alcohol.

On that note, I also have a fairly high alcohol tolerance (when not mixed with THC) that I inherited from my father.. I used to be able to drink most of my friends under the table.. For the most part I still can. But I have noticed at the club I am toast for days afterwards but have since realized that it’s the dancing at the club, not the alcohol that is responsible for that.. My BFF, as she has increased in weight has been slowly had her alcohol tolerance increase. I don’t know if she realizes that it from the weight gain & when she loses it again her tolerance will drop. ☹️

Working the Federal Election

September 24, 2021

On Monday past, here in Canada, we had a federal election. End result was we are now $600 million more in debt & the government changed by about 3 seats. We still have a liberal minority.

Directional sign by Elections Canada signifying our poll station.

But I’m mentioning this because I work the elections. It’s a long day but it’s actually kind of fun and here in Canada we get paid for it..

I did a training several days before & I get paid for that.. On the day of, polls are open from 9:30 to 9:30. We were required from 8:30am to whenever we got all the electors in.. Fortunately, our location was dead after 8pm. Other locations had people lined up around the block at 9:30pm when the polls closed (If they were in line before 9:30, they still got to vote. )

So there was a couple things that I did to manage.. I changed jobs so I wasn’t always standing or always sitting. Because our station was not very busy I was able to walk around quite a bit when I needed to move. I took my lunch outside and the same with my dinner, enjoying the lovely weather. I had my regular meds plus additional other meds in case pain levels went up. I did yoga – no not getting down on my hands and knees on a mat and doing stretching poses, but I can listen my back up, rolling forward & back similar to cat and cow, just in a chair. Last time, one lady actually stood up & did some full blown yoga poses!

So, basically I kept moving & kept lightly drugged the whole day.. But it works for me!

Food Choices with Fibro VI

September 21, 2021

While it might be appealing to battle FM symptoms like fatigue with a balanced dose of cola drinks, chocolate, tea or coffee, but caffeine can impede with your capability to get the relaxing and restorative sleep that we require. This is a big issue in diminishing painful FM symptoms. The journal, Arthritis & Rheumatism, also advises that sleep difficulties might in fact play a vital role in FM development. If you enjoy drinking caffeinated drinks or highly caffeinated foods, ingest them through the first half of the day merely to abate sleep issues.

Caffeine in its many forms, Pop, chocolate, energy drinks, Coffee/Tea/ Hot Chocolate

Again, because of the Coke products that I like this is another Achilles heel. Fortunately I have recently found Coca-Cola flavored Tic Tacs it actually taste like Coke. They don”t have the high amount of sugar or caffeine which is a good thing but it also does not have the fluid and hydrating aspects to help keep my body hydrated (yes, I know there’s also salt & stuff in there)

My Hair Hurts

September 17, 2021

I owe an apology to many of the ladies is some of the various fibro Facebook groups I’ve been it. There have been many conversations over the years about Fibromites whose *hair* hurts. Turns out it’s a form of allodynia

I always assumed that they were talking about head pain but not the sensation that it actually does feel like your hair actually hurts – not your scalp. You see, over the years I have had a bunch of concussions.. Three of those concussion inflame on occassion, so I will have swelling & tender points on my scalp. I can even tell which incident it was.. One of my bike accidents? Falling on the ice at school? Accidentally bashing my head against a wall?

Well, nope, that is not the feeling it turns out. Those repetitive reactions are *not* what these women mean. I found that out today.

I was brushing my hair like I normally do, and decided to wash my hair. When I do this because my hair is so thick I tend to flip my hair over and back brush to get the hair to relax so I can more effectively clean it. Well my head felt weird bending over and putting my hair down.. I started your back brush from the base of my skull and I was good until I got about 4 in down then – Oh! My! God!! My hair was in agony.. Not my scalp – My Hair!

So I stopped brushing my hair stood up flipping my hair back & again – Oh My God! More excruciating pain. I had to have a shower because I was stinky from heat sweat, I still had to do something with my hair. I put it in a quick loose bun that was clipped in not elasticized in.. I found that was the least painful option for hopping into the shower..

I can still brush my hair normally and it doesn’t bother me but if I could try to do anything else for my hair right now, I’m f**ked..

So I owe these ladies an apology cuz I was thinking their issue was not so bad cuz my version wasn’t too bad. I should know better.. Cuz my Fibro is not her Fibro & her Fibro is not my Fibro.

A little research yeilded this information:

Apparently the number one culprit for this kind of pain is not washing your hair.. The oils that your scalp produces naturally accumulate around your hair shaft, and if not cleaned can promote an overgrowth of yeast on the scalp. It is apparently the region around each hair, pore, or follicle that is becoming inflamed, which translates to sensitivity that can feel like your hair hurts.

Wearing your hair in the same style, like a high ponytail, cornrows, buns, or braids for days at a time, can also contribute to more pain.

How can we help it? It all depends on what hair type you’re starting off with. Finer hair can’t go multiple days, because it produces more oil, Yet curly or gray hair can, as it produces less. As a rule of thumb, people with oily hair should shampoo every day or every other day. Dry or coarser hair should do every three to four days.

I know we tend to be exhausted an washing one’s hair is an exhausting chore, but consider that it might be worth it.