RSD stands for Reflex Sympathetic Dystrophy which is an order term for CRPS which starts for Complex Regional Pain Syndrome. November is the awareness month for this multi-named chronic pain condition . See the images below for more information..
Posts Tagged ‘Awareness’
November is RSD/CRPS Awareness Month
November 29, 2022Welcome to May!
May 1, 2021Welcome to Fibromyalgia Awareness Month!
What is Fibromyalgia? Fibromyalgia is a chronic pain condition characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. The current theory behind why is that fibromyalgia amplifies painful sensations by affecting the way your brain and spinal cord process painful and non-painful signals.
Why is Awareness Important? Because there are many incorrect assumptions and false facts about this disease & the people who have it. People need to know that just because you can’t easily see my pain on my fatigue or digestive issues or cognitive issues or.. etc.. that does not mean it is not there.
Why May? Initially, Fibromyalgia Awareness Day started exclusively on May 12 – the birthday of Florence Nightingale. Why her? Not only is she the mother of modern nursing, it is believed that she has Fibromyalgia…After returning home from the Crimean War in 1856, her diary entries are suggestive of the classic pain and fatigue condition that we have all experienced. So May 12th became the date for Awareness for Fibromyalgia, ME/CFS, & MCS.. But why or how did they get that extended to the whole month? I have no clue tbh. .
Why should you care? Approximately 2 to 4% of the population has fibromyalgia. In the US, that’s about 6 to 12 million people, In the UK that’s about 1⅓ to 2⅔ million people. In Canada that’s about 750,000 to 1.5 million people. That is alot of people. So, if that is the stat for the entire world, that means there are 153 to almost 307 million people worldwide with fibro..That is A LOT of people.
So what? That’s still not me. So why should you care, even with those stats? Well, anyone can have Fibromyalgia. So your son, your daughter, your sister, your brother, your cousin, your friend, your mother, your partner. Anyone of these people could get fibromyalgia.. That also means if you know 100 people, 2-4 of them will have Fibromyalgia. So, you *do* know someone with Fibromyalgia.
How? Simple. Ask questions. Do some research to find out a little bit of fact (not fiction) on fibro. Be cognizant of your behaviour. Support those in your life with this condition – off help & let them know you believe them. Wear a purple ribbon to show your support Wear purple!!
Awareness. Education. Support. Hope. – Image
March 31, 2021
March is Endometriosis Awareness Month.
Awareness. Education Support. HopE
** Please be advised, I have no rights to these images. I did not create them. I have just found them across the internet.. Don’t ask me were tho**.
Awareness Ribbon – Images
March 17, 2021
Endometriosis Awareness
Yellow Ribbon for Endometriosis AwarenesS
YELLOW RIBBON FOR ENDOMETRIOSIS AWARENESS
YELLOW RIBBON FOR ENDOMETRIOSIS AWARENESS
** Please be advised, I have no rights to these images. I did not create them. I have just found them across the internet.. Don’t ask me were tho**.
International Day for Disabled Persons
December 3, 2020December 3rd 2020
The annual observance of the International Day of Disabled Persons was proclaimed in 1992 by the United Nations General Assembly resolution 473. It aims to promote the rights and well-being of persons with disabilities in all spheres of society and development, and to increase awareness of the situation of persons with disabilities in every aspect of political, social, economic and cultural life. It also aims to promote an understanding of disability issues and mobilize support for the dignity, rights and well-being of persons with disabilities.
December 3, 2020
Chronic Illness Bingo leads to Acceptance
July 27, 2020This is kinda like the get to know style of bingo, but it’s just for you. Check off what applies to you.
I originally just posted this on my regular social media, but choose to write about here.. The reason I do is the reaction of a friend of mine, Susan.
Late last year she was diagnosed with Rheumatoid Arthritis. Now, she has been struggling with acceptance that her life he’s been permanently altered through no fault of her own. Recently she say the post on my social media of my bingo card (see below) & noticed that she checked the few spaces I had empty. She then got curious & looked at the rest of the card noticing that she actually checked a majority of the boxes aswell.
This was her “Ah-ha” type moment. And realized “I have a chronic illness.” I think this realization, and acceptance of the hard truth has actually be a relief for her. She’s realized that there are limits and she has to learn where her limits are. But she’s no longer stuck and is able to move forward.
While I’m not happy that my post gobsmacked her in the face with the truth, I am glad she’s got the acceptance and is moving forward.
See where my 3 bingo lines are. How full isUis your card? I know someone who actually checks each box. 😦
What You Do Cuz of Fibromyalgia
December 20, 2016What people don’t realize what you’re doing because you have fibromyalgia.
From Chronic Illness on The Mighty
Invisible Illnesses – Don’t judge
September 13, 2016You don’t have to see a disability for it to be there. Spread kindness, not judgment.
From Chronic Illness on The Mighty.
Five Things to Know About CFS
July 21, 2009Five Things You Should Know About CFS
by Amanda Rinkel
May 7th, 2009
I’ve already kicked off International Chronic Fatigue Syndrome & Fibromyalgia Awareness Day on May 12 a little early with my post on Five Things You Should Know About Fibromyalgia, and I’ve returned with more information, but this time about the chronic illness Chronic Fatigue Syndrome. Once again, no hilarity, no breaking news stories, just some information I think you should know.
Five Things You Should Know About Chronic Fatigue Syndrome
1. The hallmark of Chronic Fatigue Syndrome is fatigue, but it isn’t “normal” fatigue. When a healthy person is tired, they can rest or sleep to relieve fatigue, but a person with CFS cannot. Sleep and rest don’t help and activity can make the exhaustion worse.
2. Up to 75 percent of patients with Chronic Fatigue Syndrome potentially have or have been diagnosed with Fibromyalgia as well. That is up to 3 million people.
3. There are 4,000 confirmed abnormalities between a CFS patient and a healthy individual, yet none of these abnormalities have been identified as a cause or as a diagnostic marker.
4. 1-4 million people in the United States have CFS yet only 20 percent have been properly diagnosed with the illness and are receiving the proper treatment.
5. Chronic Fatigue Syndrome has been said to be as functionally disabling as Multiple Sclerosis, AIDS, End-stage Renal Disease and Chronic Obstructive Pulmonary Disease.
To learn more check out www.wamcare.org.
Soource: blog.su-spectator.com
Five Things to Know About Fibromyalgia
July 21, 2009Five Things You Should Know About Fibromyalgia
by Amanda Rinkel
May 5th, 2009
International Chronic Fatigue Syndrome & Fibromyalgia Awareness Day is next week on May 12th. I’m going to take a break from articles on internet wastes of time, movie reviews and news updates. Instead I’m going to take a moment to highlight these illnesses and the necessity for awareness.
Five Things You Should Know About Fibromyalgia
1. 3-8 million people in the United States have Fibromyalgia and up to 80% are women.
2. Fibromyalgia most commonly hits between the ages of 20-40 years old, at the “prime of life.”
3. It has been nick-named “the pain disease” because of the characteristic wide-spread, migrating body pain patients have. The pain has been described differently by each patient from dull aches to deep bone pain to burning, tearing, singeing, stabbing or shooting. The breadth of pain descriptions is what makes diagnosis difficult.
4. People with Fibromyalgia have cognitive difficulties, such as memory problems and attention issues, that has been nicknamed “Fibro fog” or “brain fog.”
5. Fibromyalgia is considered as functionally disabling as rheumatoid arthritis but is much less accepted and recognized by both the medical establishment, Social Security and the community at large.
To learn more check out www.fmsaware.org.
Soource: blog.su-spectator.com
Fibromyalgia 
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