Posts Tagged ‘nerve points’

Myth Debunked VI of VI

June 6, 2021

FIBROMYALGIA DIAGNOSIS IS THE END OF THE ROAD

Many find it hard to accept a fibromyalgia diagnosis, not just because of the condition itself but because of what it means. It can feel like the healthcare professionals are saying ‘there’s clearly something wrong with you but we have no idea what it is… there’s nothing more we can do for you’.  This ties into the point of the trashcan / umbrella diagnosis.

Lack of information and fibromyalgia-specific support at the time of diagnosis can leave many feeling like the diagnosis is the end of the road, but that doesn’t have to be the case. The OP was personally told by her rheumatologist not to go online because she’d ‘fall down the rabbit hole’. I imagine the doctor wanted her to go home, give up and stop bothering doctors.

Acceptance, often a difficult and ongoing work-in-progress for many, can be done in conjunction with keeping open mind, still being open to new developments, diagnoses and tests and treatments while working to manage fibromyalgia in day to day life.

Myself, I knew my diagnosis before my doctor’s did (Did the same with my endo), so acceptance was never much of an issue for me. I think my GP had a harder time accepting it than I did.

While there’s no cure, a multi-disciplinary approach can help to some degree. The likes of pacing, pain self-management therapy, massage, acupuncture, gentle exercise, gadgets, self-help books, medication, supplements and so on will work differently for everyone; both the experience of fibromyalgia and its management will be different for each person. It’s often a case of trial and error for each individual to develop a routine and to find the tools that work more effectively for them. 

My regime is a multi-disciplinary approach as mentioned above. I have a muscle relaxer, an anti-inflammatory, low level narcotics, MMJ and a small selection of vitamins. I also regularly see a physiotherapist /osteopath, RMT, pain physician for trigger point injections, & my dentist because of my TMJ, I participate in exercise which prior to covid was Aquafit for the most part. I try to watch my dietary choices, but I know I still fail there- addictions to sugar & McDonald’s. I am also involved in chronic pain support groups in my area which are currently virtual.

What hasn’t worked for me includes Lyrica, Gabapentin, Cymbalta, Fentanyl and Codeine Contin. I have given acupuncture several tries but have not found it helpful for me & occasionally detrimental. My best friend sees a chiropractor but I found that they were less helpful for me. I also still need to be very careful in the way of exercise so it’s not to over do..

I’m A Human Pincushion

August 21, 2020

About 8, maybe 10 years ago, I was referred to The Centre for Pain Management to help get the fibro under control &, if I’m lucky, off all the drugs.

I was initially getting weekly injections of Marcaine. This is an injectable medication that is a numbing agent similar to Lidocaine..

Where do I get them? Lol, everywhere! hence the pincushion reference.. They are primarily in my back. I get nerve injections & trigger point injections. The nerve injections, I get 4in the lower back on each side of my spine & the sciatic nerve the goes down the leg. I get two in the neck on each side. And a final pair at the top of the shoulder. So that’s 16 to start, pretty much every visit. The number of trigger point injections depends on what’s been flaring (FM? CFS? OA? MPS? Stress?) Initially she was giving me upwards to another 20-30 shots. That means up to 45 shots in my back neck & shoulders.

About 5 years ago we started to see improvement & extended the time between visits so that unless I was in a flare I was going every other week. This progressed to three weeks, then four.

Just before COVID hit in March, I was just starting & doing well on an appointment every 5 weeks. While I was still usually getting the basic 16, I was only getting 10.. 15 max other injections in my back. I was doing well.

Unfortunately due to COVID & the loss of many of my other treatments, my pain levels have jumped back up.. However, not as bad as when I initially met her.. so I’m currently going every other week.. getting the base 16 & maybe another 15. With my other treatments slowly becoming available, I am hoping I will be able to return to the levels I was in the spring.

Currently, I visit my Doctor at CPM every other week. However, I will be away when my next appointment shows up & I’ll be trying every 3 weeks. Hopefully it’ll be ok. There is no way I’d be able to drive home in that kinda pain.