This is part of a series of various Non-Scale Victories. They are things I’ve noticed over the last few years as I’ve lost weight. I will be closing this off this series in two weeks with an overlapping topic of a similar vein.
I’m Itchy.
This kinda goes back to the flexibility thing, but on the weekend I was in the hot tubs, and I have no clue why, but my back got itchy, like really itchy Not the kind you can ignore. And with its positioning it’s on of those spots where I’ve always had to grab the back scratcher & if I’m lucky, reach it
I know I’m a little smaller than the last time I had this itch so I reached around behind hoping that maybe I could get the bottom of the itchy spot with my thumb just hoping to take a little of the edge off. Well, I was able to do that & then some. I also to turn my hand onto my back & scratch the whole area!
So I reached the other arm Inver my arm & tried to grab the other hand . And guess what!!! I couldn’t do it.. lol. But I think that when I push the bottom arm up & push the top arm down, I might be able to touch my fingers. Since both my arms would be behind my back I have not arms to push on my arms.. hehe.. so it’s just my theory.. 🙂
Fibromyalgiais a chronic condition characterized by widespread pain in your muscles, ligaments and tendons, as well as fatigue and multiple tender points – places on your body where slight pressure causes pain.
Myofascial Pain Syndromeis a chronic form of muscle pain. The pain of Myofascial Pain Syndrome centers around sensitive points in your muscles called trigger points. The trigger points in your muscles can be painful when touched. And the pain can spread throughout the affected muscle.
I want to talk to you about Fibromyalgia (FM) and Chronic Myofascial Pain Syndrome (MPS). Many have never heard of these conditions and for those who have, many are misinformed. And because of this, judgments are made that may not be correct. So I ask you to keep an open mind as I try to explain who I am and how FM/MPS has assaulted not only my life but those whom I love as well.
I cannot show you a physically open wound to show how much pain I’m in. If I could you would take one look at that, tell me to sit right down, get me a pillow, offer me something to eat or drink and have that concerned and understanding look on your faces. However with Fibromyalgia, you will hear from many people that they would rather have a broken leg any day than suffer the kind of pain these disorders inflict. To me, a broken leg is even a poor example to compare suffering to these disorders and an insult to those of us with those disorders. You see, I suffer from a disease that you cannot see; a disease that there is no cure for and that keeps the medical community baffled at how to treat and battle this demon, who’s attacks are relentless. My pain works silently, stealing my joy and replacing it with tears. On the outside we look alike you and I; you wont see my scars as you would a person who, say, had suffered a car accident. You won’t see my pain in the way you would a person undergoing chemo for cancer; however, my pain is just as real and just as debilitating. And in many ways my pain may be more destructive because people can’t see it and do not understand….
You must see with your ears and your heart what your eyes cannot see. You must listen carefully to what I am telling you. What I describe to you may not make much sense to you and may be difficult for you to understand. Sometimes it may seem to you to be a different universe that I discuss. Know that it probably is. You don’t have to fully understand my universe and you cannot possibly. However hear my pain, listen for red flags always of any danger signals where you may need to help with added assistance. I like to call it “sending in the troops.” Anytime I do not seem in touch with reality. Please don’t get angry at my seemingly lack of interest in doing things; I punish myself enough I assure you. My tears are shed many times when no one is around. My embarrassment is covered by a joke or laughter, but inside I want to die. You will hear many things from me that to you seem as easily resolvable. You may wonder why I make the same “wrong” decisions over and over again. Why haven’t I learned by this time? Why can’t I see the senselessness of my behaviour? I may seem to be getting my life together and them bottom out all over again. Please understand the difference between “happy” and “healthy”. When you’ve got the flu you probably feel miserable with it, but I’ve been sick for years. I can’t be miserable all the time, in fact I work hard at not being miserable. So if you’re talking to me and I sound happy, it means I’m happy. That’s all. I may be tired. I may be in pain. I may be sicker than ever. Please, don’t say, “Oh, you’re sounding better!” I am not sounding better, I am sounding happy.
What is happening here? Am I lazy, stupid, etc? Nope. My physical brain and body is very different than yours. I experience life different than the way you do. I feel different than you do. Most of my “friends” are gone; even members of my own family have abandoned me. I have been accused of “playing games” for another’s sympathy. I have been called unreliable because I am forced to cancel plans I made at the last minute because of the burning and pain in my legs or arms and shoulders. The pain can be so intense that I cannot put my clothes on and I am left in my tears as I miss out on yet another activity I used to love and once participated in with enthusiasm. Do I experience mood swings? If I am hurting I may be angry, sad, depressed, or any of the hundred moods in the world. I’ll never know what mood I will wake up with? I may treat you cruelly and say horrible things to you; I may ignore you completely, or cry on your shoulder unstopping when I’m in Fibro Flare. You may wonder what you said or did that made me this way. Well you did nothing it’s the Fibromyalgia and all its underlining factors causing this.
While the most predominant symptoms of fibromyalgia include widespread pain and persistent fatigue, the resulting cognitive impairment of this condition may be its most maddening. Commonly referred to as fibro fog, this symptom is a conglomeration of cognitive challenges. Fibro fog is understood to be a physical symptom of fibromyalgia, not a psychological one. Just as no two individuals experience fibromyalgia in the same way, fibro fog also has a varying range of indications, including: Mental confusion, Fuzzy thinking, Short-term memory loss, Inability to concentrate or pay attention, and Language lapses.
This is why I feel like a child at times. Just the other day I put the eggs I bought at the store in the pantry, on the shelf, instead of in the refrigerator. When I talk to people, many times I lose my train of thought in mid sentence or forget the simplest word needed to explain or describe something. Please try to understand how it feels to have another go behind me in my home to make sure the stove is off after I cook an occasional meal. Please try to understand how it feels to “lose” the keys, only to find them in the freezer. As I try to maintain my dignity the demon assaults me at every turn. I have a physical illness and it isn’t my fault and I didn’t ask for it I don’t want it and I don’t deserve it.
Occuring at the deepest level of the sleep cycle, individuals with fibromyalgia typically lack sufficient restorative sleep. We know that at the deeper levels of sleep, called delta wave sleep, a person’s mind conducts internal housekeeping. During delta wave sleep, newly acquired information is assimilated and integrated into the brain. The inability to get sufficient delta wave sleep impairs the ability to recall information and operate at a normal level of mental efficiency.
Sleep, when it happens or restless and unrestorative
Sleep, when I do get some, it is restless and I wake often because of the pain the sheets have on my legs or because I twitch uncontrollably. I walk through many of my days in a daze with the Fibro-fog laughing at me as I stumble and grasp for clarity.
Just because I can do a thing one day, that doesn’t mean I will be able to do the same thing the next day or next week. I may be able to take that walk after dinner on a warm July evening; the next day or even the in the next hour I may not be able to walk to the fridge to get a cold drink because my muscles have begun to cramp and lock up or spasm uncontrollably. There are those who say “but you did that yesterday!” “What is your problem today?” The hurt I experience at those words scars me so deeply that I have let my family and friends down again; and still they don’t understand.
On a brighter side I want you to know that I still have my sense of humour. If you take the time to spend with me you will see that. I love to tell that joke to make another’s face light up and smile at my wit. I am fun to be with if you will spend the time with me on my own playing field; is this too much to ask? I want nothing more than to be a part of your life. I have found that I can be a strong friend in many ways. I am your friend, your supporter and many times I will be the one to do the research for your latest project; many times I will be your biggest fan and the world will know how proud I am at your accomplishments and how honored I am to have you in my life.
All I ask is that you become educated about Fibromyalgia. I am someone in your life that suffers from Fibromyalgia. You may think you know everything there is to know about it, but there is more information out there than you think. It is more complicated then you think, and it is more life changing then you think.
Lend a helping hand. If you want to be helpful to someone with Fibromyalgia, just ask what you can do. Be flexible with invitations and plans that you have made. Understand that sometimes the pain of Fibromyalgia is overwhelming. Be active. Accompany them to a doctor’s appointment and take an active interest in their treatment. You can take notes at the doctor’s office and then review your notes together at home. Don’t take things personally. Some people with Fibromyalgia suffer from sudden mood changes. Try not to take these mood swings personally as they are part of the syndrome.
So you see, you and I are not that much different. I too have hopes, dreams, goals and this demon. Do you have an unseen demon that assaults you and no one else can see? Have you had to fight a fight that crushes you and brings you to your knees? I will be by your side, win or lose, I promise you that; I will be there in ways that I can. I will give all I can as I can, I promise you that. But I have to do this thing my way. Please understand that I am in such a fight myself and I know that I have little hope of a cure or effective treatments, at least right now.
Thank you for spending your time with me today. I hope we can work through this thing, you and me. Please understand that I am just like you.
Wearing a Belt. I’m 7 notches shorter on my belt, not even a 3x belt, but a 2x belt that has notches all the way around. & I can wear my smaller belts again!
Fit Old Smaller Clothes. I’m talking fittung into clothing from high school. I pulled out some of my old clothes I had from my marksman competition days when I shot on the Junior Regional & provincial teams in 1999-91. I was stunned to find they actually fit! And one item was too big!!
Moving Like A Normal Person.. It surprising how many things plus people do differently than how ‘normal’ sized people do. For example, I don’t have to tie my shoe from the side cuz the fat is in the way and I can do more yoga poses properly cuz the roll on my tummy stopped me from folding.
Shrinking Fingers. I’ve had to replace rings in a size 6, or wear rings I had in highschool.. Anyone interested in size 7 or 8 rings? Stirling silver or costume..
Increased Flexibility. My body moves differently, better.. I can stretch further than I used to. Maybe one day I will be able to do the splits. Lol.
Decreased Appetite.. It’s not always to the same amount. I used to be able to eat a medium 8 skice pizza plus wings & Cheesey bread but now I’m only interested in 2-3 pieces.. But the other night I could only eat half a small potato & half of a small steak. But also, the other day, I bought a 12″ sub & ate the whole thing plus cookies, but it took a while. Instead of 15 minutes, I took 2 hours to enjoy my dinner. So, yes, there are variations, but generally, I have about 1/3rd of the appetite I used to have.
Can’t Grab My Tummy Roll. Growing up, pants & jeans were made in more of a low-rise style, so I always have worn my clothes just able my hips, so that is where my belt sits. Sinching in my waist repeatedly over the years has resulting into 2 rolls in my stomach, one above my waist, one below. I can’t quite grab my lower tummy roll much & what I can grab is almost entirely loose skin. Not Fat.
I Can See My Scar! 20 I had a laparotomy in my incision went from hip to hip I’m up towards my belly button. While I can still see the scar from the vertical incision, I haven’t been able to see the horizontal incision for over a decade. This is because I was unable to move the roll of fat far enough to be able to see around it to see the scar. I was drying off the other day and noticed cuz of the lax I was able to move the roll much more easily. I took a peek to see if I could see & I can.. & that scar has faded nicely.
I can do more. I’ve noticed that I am physically able to do more.. Yes I have fibro & that limits stuff, but I’m able to do things I couldn’t before. Like make my bed. It’s in a corner to difficult to access the far side to make the bed, but I’m having not problems getting those sheets on anymore.
For those on your own weight-loss journey, what Non-Scale Victories have you had?
Fibromyalgia 
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