Posts Tagged ‘Diagnosis’

New Diagnostic Criteria 2016

May 13, 2021

As of 2016, new criteria for the diagnosis of Fibromyalgia were determined. The previous test was a trigger point test of 11-18 points reacting gave a diagnosis of Fibromyalgia when not other condition explains it. This is no longer considered a valid marker for Fibro though many doctors still use this outdated model.

According to this, my WPI is 10 & my SSS is 8. That’s one criteria down. Symptoms have been around for decades. Dr Bested did a full panel of tests, needing 2 separate visits cuz of how much blood they required for the tests. All it found was that my vitamin D was a little low, but normal and vitamin B12 was lower than normal – but I knew that already.

So by this criteria, guess what!?!? I have Fibromyalgia!! Surprise!!

Who Diagnosed Me?

April 8, 2021

My initial diagnosis was a few things.. I took maybe a dozen blood tests for the obvious including Lupus, Lyme and that’s sort of thing. I saw a rheumatologist who determined I had “symptoms consistent with fibromyalgia.” I immediately requested a referral from my GP to the Environmental Health Clinic at Women’s College Hospital in Toronto. It took just over 2 years to get my appointment but I got in. Luckily for me, my partner at the time was working at Sunnybrook/WCH,. He pulled a few strings and called in a few favours to ensure that I got the top physician.

I was able to see Dr Alison Bested. At the time she was *the* top physician for Fbromyalgia, Myalgic Encephalitis/Chronic Fatigue Syndrome and Multiple Chemical Snsitivities

Dr Alison Christine Bested. MD, FRCP(C). At a Millions Missing Event in October 2016

Dr Alison Christine Bested, MD, FRCP(C), is a Haematological Pathologist, one of only about 100 Haematological Pathologists in Canada. Her training covered areas including: Immunology, Blood Banking, Genetics, Anatomical Pathology, Internal Medicine and Haematology both clinical and laboratory. She is currently the Chair of Integrative Medicine at Nova Southeastern University. Prior to this position, she was the Medical Director of the Complex Chronic Disease Program at BC Women’s Hospital clinic, in Vancouver, British Columbia. Prior to this she was Medical Specialist Liaison, then Acting Medical Director at the Environmental Health Clinic at Women’s College Health Sciences Centre, in Toronto, Ontario,. Dr. Bested’s medical specialty practice had dealt with complex chronic medical conditions including: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM), Multiple Chemical Sensitivity (MCS) and persistent Lyme Disease.

Dr. Bested participated on the Expert Medical Consensus Panel that wrote the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols. This consensus definition was published in the Journal of Chronic Fatigue Syndrome in 2003. In the literature this is known as the Canadian Consensus Definition of ME/CFS and is used worldwide by clinicians and researchers. She was one of the authors of the 2014 ME/CFS Primer for Clinicians published by the International Association of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. This summary publication is an updated version of the Canadian Consensus Definition of ME/CFS. Dr Bested has, with co-authors, written 2 books on these topics: : “Hope and Help for Chronic Fatigue Syndrome and Fibromyalgia”, 2nd Edition, 2008 and “The Complete Fibromyalgia Health Diet Guild and Cookbook”, 2013.

What did she do? She sent me for more extensive testing, mainly blood work. Unfortunately due to cost I was unable to pay for some of the tests which she had ordered. So while she didn’t have 100% of the results she did confirm 100% that I do have fibromyalgia. Her staff also confirmed the CFS diagnosis aswell.

Can Men Get Fibromyalgia?

April 2, 2021

Absolutely!! Yes!!

So why is Fibromyalgia considered a woman’s disease?

Male bodies are different from the female body. When doing a trigger point test on a woman you have to press enough down to change the color of the practitioners thumb pad. This amount of pressure in a woman with fibromyalgia will trigger pain. But the musculature in a male body requires more pressure to get the same response. It’s simply a matter of anatomy.

So why are men not getting diagnosed?

Because there is a stigma that fibromyalgia is a “women’s disease” or that men who get fibromyalgia are wussies or sissies.. Society’s expectation that men moreso than women should “suck it up.” Men also likely to have their symptoms dismissed.

So how are men getting diagnosed now?

In 2016 Fibromyalgia diagnostic criteria and it’s diagnostic process was revised. While many physicians still use the trigger point tested is no longer considered a standard. Through this new criteria, more men are starting to get diagnosed.

Will it always be a “Women’s disease”?

No.. Because it never was. Women were the the ones willing & able to get diagnosed. Do I think it will be a 50/50-ish split? No… I do think more women have fibromyalgia than men. The current figures say men make up 10% of all diagnoses, but I think it’s more likely 35% or maybe as high as 40%. But not close to 50%.