Archive for the ‘Media’ Category

Went for a Hike..

May 31, 2020

I’ve been feeling good the last few days.. Got in some exercise on Friday and Lilly & I went for a little hike yesterday, Saturday – probably 1.5 km (about a mile)

After we got home from our adventure we sat down in from of the tv to eat.. I watched 2 episodes of CSI before Lilly barked to let me know she wanted out. So I started to move. *That* is when my body informed me that I overdid it..

So, I was on a good day & my walking is back down to less than 1.5k on a hiking trail. Just before COVID19 lockdown, I went with my sister & her kids and my fellow cub leader & her son.. We hiked the Barred Owl trail at Long Sault conservation area.. that was 2.9 km (about 2mikes), on snow & ice, carrying my 15lb dog about 1/3rd of the way cuz she didn’t like the king walk on the ice. So, you can tell my fitness, ability & tolerance levels have dropped significantly.

Hopefully I can start getting out more for walks (that might lead to jogs) now that the weather’s finally warming up..

Wish me luck!!

7 Extraordinary Things

February 3, 2017

7 Extraordinary Things about People with Chronic Illnesses

From Chronic Illness on The Mighty.


January 24, 2017

Many of us have mental health issues in addition to FM, ME & CFS, so I thought it important to remind everyone that Wednesday is Bell Canada’s Let’s Talk campaign & we can help.. here are the rules/guidelines

A few mentions to remember on January 25th … For #BellLetsTalk

  • Will start midnight Newfoundland time (NST) or 10:30pm EST on January 24th and end midnight PST or 3am EST on January 26th
  • As long as you are a Bell or Bell Alliance customer, any call .. landline and mobile … text messages count for the 5¢
  • Use either English or French or both hashtags #BellLetsTalk and/or #BellCause
  • SnapChat filter for #BellLetsTalk is on available on January 25th, every time the filter is used it counts for the 5¢
  • Instagram, be sure to include #BellLetsTalk in all descriptions counts for the 5¢
  • Twitter, if you’re involved in conversation and are replying, be sure to include #BellLetsTalk
  • Facebook, Bell will have a video on the .. pinned at the top of their page … video views are what counts for the 5¢ … the more shares the better 🙂

** just a reminder, this is a Healthy Minds Canada campaign in support of #BellLetsTalk


Bell does appreciate everyone’s support!!

Mental Illness and the Media

January 24, 2017

Mental Illness Portrayed in the Media

Written by Anita Levesque

Mental Illness Portrayed in the Media

#BellLetsTalk Healthy Minds Canada #SickNotWeak #endstigma #mentalillnessinmedia

I don’t look sick

January 20, 2017

First TED talk on ME

January 20, 2017

#MEAction co-founder Jennifer Brea received a standing ovation for her moving TED Talk, the first ever about Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome

Invisible Illness Week Seminars on iTunes

September 16, 2009

Visit ITunes and download the Invisible Illness Week seminars for free on your ipod.

Now you can listen to them on your MP3 player, ipod, etc. Great while going for a walk or when you are stuck in bed.

How cool is that?

Welcome !

May 29, 2009

Welcome to my Blog!

My name is Kelli.. But I am also known online as Neon Rose and it’s variations (I answer to the name Neon, IRL).. I am also known, in scouting circles as Koolaid – yes, as in the drink (long story, I’ll tell ya some time)

This blog is about my life, my medical issues and any information I can share thereof.. I have been diagnosed with Fibromyalgia, Endometriosis, Allergies, Sensitivities, Asthma, Irritable Bowel Syndrome (IBS), Depression, Chronic Fatigue Syndrome (CFS/ME), Hypo active Thyroid, Restless Legg Syndrome (RLS),  Osteoarthritis (OA) and a host of other issues that are part and partial to go with the above mentioned. The focus here is going to be mainly on Fibromyalgia (hence the title), but will also include fibro-related issues and Endometriosis.

Why, you ask, primarily on Fibromyalgia. Well, cuz Fibro is the most significant issue at the moment.. My endo is under control, as is my asthma, RLS, allergies, etc.. Also, Fibromyalgia is also the least understood, most misdiagnosed and under treated condition that I have. If I can just help one other person, then, I’ll feel awesome cuz I have helped someone. (Why do I suddenly have a girl guide song in my head? *shrug*).

What aspects am I gonna cover? Everything I can. If you look at my categories you will see I plan to cover many areas of traditional and non-traditional medicines including Eastern medical philosophies, faith, as well as non-medical areas of life. I also plan to cover support (financial & emotional) and daily living and coping.

If you have questions, please feel free to ask.I will do my best to answer.

Note that all my content does not necessarily belong to me, however sources are always listed and author if available, if it is not original content. Please see disclaimer post for copyright information.