Posts Tagged ‘Koolaid’

Tattoos with Fibro

July 5, 2022

I’ve not had any tattoos prior to this year, so I don’t know what it’s like to have any ink done with a body that does not have pain. Honestly because I’ve been dealing with chronic pain issues since adolescent, I don’t think I could have even had the opportunity to do so.

I have 2 pieces done thus far. They are both rewards for my weight loss.

On my upper left arm, a little bigger than I was expecting, is my Scouter Koolaid tattoo I was given the name Koolaid by a patrol of scouts in my early 20s. So, basically is the scouting fleur-de-lis with the Koolaid guy super imposed on top. With the cub sign shown in his right hand.

This tattoo was actually quite painful. I had a hard time tolerating the pain. I was gritting my teeth the entire time but I persisted because I knew it was temporary pain and would eventually stop

On the top of the backside of my right shoulder, I have a butterfly. This butterfly is similar in style to a monarch butterfly but instead of the orange, black and white, mine is coloured inshades of purple and white. It is unique & really cool in that it is almost 3D in nature and you can see the shadow of it behind the butterfly. The text surrounding the butterfly reads “Fibromyalgia Awareness”.

This tattoo was significantly easier despite having more chronic pain issues in the area. For the majority of the work I was able to just sit and relax as he drew on the back of my shoulder. In fact, the upper lettering where I says “Fibromyalgia”, that actually tickled. Go figure There was one spot however that was a problem. Near the end of the work, the artist was adding white for highlights, he hit a flat mole on my back That sent a single big sharp jolt of pain through me. But that was the only pain I had from that one.

The artist, given that these two were my very first two and done right one after the other, he was not only surprised but suitably impressed that I only jumped that one single time. Apparently that is not the norm.

I do have one final one planned as my final reward for reaching & maintaining my goal weight. That one is going to be a collection of roses on my bum/ hip/ lower back in shades of bright pink & purple, maybe blue. The text to accompany that tat is “Neon Rose”, the online alias I have used since I was 16, so long long time ago.

When Lilly passes, I will be getting her paw print on me aswell in commemoration.

My Scouting

October 15, 2021

The Who When Where Why & How I Do Cub Scouts

At age 5 my Mom enrolled me in Brownies, then I went up to Guides. I did one year of Guides then quit cuz I didn’t like the program, wasn’t having fun & it conflicted with my dance class. 4 months later Mom puts me in another Company where I did enjoy the program.

But, during this time, my older brother went through the Boy Scout program. For meeting nights when Mom was working & I was not old enough to be left on my own, I got to be present at Cub & Scout meetings. . I remember the real wolf head that they had for the cub totem. I remember playing Barbie’s in the gym change room while Cub or Scout meetings were going on. Being a girl I wasn’t allowed to participate, but I do remember sitting &: watching different parts of the meetings. I remember tagging along to the rifle range (again not allowed to be alone at home), but I was not allowed to shoot because of my age, but probably my gender too cuz it was still “Boy Scouts”.

So I kept on in Girl Guides, earning my All-Around Cord. Up to Pathfinders I went. I was on track, or even ahead of schedule to earning my Canada Cord until my leader refused to accept the paperwork, from another Guider, confirm that I had organized & implemented by own full weekend camp. So I quit & went to the Guide shop and bought it for myself. My next year, I was a Junior Leader for the Brownie pack I grew up on.

The next year, I was hedging about what to do.. & was chatting with my friends Chris & Joann. I asked what they were up to that night. Jo said homework, but Chris said he had a Venturer meeting at Samac, shooting rifles. First words out of my mouth “Can I come?” Followed by “How much is registration?” I haven’t looked back.

I continued in Scouting as a youth to age 26. I started leadership at age 18 the took a break for post-secondary, returning back to the organization to my original group. I it was my Troop scouts who gave me the name Koolaid.. & that is a story in its own..

Over the years, I’ve worked with 2 colonies, 3 packs, 4 troops, 1 company & in a Service Scouter role.

In my younger days, I preferred, as you can tell, working at troop level.. Unfortunately, due to health I I ended up completely withdrawing from Scouting for a number of years as I worked through my health & my relationship. After 10 years, I left that relationship which helped my health. I wanted to return to scouting, but I knew I could not physically function at the level needed for Scouts. My nephew, a scout, wanted to be an SiT (Kim/Keeo) so he & I joined the colony.. 2 years later he wanted to go up to cubs, and I went with him. After 2 more years, he chose to continue his SiT at the troop level.. I stayed in Cubs for 2 reasons, he was old enough now that I didn’t need to be with him. And 2, I had found my niche

So, what do I get out of it? Besides free range time with the troop? Hehe.. Ok – Serious now. I like knowing I’m helping teach the new generation. I like working with this level – they don’t have that pre-teen attitude that fully blooms at 12-14.. I like being looked up to, knowing I mentoring some be in some small way. I like that I can walk through the mall & hear a voice say “Hey! Koolaid!” Knowing that he (or she) remembers me , shows I *am* having an impact on these kids.. I like the activities we do. Many are the same as scouts, just not as advanced. I like having something consistent in my schedule. I know I always have something scheduled on Tuesdays & Wednesdays from 6:45-8 .. I like hearing the kids laughing, getting along, learning together, competing against each other and just having fun! I like how it makes me feel as a person – this is the shallow one.

My years in Guiding topped out at 9 years, but that does not include the years I helped at guide & brownie camps for my Goddaughters. I was not officially registered for theses events.

My youth Scouting years topped out at 10 years. My leadership years are a little more clouded.. Scouts Canada’s records say I’m on year 20 & with my Rover years, that seems about right..

There are overlapping years of youth & leadership years which is why the number doesn’t seem to match up. So, all told I have 32 years (including this one) within these two organizations.. With many more to come!!


Yes, I realize I missed the how.. How can I do this stuff with Fibro.. *that* is another post.


Edit: Due lack of leadership availability, my Wednesday pack has closed and has merged in with my Tuesday pack.

Koolaid Cold Syrup?

August 10, 2011

I’ve not been doing well this last week.. Been struck down with a nasty summer bug.. My SO, the sweetheart that he is, went to the pharmacy to get me some cold syrup to help me feel better.. He bought the generic store brand, but asked me what flavour. Seeing as they never taste like they should I choose grape, cuz the others I didn’t like and could only be worse..
I was initially pleasantly surprised that it actually had a grape flavour, very similar to the flavour of the Koolaid grape drink..
As I thought about it, I became concerned as this medication can be given to children as young as 6.. At that age they don’t necessarily realize or understand that they can’t drink any more than what mommy or daddy gives them, cuz it tastes good! I mean, who’s ever heard of a medication that tastes good?
If you do buy these yummy cough & cold products, make sure you keep them securely away from children and make it clear, every time they get a dose that even those it tastes good, it is medicine. And that taking too much medicine can make you more sick then without the medicine..

 

Has anyone else encountered these tasty medications? How do you deal with the possibility of your wanting more?

Welcome !

May 29, 2009

Welcome to my Blog!

My name is Kelli.. But I am also known online as Neon Rose and it’s variations (I answer to the name Neon, IRL).. I am also known, in scouting circles as Koolaid – yes, as in the drink (long story, I’ll tell ya some time)

This blog is about my life, my medical issues and any information I can share thereof.. I have been diagnosed with Fibromyalgia, Endometriosis, Allergies, Sensitivities, Asthma, Irritable Bowel Syndrome (IBS), Depression, Chronic Fatigue Syndrome (CFS/ME), Hypo active Thyroid, Restless Legg Syndrome (RLS),  Osteoarthritis (OA) and a host of other issues that are part and partial to go with the above mentioned. The focus here is going to be mainly on Fibromyalgia (hence the title), but will also include fibro-related issues and Endometriosis.

Why, you ask, primarily on Fibromyalgia. Well, cuz Fibro is the most significant issue at the moment.. My endo is under control, as is my asthma, RLS, allergies, etc.. Also, Fibromyalgia is also the least understood, most misdiagnosed and under treated condition that I have. If I can just help one other person, then, I’ll feel awesome cuz I have helped someone. (Why do I suddenly have a girl guide song in my head? *shrug*).

What aspects am I gonna cover? Everything I can. If you look at my categories you will see I plan to cover many areas of traditional and non-traditional medicines including Eastern medical philosophies, faith, as well as non-medical areas of life. I also plan to cover support (financial & emotional) and daily living and coping.

If you have questions, please feel free to ask.I will do my best to answer.

Note that all my content does not necessarily belong to me, however sources are always listed and author if available, if it is not original content. Please see disclaimer post for copyright information.