Posts Tagged ‘Chiropractic’

Myth Debunked VI of VI

June 6, 2021

FIBROMYALGIA DIAGNOSIS IS THE END OF THE ROAD

Many find it hard to accept a fibromyalgia diagnosis, not just because of the condition itself but because of what it means. It can feel like the healthcare professionals are saying ‘there’s clearly something wrong with you but we have no idea what it is… there’s nothing more we can do for you’.  This ties into the point of the trashcan / umbrella diagnosis.

Lack of information and fibromyalgia-specific support at the time of diagnosis can leave many feeling like the diagnosis is the end of the road, but that doesn’t have to be the case. The OP was personally told by her rheumatologist not to go online because she’d ‘fall down the rabbit hole’. I imagine the doctor wanted her to go home, give up and stop bothering doctors.

Acceptance, often a difficult and ongoing work-in-progress for many, can be done in conjunction with keeping open mind, still being open to new developments, diagnoses and tests and treatments while working to manage fibromyalgia in day to day life.

Myself, I knew my diagnosis before my doctor’s did (Did the same with my endo), so acceptance was never much of an issue for me. I think my GP had a harder time accepting it than I did.

While there’s no cure, a multi-disciplinary approach can help to some degree. The likes of pacing, pain self-management therapy, massage, acupuncture, gentle exercise, gadgets, self-help books, medication, supplements and so on will work differently for everyone; both the experience of fibromyalgia and its management will be different for each person. It’s often a case of trial and error for each individual to develop a routine and to find the tools that work more effectively for them. 

My regime is a multi-disciplinary approach as mentioned above. I have a muscle relaxer, an anti-inflammatory, low level narcotics, MMJ and a small selection of vitamins. I also regularly see a physiotherapist /osteopath, RMT, pain physician for trigger point injections, & my dentist because of my TMJ, I participate in exercise which prior to covid was Aquafit for the most part. I try to watch my dietary choices, but I know I still fail there- addictions to sugar & McDonald’s. I am also involved in chronic pain support groups in my area which are currently virtual.

What hasn’t worked for me includes Lyrica, Gabapentin, Cymbalta, Fentanyl and Codeine Contin. I have given acupuncture several tries but have not found it helpful for me & occasionally detrimental. My best friend sees a chiropractor but I found that they were less helpful for me. I also still need to be very careful in the way of exercise so it’s not to over do..

COVID19 and Me

July 13, 2020

I’ve spoken to many people in the fibro community about this & it seems I’m not the only one deteriorating.. With over 3 months since many of our non-western medical treatments.. So, for most of us it’s only medications that we have access to, and if we are lucky, pain injections..

We are finding out how much our treatments help us.. Massage Therapy, Physiotherapy, Acupuncture, Osteopathy, Chiropractic Care.. For some it’s the ability to exercise when all pools and gyms have closed including even private facilities. I’m sure there are other possible treatments that I haven’t mentioned – remind me of what they are!!

Personally, I’ve lost physiotherapy & osteopathy, massage therapy, aquafit with other exercise at the gym, and the hot tub – God, I miss the hot tub.

But what I am missing most? Socialization..I’m still in contact with friends, and doing my scouting thing, but it’s not the same. I’ve only seen my best friend once through the glass door & subsequently only on Zoom. I haven’t heard from some of my Cub Scouts in months since we went virtual. There are three that despite attempts for contact, that we have not heard hide nor hair of.


Note: the above was originally written in mid-June before we started to re-open in my area. In the last week I have finally had social distance visits with my 2 best friends. I was glad to see them both.

I’ve also seen my RMT, I see my Osteopath next week. And even have my hair appointment with my Mom on Friday.

Now, some pools have opened and the splash pads. Unfortunately, some community & all private gyms like mine are not open.

My Fibro Is Not Her Fibro

July 3, 2020

I’ve written on this before, but that seems to be one of the lost articles in the gap of time. So, I’m taking another stab at it

Do not compare your health with anyone else’s. They are not really comparable beyond the basics.. Yes we may both have fibromyalgia, but my symptoms & treatments are different from everyone else’s . It not like comparing apple & oranges, but more like apples to apple.. a Delicious vs a Granny vs Macintosh. They all have the same basic characteristics, but are still significantly different.

Fibro, like apples, have different but similar forms..

For example,m a friend also has Fibromyalgia. Her diagnosis happened alot quicker because she knew her & I had alot of the same symotoms.

Now, while we both have fibro, we experience it differently and treat it differently. Our symptoms overlap with the obvious: pain, fatigue, IBS, fibro fog, sleep impairments… But from there they differ. I have mental health issues, significant cognitive issues, chemical allergies, speech impairment, & TMJ .. Her issues include balance problems, vertigo, chronic migraines, difficulties maintaining body temperature .. This is by no means an exhaustive list for either of us.

She is able to take some of the pharmaceutical treatments.. They work for her. She also sees a chiropractor on a regular basis. This helps her. She is able to work full time. I’m not saying she does not have pain or fatigue or anything else. I am also not saying she has less pain or less fatigue than I do. I’m saying we experience it differently, we react to it differently, and we treat it differently.

Myself, no, I am unable to work due to my symptoms and have been for many years.i am currently on long-term disability ( there will be a post about morning in the near future) . It has taken a long time to get my symptoms under control with a very different treatment plan than my friend. I’ve tried the pharmaceutical route & most of those medications do not work, or work well for me. In addition to regular visits to my pain doctor, I have alternatingmalternating appointments (well before & after COVID19) with an Osteopath & RMT ATVs local health clinic. I also go to the gym. (Before you jump on me, read my post about my activities at the gym))

So, you can see, two very different people can have very different symptoms, very different treatments, and very different results.

We both have Fibro but we are not the same.