Posts Tagged ‘Fibromite’

May 12th is Coming

May 10, 2022

Each year on May 12th, we observe International Fibromyalgia Awareness Day. Globally, we also acknowledge Awareness for Chronic Immunological and Neurological Diseases (CIND), typically considered Chronic Fatigue Syndrome/ Myalgic
Encephalomyelitis (CFS/ME) and Multiple Chemical Sensitivities (MCS). This does include other conditions such as Multiple Sclerosis, Addison’s Disease, Lupus, Chronic Regional Pain Syndrome (CPRS), & Irritable Bowel Syndrome to name a few.

Awareness Ribbons

Fibromyalgia affects 2-4% of the population. For context that’s up to 13 million of the US population & 1.5 million of the Canadian population  It is a musculoskeletal syndrome and causes a variety of symptoms. Common to all Fibromites is chronic widespread pain and debilitating fatigue. Additional symptoms can include:

  • anxiety
  • depression
  • migraines/chronic headaches
  • irritable bowel syndrome
  • irritable bladder
  • insomnia
  • hypersensitivity to cold/hot
  • swelling
  • fibro fog (inability to concentrate/focus)
  • difficulty remembering
  • numbness
  • stiffness
  • decreased energy
  • noise, light and odor sensitivity
  • skin sensitivity
  • See a more extensive list here

Symptoms may come and go, lasting a few minutes, an hour, a day, a week, a month, or a year. While there is no cure for fibromyalgia, a variety of treatments and therapies focus on reducing the amount and frequency of pain. They also aim to improve sleep. Therapies such as exercise, massage, acupuncture, and chiropractic care aim to manage symptoms without pharmacological interventions. Prescriptions manage pain, improve sleep, and combat depression, too.

Chronic Fatigue Syndrome/ Myalgic
Encephalomyelitis (CFS/ME)
affects ¼-¾ of 1% of the population For context that is up to 2.5 million of the US population & up to 300,000 of the Canadian population. It is a serious, long-term illness that affects multiple body systems. Symptoms of CFSME are severe fatigue, and sleep issues. Additional symptoms commonly include: post-exertional malaise (PEM), problems with thinking and concentrating, pain, and dizziness. Like fibromyalgia, symptoms may come and go, lasting a few minutes, an hour, a day, a week, a month, or a year. There is no cure and no real recommended treatment plans . Individual symptoms may be treated or managed and like Fibromyalgia, they may provide relief for some but not others. Coping strategies, like learning new ways to manage activity, may also be helpful in some.

Multiple Chemical Sensitivities (MCS) is a syndrome resulting from a reaction to environmental factors such as tobacco smoke, auto exhaust, perfume, insecticide, new carpet, chlorine, food chemicals an preservatives. Symptoms can vary extensively and can include:

  • Headache
  • Fatigue
  • Dizziness
  • Nausea
  • Congestion
  • Itching / Rash or hives
  • Sneezing
  • Sore throat
  • Chest Pain
  • Changes in heart rhythm
  • Breathing problems
  • Muscle pain and/ot stiffness
  • Diarrhea / constipation
  • Bloating & gas
  • Confusion
  • Trouble concentrating
  • Memory problem
  • Mood changes

Treatment typically is to avoid the irritant

AWARENESS DAY HISTORY

Fibromyalgia, CFSME, MCS Awareness Day was first observed in North America in 1992 in honour of the birthday of Florence Nightingale.

Why Florence Nightingale?

During in the Crimean War on the 1850’s with the English army, she established the training of women, organizing them to help care for the wounded soldiers, establishing the basis of modern nursing.

During the war while working on the front lines, Florence suffered a traumatic collapse which resulted in most of her life to be in debilitating chronic pain, often unable to walk or leave her bed. Documentation suggests her symptoms to be similar to fibromyalgia and chronic fatigue. 

SPREAD AWARENESS

To help spread Awareness of Fibromyalgia and these other conditions please use the following hashtags in your social media:

  • #May12th
  • #FibromyalgiaAwarenessDay
  • #CFSMEAwarenessDay
  • #MCSAwarenessDay

As the month of May is also dedicated to Fibromyalgia Awareness you can use these additional hashtags

  • #FibromyalgiaAwareness
  • #FibromyalgiaAwarenessMonth

 

Food Choices with Fibro III

August 31, 2021

Aspartame is synthetic sweetener, also recognized by the brand names Equal and NutraSweet, is used to sweeten some frozen desserts, beverages, yogurt, and some other foods without adding calories.

Artificial Sweeteners including Equal & Nutraseeet

There have been a case information connecting aspartame to fibro. In one of these, a fifty year old lady who had been living with fibro for ten years experienced development of her painful symptoms when she vacationed in overseas and didn’t use aspartame. Though, her symptoms reemerged when she got back home and started aspartame use again. In the other occasion, a forty-five year old man found that his hand, wrist, cervical spine, and forearm pain stopped when he stopped aspartame use.More study is required to approve these conclusions, however it might be a wise idea to avoid aspartame if you have fibromyalgia.

Try using a small amount of natural sugar instead. Apparently, you can even add beets to some dishes for a hint of mellifluousness.

If you have to use synthetic sweeteners, try using sucralose, which is derived from calorie and sugar-free.

Personally, i can not stand the taste of the stuff

Fibromite?

May 10, 2021

i’m sure you’ve seen it floating around.. I’ve been using the term forever & an not really sure of the origin. My first use of the word in this blog is in 2009..

A Fibromite, simply put, is a person with the medical condition of Fibromyalgia.

By extension, Fibromites are people with Fibromyalgia.

Welcome to May!

May 1, 2021

Welcome to Fibromyalgia Awareness Month!

Wear Purple for Fibromyalgia Awareness Month

What is Fibromyalgia? Fibromyalgia is a chronic pain condition characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. The current theory behind why is that fibromyalgia amplifies painful sensations by affecting the way your brain and spinal cord process painful and non-painful signals.

Why is Awareness Important? Because there are many incorrect assumptions and false facts about this disease & the people who have it. People need to know that just because you can’t easily see my pain on my fatigue or digestive issues or cognitive issues or.. etc.. that does not mean it is not there.

Why May? Initially, Fibromyalgia Awareness Day started exclusively on May 12 – the birthday of Florence Nightingale. Why her? Not only is she the mother of modern nursing, it is believed that she has Fibromyalgia…After returning home from the Crimean War in 1856, her diary entries are suggestive of the classic pain and fatigue condition that we have all experienced. So May 12th became the date for Awareness for Fibromyalgia, ME/CFS, & MCS.. But why or how did they get that extended to the whole month? I have no clue tbh. .

Why should you care? Approximately 2 to 4% of the population has fibromyalgia. In the US, that’s about 6 to 12 million people, In the UK that’s about 1⅓ to 2⅔ million people. In Canada that’s about 750,000 to 1.5 million people. That is alot of people. So, if that is the stat for the entire world, that means there are 153 to almost 307 million people worldwide with fibro..That is A LOT of people.

So what? That’s still not me. So why should you care, even with those stats? Well, anyone can have Fibromyalgia. So your son, your daughter, your sister, your brother, your cousin, your friend, your mother, your partner. Anyone of these people could get fibromyalgia.. That also means if you know 100 people, 2-4 of them will have Fibromyalgia. So, you *do* know someone with Fibromyalgia.

How? Simple. Ask questions. Do some research to find out a little bit of fact (not fiction) on fibro. Be cognizant of your behaviour. Support those in your life with this condition – off help & let them know you believe them. Wear a purple ribbon to show your support Wear purple!!

Exercise Snacks? Huh?

January 4, 2021

Exercise Snacks? Yeah.. & no, not cookies shaped like bodybuilders! Lol!

Weightlifting Gingerbread Men

Many of you know about my loss in weight and my improved health.. Part of that is due to exercisr…But because of covid, my gym closed & since it reopened, I haven’t felt comfortable going back yet..

Some of you know that I’ve taken up “running” to continue weight loss or at least maintain what I have lost. I still needed to exercise so I’ve been doing a short circuit around the block every couple days.. Some of it’s simply walking, some jogging, and when I’m feeling up to it, I’ve gotten into a dead run (I’m faster than my dog!).. With the changing of the seasons, weather’s gotten cooler & with regular snow just around the corner, touring my neighborhood is not going to be an option.

I saw this research article from UBC about Exercise Snacks & it’s an interesting concept.. Do short bouts, like 1 minute short, of exercise a couple of times a day and it gives you the same benefits as doing it all in all be shot.

This Is How Short One Minute Is

So, I’m thinking that hopping on Mom’s treadmill a couple times a day for a few minutes could very well be a better option for me than running around the neighborhood in snow boots!

Now, I didn’t always have this much functionality because of my fibromyalgia. I also realize that there are many fellow Fibromites or others who cannot go running, jogging, or even walking a distance.. This might still be an option because you don’t have to walk. Your exercise does not necessarily have to be intense. You can do stretches – one or two simple yoga poses.. Or lift weights and when I say weights, I’m talking anything heavier than just your hand. This could give you the same benefits..

It’s something to consider..

https://beyond.ubc.ca/exercise-snacks/?utm_source=fb&utm_medium=Facebook_Instream_Video&utm_campaign=BAM-exercisesnacks-ON&utm_content=6214293621226&fbclid=IwAR136bMw5Spkla0AjSfJWXlt7VyYixwzdBv2k6vDSygkXA4wi9VeTMwNDrg

** If this link does not work, please advise. I do have a local copy. **

Crappy Day #2

October 2, 2020

I know, I know.. 2 posts in one day! The other was scheduled. This one is not.

I recently posted about being in remission and how things have settled down significantly, overall. But I do still have flares.

Today is a perfect example of that.

Last weekend it was approaching 30°C, low-mid 80°F.. Went swimming twice in my sister’s pool.. Absolutely gorgeous day!

Selfies last weekend while swimming – Gorgeous weather!

Monday, had a brief high of 18°C, 64°F.. that’s a big jump for my body.. & then Tuesday, it was overcast & the mercury dropped a bit more.. but I was still ok. Pain crept up asmidge, but nothing I couldn’t function through.

Wednesday, it stayed cool and it rained on & off all day.. By midnight, my body started to acknowledge the weather shift.. The increased pain & my own wonky sleep schedule had me up all night, with only able to get about 4 hours sleep.

Thursday, crappy day #1, I’m toast between the shift & the lack of sleep, my pain levels have skyrocketed. This is despite efforts on my part to help reduce the effects my environment has on my body.

Friday, crappy day #2, is worse.. I didn’t get a decent night’s sleep, so no REM or healing sleep to help me improve, to heal, to recover. My pain level right now is a 6/10.. Pure Fibromyalgia pain.

Chrinic pain isn’t very pretty, is it?

I only hope I can get better sleep tonight. Wish me luck!

Susceptibility

July 20, 2020

Despite what some people think, we DO NOT have a compromised immune system.

People taking immuno-suppressant medications, transplant recipients or with cancer / HIV have had their immune systems destroyed and can not fight off any new invading bug. They have compromised immune systems cuz essentially that system does not currently have much function in their bodies.

Our systems are impaired. So many variables impact each person’s impairment, but we are definitely impaired. Even the lady with only Fibromyalgia & is in long term remission has an impairment, as low as it might be. But she is not as much as the girl next door that has has uncontrolled Lupus and uncontrolled Fibromyalgia. We each have our unique set of variables that makes our own levels of impairment & thus susceptibility different.

IMO, persons with autoimmune conditions are definitely impaired. With these diseases their bodies are constantly fighting with themselves making it difficult to the immune system to fight the real infection as well as the phantom from the disease. So they’re taking a bit more of a hit than those without an auto-immune disease.

& No. Fibromyalgia is NOT an autoimmune disorder. I believe they are now thinking it’s neurological, which makes sense.

IMO, Fibromites, because of our declined health and it’s harder for us to fight off bugs, we also have impaired immune system. Our immune systems are fully intact but because of the impact fibro has on other system, we are definitely at a higher risk than the general public.

At this point I had actually made a list of various medical condition & where I thought they fit on the susceptibility scale. But there are too many other factors, the biggest two being additional medical conditions and the amount of control of one’s conditions.

So, I am only going to rate my own susceptibility cuz I know all my factors. My factors: I have fibromyalgia & about a dozen other issues are, for the most part, controlled. I do not have an autoimmune disorders (or determined to be, at this time). I am, otherwise, in good health.. So cuz I’ve got fibro, I’m at risk, but it’s controlled so that lowers the risk, but I’ve got a whole bunch of other non-autoimmune issues which increases my risk, but I’m healthy, which lowers the risk. So, I’d say on a scale of 1-10, my risk level is at about 6/10.

Remember, I am not a medical doctor and have no medical training. This is just my opinion based on the research I’ve done.

Who Do You Sleep With?

September 23, 2011

Who do you sleep with? A partner? A pet? Alone? Myself, I tend to sleep with a partner.. There are many advantages & disadvantages to sleep with a partner..

 

Disadvantages:
*(S)He may snore or talk while sleeping
*(S)He may be a restless sleeper and putting two together could be a nightmare
*(S)He may be used to having the whole bed and becomes a bed hog
*(S)He may not be used to sharing and becomes a blanket hog
*(S)He may like to cuddle and tho may consciously know not to cuddle, do so unconsciously while asleep
*(S)He may like to connect while asleep and reach out and touch you, but we know there are times when any unexpected touch hurts
*(S)He may have different sleep hours which could disrupt your sleep *(S)He may have a small bladder and needs to use the bathroom several times a night *(S)He may be more sexual and try to initiate some hanky-panky while still asleep
*(S)He may prefer a different room temperature or room darkness
*(S)He be a total morning person who wakes bright, cheerful and alert. To be honest, I don’t think *any* Fibromite wakes bright, cheerful or alert let alone all three! Advantages:
*You are not alone, and you *know* this. You know there is some there for you. You know that there is someone who cares and will be there for you. You know that (s)he loves you and will support you. You know that there is someone who ‘gets it’, or is at least understanding & compassionate, or if your are lucky, both. It’s this knowledge that, as a single advantage, easily outweighs the potential disadvantages. Do you agree with my conclusion? Can you think of any other advantages or disadvantages?