Posts Tagged ‘Friendships’

Fibro Friends, IRL

November 2, 2021

It’s interesting to note exactly how many friends I have, real, in-person, face-to-face local friends that I have with Fibromyalgia.

When I first started having symptoms in the mid-90s, I’d not heard of Fibromyalgia let alone know someone with this condition.

I only found out about fibromyalgia through, unfortunately, Dr Google. Few doctors had even heard of it then. Many did not believe it existed. Few had any idea how to treat it..

Jump ahead a few years..

  1. First person who was a friend of mine is Billy Jo. Her and I met in a mental health workshop in my local hospital. We met because of mental health & connected over of common physical health. We have been friend for.. 8-9 years now…
  2. My BFF was also diagnosed with fibro about 7 years ago. Due to an abusive relationship I was estranged from her while she went through her diagnosis. However, because she knew of my struggles and issues I’ve had getting diagnosed & treated, she had a good idea of what the process was & how to get it sped up.. my diagnosis took 13 years.. Hers only took 3-4 years.
  3. I had left the aforementioned relationship approximately 5½ years ago. This was just in time for my high school reunion.. One of the people I reconnected with another girl named Jo.. While we were not friends in high school we did know each other and we have to come friends in the here and now. I think part of the reason why we connected so well was because I understood and she did not have many other friends let alone ones who got & understood the issues with Fibromyalgia.
  4. Shortly after that reunion I connected with a lady in Newcastle who is my twin. No, we look nothing alike however there are so many other similarities. We were born within two weeks of each other, we both went to the same high school, we have almost the exact same list of medical conditions including Fibro, we react well to the same medications as well as an overlap in personal interests beyond our health. So we met about 2 years ago, shortly before covid and we’ve connected over these similarities, but also over our differences.
  5. Growing up, the neighborhood kids down at the end of the street were friends.. The oldest had a big gap between herself and her younger siblings so she hung out more with my older brother, his friends and some of my friends as she was a few years older than me but many years older than her siblings. After I moved back to Oshawa we eventually started connecting again a few years back. She also has Fibromyalgia.

Its interesting how many people have fibro that you may not even know about..

Socializing While In Pain

September 3, 2021

Do I socialize when I’m in pain?

Yup, I socialize, otherwise I’d be a hermit!

Yup! Otherwise I’d be a hermit. Plus, very few friends can identify how much I’m in pain. My bff & my sister can tell by looking at me.. I have other friends & family who have learned the signs.

Mom can tell usually just by looking at me.. not always, but usually.. My sister is pretty good.. Her kids & hubby not so much – ironically I think the kid of hers that would recognize the best is her youngest, because he has seen me the most over the last few years.

My guy friend T has, over the last 3½ years learned quite a bit about how to read the non-verbal clues.

My BFF also has fibro & is sometimes a little too focused on her own fibro to catch my issues. Only reason I can gauge her easily is that she has an emotional response to her issues that I don’t even think she’s aware of.

My second BFF also has his own issues, and usually only sees me on better days.. I don’t think he’s even seen me at mediocre or worse in a long time..

Them there’s some of the Scouters I work with.. Raksha 13th & I have become good friends through Scouting & Rainbow I’ve known since grade 8 or 9, but through guiding & scouting as well. They are pretty good a picking things up.

There are other friends who are less prevalent in my life but even they can recognize some signs if I’m having issues

What I Can Do.

So, there is the basics of who I tend to see most, then the next thing is *what I can do*. Mind you the days when I’m seriously f****d up due to symptoms, I don’t talk to anyone unless I haveta Haveta HAVETA.

Now pain & other symptoms varyy from week to week, day to day, even hour to hour.. Fortunately in the last few years the hour to hour option seems to happen less and less frequently, but for a long time that is how I had to play it.

When my pain levels are super high, any communication is digital.. To everyone. If you’re lucky..

Digital Communication Only on my Worst Days, At Best

Next level down:

  • Mild exercise like walking my dog around the court
  • Have company over for low maintenance visits
  • Socialize for dinner with Mom & Dad
Exercise by walking the Dog Around the Court Is All I Can Handle Some Days.

As my pain levels drop, I can be more sociable in activities that require less interaction such as:

  • Hanging out with selects friends in a quiet environment, such as a campfire, living room, patio, poolside, dock.. This would be BFF’s, & T, for the most part
  • Walking around the neighbourhood
  • Watching the kids’ soccer games
  • Visiting the family cottage for a few days
  • Visiting the gym for a hot tub!
Hanging out with Friends, in Front of the Campfire, or Otherwise, Though we use Chairs – LOL

As the pain levels drop a moderate to low level I can usually do the following:

  • Karaoke
  • General.Cub Scout Activities
  • Marksmanship
  • Hangout with friends in a noisier, bigger, busier location like a restaurant or bar
  • Moderate exercise like the walks with my sister & the pups
  • cub Scout meetings!
  • Glamping at my BFF’s cottage
  • Concerts (depending on who, I may go on a worse day & accept the consequences)
  • Professional sporting events like the Leafs, TFC or The Rock.. & to a lesser extent, Argos, Jays or Raptors..
Concerts with Friends Are Always Fun!!

So assuming my pain level is low, there is a lot I can do. I can:

  • More strenuous exercise such as cycling
  • Visit the gym for Aquafit, yoga, weights, or the track. I had gotten in a few slow Zumba classes in before COVID..
  • I can Camp – not the glamping like at the cottage, but camping with friends, and even my Cub Scouts . In fact we were going to Camp Impressa for a year end camp earlier this month with my senior Cubs & the Scouts (See more in this post).. & I just went camping 2 weekends ago with T
  • Sporting activities like soccer with the girls or golfing with T
  • Some of the more physical activities in Cub Scouts.. Such as teaching how to put up tents, waterproofing the bedroll, setting up grey water, basic orienteering, limited kayaking/canoeing, etc..
  • The Pheonix. – Dancing at the club!
  • Hiking (like fairly flat, fairly short, nothing overnight – Second Marsh near me is a good example)
  • Roadtrip!
Easy Hiking with Friends

What I can not do.

There are so many things now that I would like to do that I just not in the cards. These are activities the I’ve either done or were at one point on the bucket list. This includes activities such as:

  • White water rafting. T wants to go – I can do the camping part, but not the rafting part
  • Backpacking/ Hiking. This includes longer hikes, more challenging hikes, or overnight hikes. I can not lug an air mattress through the wilderness 😄
  • Winter outdoor camping
  • Amusements parks – can’t do most of the rides, and way too much walking.
  • Skiing
  • Horseback Riding
  • Zip-lining (not sure I’d do that anyways)
Canada’s Wonderland, the Prominent Amusement Park in the Toronto Ontario Area.

What would you like to do that you know you will never do again?

24 Ways to Ease Up

June 11, 2021

With apologies to Paul Simon, there must be… 24 ways to ease your living.

Why 24? Why not? It’s a start! That people have to go online and type the words “How to relax” into a search engine should be indication enough that modern life may be getting too stressful. Why, with all the innovations and timesavers, do we feel more and more rushed?

Time is a constant – it always remains the same. What changes are our expectations of how much we can accomplish in that same old time. It’s scientifically proven that stress can lead to sickness and that relaxation is one of the things that can soothe the savage beast.

Hopefully everyone has at least one favourite way to wind down, because not every stress soother will suit every single person. Next time you feel tense and uptight, try out one of these ways to relax. Perhaps some will work for you, while others might inspire you to write your own list of ease-up ideas.

  1. Dance.
  2. Mono-task, as opposed to multitasking.
  3. Progressively tense each muscle, holding each for 5 seconds then releasing.
  4. Stretch.
  5. Go for a walk.
  6. Play a game. Sudoku, crosswords, hopscotch, whatever.
  7. Soak in a bath.
  8. Laugh.
  9. Turn off your electronics. Enjoy the quiet.
  10. Read.
  11. Take a 5-minute break to clear your mind and breathe.
  12. Cover your eyes with an eye pillow. Allow your anxious eyeballs to feel like they’re floating rather than gripping.
  13. Play with your pet.
  14. Drink a cup of hot tea. Or iced if that makes you feel better!
  15. Take a whiff of a favourite soothing scent, maybe citrus or lavender.
  16. Clean out the drawers of your dresser. De-cluttered can equal destressed.
  17. Soak your feet in Epsom salts.
  18. Listen to your favourite music.
  19. Light a candle and watch the flame flicker.
  20. Write in a diary.
  21. Talk to a friend.
  22. Make everyday activities more meditative. Like walking, for instance. Rather than rush down the hallway, place one foot in front of the other and really feel your feet ground into the earth with each step.
  23. Unplug (or turn off) your phone.
  24. Strive to take deep breaths to reach the tight spaces of your body – try to feel your breathing in your lower back and your shoulders

Source: PC Health by Shoppers Drug Mart

Fibro Sucks! But My Friends Don’t!

May 31, 2021

so we have finally reached the 31st of May, the final day of fibromyalgia Awareness Month. I know I’ve been posting a little extra and almost exclusively about fibromyalgia this month but but else would I do? LOL

what I would like to thank all the people in my life who support me. I made masks for those closest to me as well as myself. I would like to thank each and every one who wore these masks & I hope will continue to wear them until we no longer need them.

This lad is on of my guy friends whom I am fairly close to, but I was surprised when he said he wanted a mask. Apparently he knows others (including 2 mutual friends) with Fibromyalgia.

Tony.

The only one I made a mask for who I do behave an image of is my nephew cuz he couldn’t find his (not surprising, cuz his mom’s wearing it!) But my sister, her 2 daughters, and my Mom & Dad. I thank my family for their support

Cassie & Kyah, Wendy, Dad and Mom

My best friends and their partners.. I’ve known both Catherine & Gerry since high school. I’m lucky to have maintained their friendships after 30 years. I thank them & their partners. Cath’s masks read “I wear purple for my BFF” & “I wear purple for ME”.

Catherine & Brett and Sara & Gerry

As many of you know, I’m involved in Scouting & I had some of my fellows outer request masks as they know how much it impacts my daily life.. I worked with Rainbow 13th directly for 2 years in Beavers & she is our outgoing group chair for one group. Raksha 13th has worked with me at Cub level for 3 years now& is out incoming Ng chair. She has seen how it impacts me and the improvements I have made over the last few years. Rainbow 1sy, well.. I’ve only been working in tandem with her since Covid hit & we initially amalgamated the groups, but like the bffs, I’ve known her since highschool and we did Venture Scouts together as youth.

Rainbow 13th (Charlene), Raksha 13th (Jen) & Rainbow 1st.(Jenn)

& I support me. Some days I have to remember that.

i have 4 masks.. 2 that say Fibromyalgia Awareness, but different patterns.. one that states “I wear purple for my BFF” (cuz my bff has fibro too) & “I wear purple for ME”. Mine, I will have in regular rotation – good thing purple is my favourite colour..

4 different days 4different masks.. & Yes, each has been worn several times over the last few weeks. Very rarely was I not in a fibro mask. & If not, I had purple butterflies!

So everyone who supports someone with Fibromyalgia, on their behalf, I thank you. Whether it’s doing our groceries wearing a mask for Fibromyalgia Awareness or just checking in to make sure we’re ok,, we do appreciate you & your support.

Thank You!!

Moving Day

November 30, 2020

Last Saturday was moving day. No, not me. I’m staying put. My best friend, however, has to relocate into the city for her new job.

For the last 3 weeks I have been going over to her place every other day to help her pack. The woman has *way* too much stuff, IMO. Since I’ve helped her move her household countless times over the 30+ years we’ve been friends, I would know.

Boxes,and boxes, and boxes, Oh My!

Why every other day? I am not taking the risk of going into a flare & not being able to help at all. Am I packing heavy stuff? You betcha! Am I moving it? Only when necessary & if it is light enough that I can safely lift. But some things, no way. Vinyl? No way! CDs? Nuh-uh! Paperbacks? Yes, cuz they’re in small liquor boxes. Hard covers? Not a chance. Collectables? With my flakey shoulder, I’m not taking the risk of dropping anything, so unless it not heavy & not far then sure, but otherwise, not happening. Movies? Nope cuz they are packed in a fairly big box. Linens? Depends on if it’s the big box or the small ones! Kitchen stuffs? Again depends on the weight. Decor? Nothing big, nothing heavy.. Furniture? Not in this lifetime, unless it’s like a TV tray or something equally light in weight.

Physically making the boxes, filling them,then sealing them up & moving them to start the next box, even if it’s super light, is quite the challenge. It helps that her & I do it together. She grabs the item off the shelf or out of the drawer & hands it to me, and I pack it to the box. So neither of us is doing all the actiins. Then we switch. It makes for fast work, while not completely stressing out our bodies. (BFF also has fibro). And that has been working awesomely!

Pain still happens though.
Thankfully a bad day, not a flare.

Sunday & Monday were a small crash, but may or may not have to do with packing cuz I was also exercising on Friday & Saturday.. this is the first & only time I’ve skipped helping due to pain. Given that I’d been helping pack now for 2 weeks, every other day, I think I was doing really well. But it’s not a flare, thank God, just a bad two days..

Did I unpacking anything? Only immediate necessities on Saturday. I usually start with the bed. Get that set up & made, so they have somewhere to sleep on Saturday night instead of under a pile or boxes. I rarely get past that point. But I know it’s greatly appreciated. This time because her daughter’s could not help due to covid, I started on her kitchen… Actually got most of her dishes, dish ware, glasses, cutlery & utensil unpacked.. So her kitchen, minus her food was pretty much unpacked by the time we stopped.

Let’s avoid crashing under a pile of boxes.
So, afterwards, I was home most of Sunday recuperating.. Went out for dinner with another friend that night, as we were going back into lockdown the next day. Monday & Tuesday were additional days of rest. & I was grateful that my cub meetings, despite me leading the main activity, were virtual – made bird houses! But by Wednesday I was feeling like my normal self.. Yay!!



Anyone concerned about my risk of exposure to COVID, please read my previous post “Upcoming Move – Keeping Safe”

I Am Grateful

August 25, 2020

I know my last post was not a hugely positive one. Unfortunately I just needed to vent about what I was seeing around me. But there are many many good things that I am grateful for and they are bigger and generally more important than the issues I discussed previously. . So today I want to tell you the things I am grateful for.

Family: After several years bouncing in and out of a toxic rekationship that estranged me from everyone, I left permanently after he was finally charged. Despite great trepidation and concersn from my family, they agreed to let me stay temporarily, expecting me to go back yet again. But with their support & others listed me below, I realized that I was hurting myself & them with my behaviour. I have since rebuilt my relationship with my parents, my sister & her family. I even have some semblance of a relationship with my brother.

Geeze.. I’ve only written one & I’m already in tears as I write this!

My Best Friend: I was absolutely horrible to this woman whom I have been friends with since high school . Because of the control my ex had over me, I was a complete and total bitch to her. My ex even contributed, I found out later, to the failure of her lucrative homer business. After she had a significant health scare, I was *allowed* to visit her. We slowly started to rebuild a relationship.. I even crashed on her couch for a few month during one of the times I left him. She was, I don’t think she realizes, had a significant impact on getting my head set forward. If this has not been re-established, I may not have let the police in or let the charges be filed. She was there for me when I needed her. It took about 4 years since we reconnected for her to again call me her best friend. She never realized how important that was for me to hear her say that. I am not sure she even knows now.

Man.. another doozy.. I’m sure that there’s gonna be edits cuz I can’t see through the tears. (& more years in the edit.)

Those who know us will get it.

Durham Family Services: Because of my income level, I was eligible to access the counseling services through the region (kinda like a county in the US) The woman I met, Fran, helped me through alot that first year I was back. I worked on my self esteem, learned some new coping skills and started to love myself again.

YMCA of GTA: This is actually my gym. I am grateful for my gym because I was able to get healthier and loose weight. I also has alot of social interaction there with people & started making friends

My Lilly: Yes, I did do a blog post about how she’s helped me, but I am still forever grateful for her. Whether she knows it or not.

Friends: Old and new. I’ve reconnected with alot of people in my past like in the post about three’s, but others as well.. Add in the new friends I’ve made since I’ve been back, plus the few I managed to keep from during my estrangement. While I may or may not maintain these friendships, or I could get something new from them remains to be seen, but just having a larger social circle is helping me. Which brings me to..

Scouting: I know most people wouldn’t get this, but before my relationship, I was an active Scouter. Now I was dwindling down on what I could do, but I did enjoy it. Flash 8-10 years later.. I’m back. And my eldest nephew wants to become a Junior leader)SIT with the Beavers. We (my sister & I) thought this would be a great way for me to reconnect with people & to build something with my nephew. . So I started as a “One hour a week” Scouter. Bringing my nephew every week… Now, with an awesome team of Scouters & friend (again, both old and new) I’m a major role in the Cub section (age 8-10).. I’m able to work with the youth, yet still be able to pace myself & no over do it.. much.. Unfortunately, I won’t be able to return to troop level and do that. Fortunately, I’m actually enjoying working with this age group.

International Symbol of Scouting.

My Medical Team: To the non-judgemental support from my current medical team, I am grateful. I am now on a positive Health Care Journey. With their help, I’ve managed to improve my health . I’ve lost weight, I’ve become more fit. I’ve come off alot of medications I really did not need, and supported me through addiction, tho no one knew at the time. I know I will never be healthy enough to return to work on much more than a casual part-time basis, but I am able to live a decent life despite fibromyalgia & my 6-bilkion other health issues.

This isn’t even going through the little things I’m grateful for.. The sun on my face, The lake at the cottage. Having a car to drive.. To have a regular income. To smell the flowers.. For being able to hug people (yes, only a special few right now). For privacy. For Fun. For freedom. For Love. For painting rocks. For exercise. For healthy outdoor spaces.. & you, still reading my post!!

I’m grateful for itvall.. & to those I can thank, I thank you from the bottom of my heart!

It Always Comes In Three’s

August 10, 2020

As we know, stuff always happens in Three’s. Commonly it’s nothing good like three deaths, three breakups, etc.. But they don’t always have to be bad.. So, these three are good events.. Connecting with people from my past.

The first is Billy.. Billy is a former boyfriend of mine from back in the late 90’s. He was initially from Scotland & moved to Canada with his family at age 6. After we broke up & some other events happened in his life, he decided to return to Scotland with his Mother & sister’s. Fast forward 20 years.. His Dad is very sick and he has connected with his highschool sweetheart & planned to move back. So contacted me last year letting me know he was planning on moving back.. So, we rekindled a friendship, but nothing more. He finally gets back here & doesn’t tell me he’s back in Canada, the brat, until he’d been here over a month.. and then COVID hit. Which is why I haven’t seen him at all..So, as a friend & friend only, he is now back in my life..

The second was David. I’ve know him since grade 9 and we were close friends for a long time. Then conflict arose, some my fault, some his. & We haven’t talked since. A few months back a friend of mine shared a DM/Star Wars video.. It was funny. So, I suggested to this mutual friend that he might appreciate the video. He was on my mind for a while after that & I choose to unblock him. Fast forward to the summer. I’m working with another Cub Scout group with a summer virtual program. One of the Scouters recently had emergency surgery, so I left her 2 inspiration Rocks to helpr hfeel better – one saying Be Safe & the other Be Well. She posted them on Facebook, saying she got them from Scouter Koolaid (that’s me).. He picked up on that comment & said “there’s only one person I know of with that name.” & They started talking how it was too bad that we had severed our friendship saying he was hoping to connect again with me some time. At this point he did not know I had unblocked him ,& could see his comments. I actually missed the first few comments initially, cuz I don’t check my Facebook enough for the number of notifications I get. He said to the other Cub Scouter that he wished he could extend an olive branch, which is where I finally saw the post & shocked the shit out of him by tagging him & saying “I actually unblocked you some time ago.” Shortly after he sent me s Facebook message ,& we’ve been talking. While I know our friendship will never be the same he’s come back into my life. This is a good thing.

This third on surprised me. My highschool sweetheart, Gord, had blocked me cuz his baby mama & then his wife didn’t like him connecting with other women.. We had started dating almost exactly 30 years ago (30 years & a week) for close to 2½ years but have not spoken to him in almost 20 years. So you can understand my surprise when I saw his Facebook message. There had been some animosity when we last spoke both my fault & his… I manned up & apologized for cheating on him then lying about it for years. That surprised him. As a result, we have been talking a bunch over the last a few days and we just might be able to maintain a friendship. We will see..

So, Yes things come in Three’s, but they don’t always have to be bad.

She Saved Me!

July 17, 2020

In November of 2011, a little puppy was born. In February of 2012, she became mine.

Prior to us getting her, I’d had alot of issues. My relationship was severely toxic & abusive. I was no longer was in contact with close friends & family. My health was rapidly deteriorating & my disability made me almost house bound. My depression started going into overdrive & I did not deal well.

As a result, I have lost track of the number of suicide attempts I had over the first 5-6 years of our relationship. It was so bad that I wrote on my meds list “In the event of a Suicide Attempt Do NOT Let me go home”. I was on 5 different antidepressants & they were not mixing well either.

But my life Changed when in February 2012 when I was given a life to take care of. Lilly.

I now had a “reason to live.”

She became my world. She was 100% mine. My partner did close to nothing with her on his own. He didn’t feed her, groomer her, take her out. He did occasionally play with her, but I don’t think he ever loved her. But I did.

So despite the increasing toxicity, I was able to survive because I had her. I had to be around to take care of her. I honestly believe, she would have suffered if I was gone & left with him.

She was my world. She was the reason I got up in the morning – literally. I had to take her out for a walk in the morning to do her business.

My relationship came to a sudden end when his son overheard his Dad threatening Lilly’s life. Now I don’t know if the boy knew his Dad was talking about Lil, or if he thought the treat was towards me. Either way he called 911. My ex was arrested and charged with Uttering Death Threats I believe the charge was.

I took Lilly & moved back home to my parents despite their misgivings. I got counselling, months and months of counselling. I was able to focus on my health. I reconnected with old friends and made new ones. I managed to maintain friendships from the time I was with him despite him. I am so lucky to have both of my best friend’s back as two of the closest people to me. I’ve rebuilt my relationships with family, my parents, my sister & her family, my brother & his family.

I am happy, reasonably healthy, and alive. Thanks to her.

What do I do?

May 30, 2009

For my fibromyalgia, I currently take the following Medications/supplements

  • Multi-vitamin – Naturapathy Dr does not recommend Centrum or most pharmacy brand multi’s
  • Calcium & Magnesium with vitamin D – Calcium cuz Women with Endo are more susceptible to Osteoporosis. Mg & D to help absorb the Calcium. The Magnesium also to help with muscle spasms & charlie horses. I have found that it has helped.
  • Fish oils – Generic fish oils, minimum 1000mg a day .. Well, I try to. Naturapathy Dr recommended 1000mg-3000mg daily of the EPA+DHA to help with mental acuity. I’m still waiting for the fog to lift, but I’m not usually getting enough to impact because I fog up & forget.. Lovely catch 22 there.
  • B complex to help with stress and ensure that I get enough B’s. No, I don’t take a stress formula. Just a normal B complex.. either 50mg or 100mg
  • Codeine Contin for maintenance pain.
  • Tylenol #3 for breakthrough pain
  • Oxycodone for severe breakthrough pain
  • Flexeril (Cyclobenzaprine) as a muscle relaxer. I find it better than anything OTC..
  • Probiotics to help regulate my digestive track – it works, ‘cept when I have an IBS flare or food sensitivity
  • NSAID, but it’s for my Endometriosis, so I don’t really know if it does impact my FMS or not.

For my fibromyalgia, I currently participate in the following exercise:

  • Aqua-fit, really carefully – I’m just getting back into exercise, so I am trying to get to the gentle classes. My local YMCA gym has a class or arthritics and for osteoporosis. Aqua-fit is a good choice because of the buoyancy of the water, it doesn’t impact my knees, and it’s a gentle cardio
  • Seriously, right now that’s it. I need access to a hot tub to do further exercise to keep my body warm.

For my fibromyalgia, I intend to return to the following exercises:

  • Yoga with the hot tub – Yoga provides gentle stretching while working on core strength and balance. The hot tub helps to keep muscles relaxed afterward.
  • Keeping up with Aqua-fit – see above 🙂
  • Walking the track to music with the hot tub – I got into walking when my nieces were born, walking with my sister. After I joined the Y and my nephew was born, I would take him in his stroller to walk him around the track. He’s too old now, but I have found it enjoyable with my MP3 player (or CD player back then). I sometimes dance a little bit and my pace changes with the music I’m listening to. It’s hard to overexert myself. 🙂 The hot tub helps to keep muscles relaxed afterward.

A benefit from the exercise is that I tend to be tired out afterward and relaxed. This makes evening workouts ideal in that I go home, go straight to bed and will sleep well, with a decent amount of healing rest. This improves me, physically, emotionally and mentally for the next day.

For my fibromyalgia. my spiritual side is limited. I don’t go to church often, however I do find solace in my home church’s sanctuary. I’ve moved away from my home church and have yet to try out the sanctuary here. I also find the same ‘state of grace’ from music, especially my churchy music 🙂

For my fibromyalgia, because of my physical limitation, I am limited socially. Most of my social interaction is via the internet on Twitter, Facebook, Email, etc.. The alternative to that in real life is with my SO and his friends. Most of my friends no longer talk to me, or are too far away for more than email. The classes as the Y present a new socialization source, which I hope to be helpful. With the improvement of my health I would like to return to scouting in some sort of part-time or limited capacity.

For my fibromyalgia and my cognitive abilities, I am starting this blog. It will help keep me thinking and requires research. It also provides a creative outlet. I also enjoy doing word searches and have, on recommendation on my therapist, started to colour and have other crafts options available to me.

For my fibromyalgia and an emotional aspect, I have a councilor and have been placed on anti-depressants. While my time with her is limited I do find that I feel better after I speak with her. Additionally I have the support with my SO. While sometimes he can not understand and becomes frustrated, I know he only has best intentions where I am concerned.

How do I cope? Not well. Other than the limited exercise mentioned above, the odd screaming match and the rarer still church visit, I have no real outlets.. Which sucks. Before I got sick, my outlets for frustration and anger and stress were physical. With the fibro, I have lost that. Any suggestions are welcome 🙂