Posts Tagged ‘Arthritis’

My Types of Pain

November 7, 2020

With all the different medical conditions that I have, several of them are chronic pain conditions. Now you must think, because there are so many issues, that the pain would just bleed through, but it doesn’t. Each pain for each condition feels uniquely different from the others. Being able to differentiate between different types of pain and their causes is advantageous in that since I know what is causing the pain I know which treatment would work better

Fibromyalgia Pain – tTis is more muscular and joint pain. I have tropical rubs, muscle relaxation and pain medications to help deal with this

OsteoArthritis Pain – This pain is exclusively in my lower back as I have osteoarthritis in the entire lumbar and tailbone area of my back. Topicals will help this to a point, but anti-inflammatories tend to be the most productive treatment

Myofacial Pain Syndrome Pain- This one just sucks because it is hard to tell between what is the my official pain syndrome and what is just stress. And sometimes they’re both. Treatment for this type of pain is the nerve and trigger point injections that I get from my pain management clinic. Massage therapy also helps me with this .

Endometriosis Pain- Fortunately while I don’t experience this as much as I used to I still get shots from this . Currently I will feel the occasional shot down from my ovary to my leg. Other times is when Demetrio tissue adheres to the bowel and then the bowel moves as stool processes through causing the bowel structure to shift, causing years in the Endo tissue, causing pain. This is typically dealt with using anti-inflammatories and pain medications.

IBS Pain- initially because the endometriosis was located on my bowel I did not have problems differentiating initially between IBS pain and endometrial pain. Having dealt with this since my teen years I have been able to determine the difference between the two. And do a sharp whereas IBS is more crampy. The easiest way to resolve this is to have the bowel movement.

Arthritis Pain – I also have the normal form of arthritis in both my hands and in my knees. Anti-inflammatories typically help but support braces are also advantageous for both my wrists and my knees

Kidney Stone Pain- the first time I dealt with this pain it knocked me off my feet. From what I’ve read this is one of the most painful forms of pain that the human body experiences. It took three lithotripsies and several other false starts to get these treated. Drinking lots of fluid did help in that it would help float the stones away from the ducks so it was not impeding the function of the kidney.

I have experienced other forms of pain such as a pinched nerve, pulled or torn muscle, spring, bone break, concussions, etc. These forms of pain fortunately are short-term, typically less than 3 months unlike the chronic conditions above.

When it’s Not Fibro Pain

October 20, 2020

Over the years I’ve dealt with a lot of different kinds of pain. I’ve had broken bones, pulled muscles, sprained ankles, torn muscles, chronic Charlie Horses/nasty muscle spasms, concussions & even thrown out my back. Each of those feels different from each other, right? Before a Fibro diagnosis, they are dealt with appropriately.

I’ve also dealt with pain due to endometriosis, irritable bowel syndrome, CFS/ME, fibromyalgia, osteoarthritis, regular arthritis, kidney stones, gallstones… And each of those feels different from each other. I can even differentiate between IBS pain & Endo on my bowel pain.

I’ve dealth with all sorts of different types of pain..

But once you hit that one diagnosis, many doctors don’t bother looking past it. This happens way to often for those of us with Fibromyalgia & even ME/CFS.. When you go to the ER or even just to your family doctor with a new pain issue, many of us are spoken down to and even dismissed saying the pain is due to fibromyalgia. The one time I’ve have a pain that I said wasn’t fibromyalgia but it actually was happened when I had chest pain. It was costochondritis & while this is a Fibro issue, it’s understandable the first time or three that I freak out & head to the ER thinking heart attack.

Now, I’m lucky. I have had a great support system & have over recent years learned to be my own advocate without being a bitch about it.. I have not experienced this problem much with fibromyalgia. I did however experience this at the beginning of my medical journey in my 20s.

I kept having abdominal pain.. After being put off by my GP once or twice, him thinking it was just gas, he sent me after a 4 month wait, to a gynecologist. She did an exam & sent me back to my GP telling him to send me to a GI doc.

So, GP sends me to a gastroenterologist.. After a 6 month wait there, I was scheduled for a colonoscopy (that was fun..not) and was determined to have Irritable Bowel Syndrome.. After getting it settled down by diet & medication, I was still having abdominal pain. GI tells my GP to send me back to the gynecologist.

I had another 2 month wait to she her agai,n over a year after my previous appointment. She tells me, “you don’t have endometriosis”, because my symptoms were atypical, despite still being consistent with Endo. She did agree to do an investigative laparoscope to shut me up & “just in case” she was wrong. She Was Wrong. I had Stage 3 Endo across my abdomen. So the investigative laparoscoped turned into a treatment laparoscope where she tried to in size and burn off any visual endometriosis cells. She has to go back in 6 months later to get the remaining endometrial cells higher in my abdomen that she missed the first time because she “didn’t have long my enough tools”.

So I learned early on to be an advocate for myself, with support from friends & family. If you feel your are being dismissed, say so. Cuz yes, your pain *could’ be from your fibromyalgia, but it ‘could’ also be something else.

So, my doctor’s know that if something’s not right, I will stand up and say so, not taking no for an answer.


Those who know me personally, would probably say to me, yeah, but what about that issue with your shoulder? To be honest, that is still a work in progress. Now that physio is back available, I’ll be asking my GP for a prescription & get that set up. Yes, it started in March, and I’m just getting to treatment now. But remember, alot of things closed here in Canada for quite awhile, so yeah, it’s taking a little longer to get things dealt with in this issue.

September is Pain Awareness Month

September 15, 2020

In 2001 The American Chronic Pain Association led a coalition of groups to create the first Pain Awareness Month. These iincluded the NAACP, the Endometriosis Association, the American Cancer Society, various nursing organizations and several FM, CFS/ME organizations They assembled under the umbrella of the Partners for Understanding Pain.

This coalition was committed to raising awareness through mass media, public forums, and other sources so that chronic pain may be more readily recognized, better understood without the traditional stigma attached, and more fittingly treated and managed. The partnership, spearheaded by the ACPA, strived to create greater understanding among health care professionals, individuals and families who are struggling with pain management, the business community, legislators, and the general public that pain is a serious public health issue.

Did you know?

• Nearly 100 million Americans experience chronic pain —more than those who have diabetes, heart disease and cancer combined.

• Pain is a warning sign that indicates a problem that needs attention.

• Pain starts in receptor nerve cells located beneath the skin and in organs throughout the body.

• Living with pain can be debilitating and adversely affect everyday life.

Examples of pain include: Arthritis, Degenerative Disc Disease, Headaches & Migraines , Fibromyalgia, Multiple Sclerosis, Ehlers-Danlos Syndrome (EDS), Sickle Cell Disease, Cancer, Phantom Limb Pain and many more.

Chronic Illness Bingo leads to Acceptance

July 27, 2020

This is kinda like the get to know style of bingo, but it’s just for you. Check off what applies to you.

I originally just posted this on my regular social media, but choose to write about here.. The reason I do is the reaction of a friend of mine, Susan.

Late last year she was diagnosed with Rheumatoid Arthritis. Now, she has been struggling with acceptance that her life he’s been permanently altered through no fault of her own. Recently she say the post on my social media of my bingo card (see below) & noticed that she checked the few spaces I had empty. She then got curious & looked at the rest of the card noticing that she actually checked a majority of the boxes aswell.

This was her “Ah-ha” type moment. And realized “I have a chronic illness.” I think this realization, and acceptance of the hard truth has actually be a relief for her. She’s realized that there are limits and she has to learn where her limits are. But she’s no longer stuck and is able to move forward.

While I’m not happy that my post gobsmacked her in the face with the truth, I am glad she’s got the acceptance and is moving forward.


See where my 3 bingo lines are. How full isUis your card? I know someone who actually checks each box. 😦

My Fibro Is Not Her Fibro

July 3, 2020

I’ve written on this before, but that seems to be one of the lost articles in the gap of time. So, I’m taking another stab at it

Do not compare your health with anyone else’s. They are not really comparable beyond the basics.. Yes we may both have fibromyalgia, but my symptoms & treatments are different from everyone else’s . It not like comparing apple & oranges, but more like apples to apple.. a Delicious vs a Granny vs Macintosh. They all have the same basic characteristics, but are still significantly different.

Fibro, like apples, have different but similar forms..

For example,m a friend also has Fibromyalgia. Her diagnosis happened alot quicker because she knew her & I had alot of the same symotoms.

Now, while we both have fibro, we experience it differently and treat it differently. Our symptoms overlap with the obvious: pain, fatigue, IBS, fibro fog, sleep impairments… But from there they differ. I have mental health issues, significant cognitive issues, chemical allergies, speech impairment, & TMJ .. Her issues include balance problems, vertigo, chronic migraines, difficulties maintaining body temperature .. This is by no means an exhaustive list for either of us.

She is able to take some of the pharmaceutical treatments.. They work for her. She also sees a chiropractor on a regular basis. This helps her. She is able to work full time. I’m not saying she does not have pain or fatigue or anything else. I am also not saying she has less pain or less fatigue than I do. I’m saying we experience it differently, we react to it differently, and we treat it differently.

Myself, no, I am unable to work due to my symptoms and have been for many years.i am currently on long-term disability ( there will be a post about morning in the near future) . It has taken a long time to get my symptoms under control with a very different treatment plan than my friend. I’ve tried the pharmaceutical route & most of those medications do not work, or work well for me. In addition to regular visits to my pain doctor, I have alternatingmalternating appointments (well before & after COVID19) with an Osteopath & RMT ATVs local health clinic. I also go to the gym. (Before you jump on me, read my post about my activities at the gym))

So, you can see, two very different people can have very different symptoms, very different treatments, and very different results.

We both have Fibro but we are not the same.

About Fibro (Pt I)

June 29, 2020

This is a long read, but if you haven’t ever seen/read it, then it is most def worth the time. Because of it’s length, I’ve made it 2 posts. Fell free to use it for your own use if you so desire.

About Fibromyalgia

My Need for Massage Therapy– If I get a massage every week, don’t envy me. My massage is not your massage. Consider how a massage would feel if that Charley horse you had in your leg last week was all over your body. Massaging it out was very painful, but it had to be done. My body is filled with painful knots. If I can stand the pain, regular massage can help, at least temporarily.

My Good Days – If you see me smiling and functioning normally, don’t assume I am well. I suffer from a chronic pain and fatigue illness with no cure. I can have my good days or weeks or even months. In fact, the good days are what keep me going.

My Uniqueness – Even those who suffer from FMS are not alike. That means I may not have all of the problems mentioned above. I do have pain above and below the waist and on both sides of my body which has lasted for a very long time. I may have migraines or hip pain or shoulder pain or knee pain, but I do not have exactly the same pain as anyone else. (Keep an eye out for the reposting of the topic “My Fibro is Not Her Fibro”)

My Weight – I may be fat or I may be skinny. Either way, it is not by choice. My body is not your body. My body’s metabolism is broken, and nobody can tell me how to fix it. Often the medication I must take causes weight gain, but many of us with fibro suffer from severe IBS and lose weight.

My Stress – My body does not handle stress well. If I have to give up my job, work part time, or handle my responsibilities from home, I’m not lazy. Everyday stresses make my symptoms worse and can incapacitate me completely.

My Depression – Yes, there are days when I would rather stay in bed or in the house or die. I have lost count of how many of Dr. Kevorkian’s patients suffered from FMS as well as other related illnesses. Severe, unrelenting pain can cause depression, but it is a result of the Fibro.. not a cause of it.. Your sincere concern and understanding can pull me back from the brink. Your snide remarks can tip me over the edge.

My Sensitivities – I just can’t stand it! “It” could be any number of things: bright sunlight, loud or high-pitched noises, textures, odors, food, etc.. FMS has been described as the “aggravating everything disorder.” So don’t make me open the drapes or listen to your child scream. I really can’t stand it.

My Intolerance – I can’t stand heat, either. Or humidity. If I am a man, I may sweat…profusely. If I am a lady, I perspire. Both are equally embarrassing, so please don’t feel compelled to point this shortcoming out to me. I know. And don’t be surprised if I shake uncontrollably when it’s cold. I don’t tolerate cold, either. My internal thermostat is broken, and nobody knows how to fix it.

My Clumsiness – If I step on your toes or run into you five times in a crowd, I am not purposely targeting you. I do not have the muscle control for that. If you are behind me on the stairs, please be patient. These days, I take life and stairwells one step at a time.

My Forgetfulness – Those of us who suffer from it call it fibrofog. I may not remember your name, but I do remember you. I may not remember what I promised to do for you, even though you told me just seconds ago. My problem has nothing to do with my age (Young people can get fibro) but may be related to sleep deprivation. I do not have a selective memory. On some days, I just don’t have any short-term memory at all.

My Fatigue – I am not merely tired. I am often in a severe state of exhaustion. I may want to participate in physical activities, but I can’t. Please do not take this personally. If you saw me shopping in the mall yesterday, but I can’t help you with yard work today, it isn’t because I don’t want to. I am, most likely, paying the price for stressing my muscles beyond their capability.

My Pain – My pain is not your pain. It is not caused by inflammation. Taking your arthritis medication will not help me. I cannot work my pain out or shake it off. It is not even a pain that stays put. Today it is in my shoulder, but tomorrow it may be in my foot or gone. My pain is believed to be caused by improper signals sent to the brain, possibly due to sleep disorders. It is not well understood, but it is VERY real.

Welcome !

May 29, 2009

Welcome to my Blog!

My name is Kelli.. But I am also known online as Neon Rose and it’s variations (I answer to the name Neon, IRL).. I am also known, in scouting circles as Koolaid – yes, as in the drink (long story, I’ll tell ya some time)

This blog is about my life, my medical issues and any information I can share thereof.. I have been diagnosed with Fibromyalgia, Endometriosis, Allergies, Sensitivities, Asthma, Irritable Bowel Syndrome (IBS), Depression, Chronic Fatigue Syndrome (CFS/ME), Hypo active Thyroid, Restless Legg Syndrome (RLS),  Osteoarthritis (OA) and a host of other issues that are part and partial to go with the above mentioned. The focus here is going to be mainly on Fibromyalgia (hence the title), but will also include fibro-related issues and Endometriosis.

Why, you ask, primarily on Fibromyalgia. Well, cuz Fibro is the most significant issue at the moment.. My endo is under control, as is my asthma, RLS, allergies, etc.. Also, Fibromyalgia is also the least understood, most misdiagnosed and under treated condition that I have. If I can just help one other person, then, I’ll feel awesome cuz I have helped someone. (Why do I suddenly have a girl guide song in my head? *shrug*).

What aspects am I gonna cover? Everything I can. If you look at my categories you will see I plan to cover many areas of traditional and non-traditional medicines including Eastern medical philosophies, faith, as well as non-medical areas of life. I also plan to cover support (financial & emotional) and daily living and coping.

If you have questions, please feel free to ask.I will do my best to answer.

Note that all my content does not necessarily belong to me, however sources are always listed and author if available, if it is not original content. Please see disclaimer post for copyright information.