Posts Tagged ‘Endometriosis Awareness’

Awareness. Education. Support. Hope. – Image

March 31, 2021
March is Endometriosis Awareness Month. Awareness. Education Support. Hope.

March is Endometriosis Awareness Month.

Awareness. Education Support. HopE

** Please be advised, I have no rights to these images. I did not create them. I have just found them across the internet.. Don’t ask me were tho**.

Women with Endometriosis

March 29, 2021

I have a huge list of approximately 60 or more international women of note who other has endometriosis or strongly suspected of having endometriosis. I’m just going to.list off a few that I can remember off the top of my head.

  • Jillian Micheals – Fitness trainer, known for TV show “The Biggest Loser”
  • Sinead O’Connor – Irish singer, known for her rendition of “Nothing Compares to You”
  • Hillary Clinton – former First Lady and 2016 Presidential Candidate
  • Marilyn Monroe – Actress
  • Julianne Hough – Dancer, know for “Dancing with the Stars”
  • Susan Sarandon – Actress
  • Whoopi Goldberg – Comedian/Actress/Daytime tv host
  • Cyndi Lauper – Singer
  • Emma Bunton – British Singer, known more commonly as Baby Spice
  • Amy Schumer – Comedian/Actress
  • Daisy Ridley – Actress, known for Star Wars
  • Chaz Bono – Son of Sonny Bono & Cher. (Transgender)’⁰

March Endometriosis Awareness Month Banners

March 24, 2021
Endometriosis Awareness Month

Endometriosis Awareness Month


ENDOMETRIOSIS AWARENESS


March is Endometriosis Awareness Month


MARCH IS ENDOMETRIOSIS AWARENESS MONTh

** Please be advised, I have no rights to these images. I did not create them. I have just found them across the internet.. Don’t ask me were tho**.

My Endometriosis Chronological Journey of Symptoms & Treatments

March 22, 2021

Over the years I have been on many medications & have tried various options for treatment. This is a list of treatments, both before & after diagnosis:

Summer 1988 – Menstruation cycle becoming more uncomfortable and occasionally painful. Treatment? Nothing.. I just figured they were just bad cramps.

Abdominal pain considered just ‘bad cramps’

March 1990 – prescribed Ortho 7-7-7 by my GP at my request for the purpose of lightening & regulating my cycles. This medications did helpat the time.

Winter 1994 – Increase of re-occurring and irregular abdominal pain, beginning in spurts. Pain usually, but not always, eased by soft bowel movement. Minimal impact on quality of life

August 1996 – Increase of re-occurring and irregular abdominal pain, still in spurts. Pain less frequently eased by soft bowel movement. Pain/discomfort had some impact on general quality of life.

Autumn 1997 – By this time, due to frequency in bouts of pain, was able to begin distinguishing between different types of pain as well as circumstance surrounding the pain. The abdominal pain and discomfort was beginning to have noticeable impact on general quality of life.

Spring 1998 – Referred to gynecologist who only adjusted my oral contraceptive to Triphaisal. This was changed back in the Autumn due to side effects ( no, I don’t remember or have record of what they were)

November 1998 – Referred to gastroenterologist by recommendation of gynecologist. Within a month I had a colonoscopy and a diagnosis of irritable bowel syndrome. Prescribed Dicetel which alleviated some symptoms. Referred back to gynecologist in March 1999.

Laparoscopic surgery

The next three months were spent pushing my gynaecologist to perform an exploratory laparotomy to confirm, or deny the presence of Endometriosis within the abdominal area.

June 1999 – Diagnostic Laparoscopy resulted in diagnosis and initial surgical treatment, excisement of Endometriosis. She was unable to excise all of the endometrial tissue as she did not have sufficiently long tools to get to all the areas.

August 1999 -January 2020– Quick return of abdominal pain. Prescribed Lupron hormonal treatment who was an ineffective treatment.

Depo Lupron

January 2020 – Full Laparotomy resulted in excision of remaining & new Endometriosis growth and a left ovarian cystectomy. Back on an oral contraceptive, Ortho 7-7-7.

March 2000 – Due to scar adhesion, approximately 12s layer of muscle fat & fascia scarred together. It took one very long and very very painful hour for my osteopath to loosen the abdominal scaring from my surgery. But OMG, the relief when she was done was phenomenal.

July 2000 – began to experience abdominal pain during and immediately before menstrual cycle., A more typical reaction of Endometriosis

Summer/Fall 2000 – Attempted to try accupuncture & Chinese herbal medicine for Endometriosis. The needles, I have found, don’t help me & usually also give me a migraine.. The herbal had zero impact.

November 2000 – began vitamin therapy to help combat Endometriosis & to improve overall health. It helped as a month later the abdominal pain during and immediately before menstrual cycle decreased.

October 2001 – Ceased oral contraceptive to participate in Endometriosis study .

January- July 2002 Participatef in study for Depot Provera. Received monthly shots of Depot Medroxyprogesterone Acetate Subcutaneous Injections. No change in symptoms while on the medication. Returned to Orthon 7-7-7 upon completion of study.

Depo- Provera

August-December 2003 – Increase again is abdominal pain level throughout monthly cycle, missing increasing amounts of work. The ended December 25 when I went on medical leave.

February, 2004 – Laparoscopic surgery, cautery of Endometriosis & lysis of pelvis adhesions. Bowel declared ‘immobile’ likely due to IBS.

March 3, 2004 – Start Othro Evra Contraceptive Patch continuous.

April 4, 2004 – Start Othro Novum 1/35 oral contraceptive continuous as patch resulted in breakthrough bleeding..

June 20, 2004 – Start Minovral oral contraceptive continuous as Ortho Novum resulted in breakthrough bleeding

January 2005 – Change Minovral to 3 month cycle due to break through bleed

March 2005 – 3 weeks of severe abdominal pain – Thought to be endo related, as corresponded with menstrual bleed. Took Percocet.

Severe Abdominal Pain

June 2005 – Severe abdominal pain again – Thought to be endo related, as corresponded with menstrual bleed. Took Percocet. Started Yasmin oral contraceptive continuous as Minovral had negative side effects. Was told if breakthrough bleeding occured, let cycle come. Unfortunately, I had three visits to ER for abdominal pain, CT scan showed enlarged gallbladder & possibly an ovarian cyst again on right side.

August 2005 – Abdominal, gynaecological ultrasound. Negative result.

October 2005 – Abdominal, gynaecological ultrasound. Negative result.

I don’t recall what I was switch to next, but it was a continuous oral bcp. Have been on a few other continuous birth control pills since then. Been fairly well.controled since then with occasional spots of pain. Changes were due to side effects and allergies.

Mirena IUD

Currently, I am still pre-peri-menopausal & have an IUD. I was also placed on Arthroyec, an anti-inflammatory, in the late 1990’s prior to any surgery but am still on.. The only problem I currently have is the natural bleed I get due to placement of tiny veins/arteries just inside the vagina. My current gynaecologist cauterizes them once or twice a year.

Awareness Ribbon – Images

March 17, 2021
Endometriosis Awareness

Endometriosis Awareness


Yellow awareness ribbon

Yellow Ribbon for Endometriosis AwarenesS


YELLOW RIBBON FOR ENDOMETRIOSIS AWARENESS


YELLOW RIBBON FOR ENDOMETRIOSIS AWARENESS

** Please be advised, I have no rights to these images. I did not create them. I have just found them across the internet.. Don’t ask me were tho**.

My Atypical Endometriosis

March 12, 2021

When I was first referred to a gynecologist in the Spring of 1998 for abdominal pain that she was certain that it was not endometriosis. She referred me back to my GP with recommendation of a referral to a gastroenterologist as she believed the issue was more through my digestive system then my gynecological system.

I saw the gastroenterologist, had my colonoscopy and did confirm that yes I did have IBS & was referred back to the gynaecologist in March of 1999

Symptoms of Endometriosis: Heavy Menstrual Cycle, Severe Pelvic Pain, Fatigue and Long Irregular Menstrual Cycles

She was still very hesitant on the idea that I have endometriosis as my symptoms were ‘atypical’ . For me my symptoms included

  • Pelvic Pain. Yes, but all month long, not just during my cycle
  • Heavy & irregular cycles but controlled with birth control pills
  • Lack of reaction to Depo-Provera
  • Bowel pain all month long, not just during my cycle
  • Both diarrhea & constipation which could easily just be IBS.

Symptoms I don’t have:

  • Cycle dependant pain
  • Pain during or following sex
  • Heavy & irregular cycles because they were controlled with the birth control pill.
  • No consistent IBS flaring during Menstrual cycle
  • No family history (that we knew of) of endometriosis
  • Severe & regular migraines during Menstrual cycle
  • No bloating
  • No breakthrough bleeding between cycles because cycle were controlled with birth control pills
  • High sex drive as most women with Endometriosis have a below average sex drive

So while I had some symptoms, they weren’t a standard or typical case.After 3 months of pushing her to do an exploratory laparoscope which she eventually did. I think she agreed to do it more to shut me up than believing I had endo.

And low & behold! Endometriosis stage 2 I believe. Since she went in believing she would not find endometriosis, she did not have sufficient tools to access & remove all the endometrial tissues. But I had my diagnosis.

So, if you know you have Endometriosis and your doctor does not, push the issue. Worse case it’s negative. Or if you are like me, you prove your doctor wrong.

March Is Endometriosis Awareness Month – Images

March 10, 2021
March is Endometriosis Awareness Month

March is Endometriosis Awareness Month


March is Endometriosis Awareness Month

MARCH IS ENDOMETRIOSIS AWARENESS MONTH

** Please be advised, I have no rights to these images. I did not create them. I have just found them across the internet.. Don’t ask me were tho**.

I Am That One in Ten – Images

March 4, 2021
1 in 19 women have Endometriosis

One in ten women have Endometriosis.

I am 1 in 10.

I AM AN ENDO WARRIOR


March is Endometriosis Awareness Month. I am 1 in 10.

March is Endometriosis Awareness Month.

I am 1 in 10.

** Please be advised, I have no rights to these images. I did not create them. I have just found them across the internet.. Don’t ask me were tho**.

Endometriosis Awareness Month

March 1, 2021

March is Endometriosis Awareness Month.

Endometriosis is a chronic & painful gynecological medical.condition . It occurs when endometrial, the tissue that grows inside the uterus, grows outside of the uterus, anywhere in the human body.

In most cases women with Endometriosis the endometrial cells are located within the abdominal area including bladder, bowel, uterus, fallopian tubes, ovaries, etc. Unfortunately it can be found elsewhere in the body including musculature, and other organs including at worst the heart, lungs, or brain. Fortunately endometriosis occurs only on those last three locations on a very very rare occasion.

Examplesof Endo Symptoms

Typical symptoms of Endometriosis include, but not limited to

  • Painful Menstruation
  • Excessive Bleeding During Menstruation,
  • Shortened or Irregular Menstrual Cycles
  • Back Pain
  • Painful Sex
  • Infertility
  • Painfull Urination especially during one’s period
  • Painful bowel movements especially during one’s period
  • Sensation that your insides are being pulled down lower in the abdomen
  • Fatigue
  • IBS either constipation, diarrhea or both
  • Spotting or bleeding between in typical menstral cycle
  • Nausea and vomiting,
  • Pelvic pain

This is by no means an exhaustive list, but these are the highlights of a woman with “typical” endometriosis..

Check ibacklater to see my posts concerning treatment, my atypical endometriosis.and my experiences with treatments.

Endo Info March 1

March 1, 2012

The most noticeable and typical symptom of Endometriosis is pain, specifically pelvic pain. The most common time to expect pain is before and during periods, as well as during sex. Some may confuse this with PMS, which presents as abdominal and/or pelvic pain. The discomfort from PMS is typically treated simply with ibuprofen, or up to Xtra Strength Tylenol. Pain from endo tends to be more acute than with PMS and can not be treated as easily with OTC meds. Additionally PMS occurs solely before the menstrual bleed, while endo pain can present before, during, after the cycle and atypically at any time during the cycle. If you have pain like this, check out the additional symptoms and possibly see your doctor. Most Endo Info tomorrow.