Severe Myalgic Encephalomyelitis (ME) Day of Understanding and Remembrance

Tomorrow, August 8th, is Sophia Mirza’s birthday.

Sophia Mirza was accused of seeking attention, her family were accused of enabling her, and she was sent to a psychiatric facility where her health declined rapidly. Sophia died of severe ME in 2005 at the age of 32. The coroner’s report showed that Sophia had massive spinal cord inflammation at the time of her death, and that she died as a result of acute renal failure arising from the effects of ME.

Severe Myalgic Encephalomyelitis (ME) Day of Understanding and Remembrance  was started in 2013 as a response to Sophia”s death.

Unfortunately, Sophia’s situation is not unique.

17-year-old Gigi from the UK was hospitalized with severe ME, and threatened with being sectioned  – forced institutionalization – against her will to a psychiatric ward for her inability to eat, speak or walk due to severe ME. Gigi’s family was told to stop “colluding” with their daughter.

24-year old Karina was forcibly removed from her home in Denmark in 2013 because of her myalgic encephalomyelitis (ME) illness for “treatment”. Because her mental and physical health deteriorated so quickly from ME-induced neurological damage, severe over-medication, trauma as a result of her circumstances, or some combination of all three.. she became unable to communicate verbally.. and was limited to s wheelchair because of her “treatment”. These “treatments included cognitive behavioural therapy (CBT), graded exercise therapy (GET), occupational therapy and psychotropic medications, all have been debunked and since considered detrimental by most ME specialists. She was lucky and was released in 2013 under significant international pressure, back home with her parents.

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Myalgic Encephalomyelitis (ME) is a chronic, often severely disabling disease, that affects the autonomic nervous system, immune system, endocrine system, among others. It afflicts over one million people in the United States alone and as many as 17 million worldwide.  ME is a disease that robs individuals of their health, similar to untreated HIV. There are those that refer to ME as non-HIV AIDS – with good cause, as the disease can leave sufferers confined to a bed, with little capacity to fend for themselves.

With severe ME a person’s basic functionality is lost.. What would you do if you last the ability to complete any of the following basic tasks,: brush your hair or teeth, feeding yourself, going to ths bathroom unassisted, cleanliness – being able to bathe one’s self, being able to tolerate light, sound and/or touch, move unassisted in your personal space.

Many people, dare I say most, know someone who has developed ME. They done even know that because ¼ of ME, patients with Severe ME end up disappearing into darkened rooms and rarely seen. 

While I have ME & likely have since high school, my symptoms have always been relatively calm com pared to 25% who have been diagnosed with Severe Myalgic Encephalomyelitis.

August 8th is set aside for these people living their life with the most devastating of this deviating condition. It is these people we acknowledge today & honour their struggles as they live or in some cases exist with this disease. This day also for Awareness of the Severity of ME & the growing need to include the severe patients in current studies. Finally it is to remember those who we have lost both directly & indirectly due to Myalgic Encephalomyelitis.

**For clarification, this condition is also called Chronic Fatigue Syndrome.. it’s is often referred to as either CFS/ME or ME/CFS

Skin Brushing Benefits Those with Chronic Fatigue

Skin Brushing Benefits Those with Chronic Fatigue

(NaturalNews) The skin is the largest organ in the body, and the most powerful route for eliminating toxins. That is why it is essential that people with Chronic fatigue, fibromyalgia, and other diseases associated with toxic overload regularly skin brush. More than 2lbs of waste are eliminated each day. Sunshine and air are also taken in through the skin. In fact, it can be said that our skin actually breathes. Skin Brushing has been shown to help the skin detoxify and renew itself.

Unfortunately, the skin of most people is unable to efficiently detoxify because it is clogged with dead skin cells and waste excreted through sweating that has not been removed. Dry skin brushing is a simple, inexpensive way of removing the waste from the skin and breaking down old toxic deposits. Skin brushing eliminates dead skin cells so that the new layer, which is regenerated daily, can come to the surface, making the skin soft and smooth. Skin brushing also gets the lymphatic system flowing so that it can perform its tasks effectively.

The lymph is the fluid that brings nutrients to our cells while removing waste. In fact, it is the primary vehicle for elimination. Unlike the blood, which has the heart to pump it, the lymphatic system is dependent upon outside forces such as exercise and massage for its circulation around the body. Most people are not able to get a massage every day, and far too few people in modern society get regular exercise. Dry skin brushing prompts the body to release its toxic deposits into the lymph, whilst simultaneously cleansing the lymph itself.

Because of its powerful ability to release the skin’s detoxification potential and to cleanse mucoid deposits from the cells directly into the colon, dry skin brushing is considered to be an essential part of any intestinal cleansing program.

The best time to skin brush is before a bath or shower. For optimal results, skin brush every day. Your skin may feel tender at first, but if you continue to brush your skin on a regular basis, you will soon feel the benefits, and your skin will come to crave the daily brush!

The entire surface of the skin should be brushed, with the exception of any broken or cracked skin and the face, which is generally too sensitive to be brushed. It is imperative that the brushing be carried out when your body is dry. The brush should also be kept dry so that the bristles don’t become soft and lose their effect.

In order to maximize the lymphatic benefits of dry skin brushing, the skin should be brushed according to the locations of the two lymph plexuses. The majority of the lymph in the body drains into the thoracic duct, located near the heart. However the lymph from the upper-right quadrant of the body (the right side of the face, neck and chest, including the right arm, and following the line of the ribs down) drains into the right lymphatic ducts, located above the liver, under the right breast.

The skin should therefore be brushed in long, firm strokes up the legs and in towards the heart, except for the upper-right quadrant, which should be brushed downwards towards the liver (under the right ribcage) and the right breast.

More information at

http://healingtools.tripod.com/skinbrush.html

http://www.naturalhealthtechniques.com/healingtechniques/Dry_Brushing_Technique.htm

Source: www.naturalnews.com

Endorsed by: Chronic Sunchine

Quote, AIDS vs CFS/ME

“I have treated more than 2,000 AIDS and CF(/ME)S patients in my career. And the CFS()ME) patients are MORE sick and MORE disabled every single day than my AIDS patients are, except for the last two months of life!”
– Dr. Marc Loveless
(infectious disease specialist and head of the CFS(/ME) and AIDS Clinic at Oregon Health Sciences University, in Congressional Testimony, CFS(/ME, FMS & MCS) Awareness Day, May 12, 1995)

Welcome !

Welcome to my Blog!

My name is Kelli.. But I am also known online as Neon Rose and it’s variations (I answer to the name Neon, IRL).. I am also known, in scouting circles as Koolaid – yes, as in the drink (long story, I’ll tell ya some time)

This blog is about my life, my medical issues and any information I can share thereof.. I have been diagnosed with Fibromyalgia, Endometriosis, Allergies, Sensitivities, Asthma, Irritable Bowel Syndrome (IBS), Depression, Chronic Fatigue Syndrome (CFS/ME), Hypo active Thyroid, Restless Legg Syndrome (RLS),  Osteoarthritis (OA) and a host of other issues that are part and partial to go with the above mentioned. The focus here is going to be mainly on Fibromyalgia (hence the title), but will also include fibro-related issues and Endometriosis.

Why, you ask, primarily on Fibromyalgia. Well, cuz Fibro is the most significant issue at the moment.. My endo is under control, as is my asthma, RLS, allergies, etc.. Also, Fibromyalgia is also the least understood, most misdiagnosed and under treated condition that I have. If I can just help one other person, then, I’ll feel awesome cuz I have helped someone. (Why do I suddenly have a girl guide song in my head? *shrug*).

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