They Can’t See It.

A few days ago my Dad asked me if I was gonna join him & Mom at the cottage this weekend. I said no. He stated they were going to my brother’s on Saturday then come home. I hedged, taking a deep breath, then my Dad stopped, looked at me and says “For Father’s Day.” Well played, Dad. Well played.

So, Satuday.. (Dad decided to just go up to my brother’s on Saturday & not the cottage.) And just getting out of bed, I can tell that this was not going to a great day.

Ok, 2 hour drive to my brother’s.. In the back seat of the van. We did have a pit stop part way up to get out & stretch. I also used my Obus Form back rest in the van. So, it could have been worse.

We got there shortly after 1.. I frgot take take my noon meds until about 2-2:30 only to realize, that while indie bring my Robes, I grabbed the wrong bottle & did not have my prescription muscle relaxer. So, I made do with the Robax instead.

We then spent the entire afternoon in lawns chairs on the grass, then the deck for dinner. As the day wore on, I became in more & more pain, even taking extra Tylenol, more than I’m supposed to.. I had no opportunity to rest, or to even lay down. The day, was not going well, health-wise.

But apparently I hid it well. Mom didn’t even know it was having significant problems. That is until we got in the van for the 2hr drive home. Then she noticed.. & asked if I was ok. Of course, I said no, but there’s not much to do about it.

Then I guess Dad figured that he should get us home faster and it was a really rough & jarring ride. That doesnt help, getting jostled around the back seat as he takes turn quickly and sharply.. But he did get us home 13 minutes faster than expected.

As you can tell by the publish time, it’s morning – a time i rarely see, but cuz of all that happened, I’m still awake and in pain cuz I overdid it.

So, I figure one of the following happened: 1. They Can’t see it. 2. They don’t see it, 3. They won’t see it . 4. I’m getting beat better at hiding it.

What do you think?

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What do I do?

For my fibromyalgia, I currently take the following Medications/supplements

• Multi-vitamin – Naturapathy Dr does not recommend Centrum or most pharmacy brand multi’s
• Calcium & Magnesium with vitamin D – Calcium cuz Women with Endo are more susceptible to Osteoporosis. Mg & D to help absorb the Calcium. The Magnesium also to help with muscle spasms & charlie horses. I have found that it has helped.
• Fish oils – Generic fish oils, minimum 1000mg a day .. Well, I try to. Naturapathy Dr recommended 1000mg-3000mg daily of the EPA+DHA to help with mental acuity. I’m still waiting for the fog to lift, but I’m not usually getting enough to impact because I fog up & forget.. Lovely catch 22 there.
• B complex to help with stress and ensure that I get enough B’s. No, I don’t take a stress formula. Just a normal B complex.. either 50mg or 100mg
• Codeine Contin for maintenance pain.
• Tylenol #3 for breakthrough pain
• Oxycodone for severe breakthrough pain
• Flexeril (Cyclobenzaprine) as a muscle relaxer. I find it better than anything OTC..
• Probiotics to help regulate my digestive track – it works, ‘cept when I have an IBS flare or food sensitivity
• NSAID, but it’s for my Endometriosis, so I don’t really know if it does impact my FMS or not.

For my fibromyalgia, I currently participate in the following exercise:

• Aqua-fit, really carefully – I’m just getting back into exercise, so I am trying to get to the gentle classes. My local YMCA gym has a class or arthritics and for osteoporosis. Aqua-fit is a good choice because of the buoyancy of the water, it doesn’t impact my knees, and it’s a gentle cardio
• Seriously, right now that’s it. I need access to a hot tub to do further exercise to keep my body warm.

For my fibromyalgia, I intend to return to the following exercises:

• Yoga with the hot tub – Yoga provides gentle stretching while working on core strength and balance. The hot tub helps to keep muscles relaxed afterward.
• Keeping up with Aqua-fit – see above 🙂
• Walking the track to music with the hot tub – I got into walking when my nieces were born, walking with my sister. After I joined the Y and my nephew was born, I would take him in his stroller to walk him around the track. He’s too old now, but I have found it enjoyable with my MP3 player (or CD player back then). I sometimes dance a little bit and my pace changes with the music I’m listening to. It’s hard to overexert myself. 🙂 The hot tub helps to keep muscles relaxed afterward.

A benefit from the exercise is that I tend to be tired out afterward and relaxed. This makes evening workouts ideal in that I go home, go straight to bed and will sleep well, with a decent amount of healing rest. This improves me, physically, emotionally and mentally for the next day.

For my fibromyalgia. my spiritual side is limited. I don’t go to church often, however I do find solace in my home church’s sanctuary. I’ve moved away from my home church and have yet to try out the sanctuary here. I also find the same ‘state of grace’ from music, especially my churchy music 🙂

For my fibromyalgia, because of my physical limitation, I am limited socially. Most of my social interaction is via the internet on Twitter, Facebook, Email, etc.. The alternative to that in real life is with my SO and his friends. Most of my friends no longer talk to me, or are too far away for more than email. The classes as the Y present a new socialization source, which I hope to be helpful. With the improvement of my health I would like to return to scouting in some sort of part-time or limited capacity.

For my fibromyalgia and my cognitive abilities, I am starting this blog. It will help keep me thinking and requires research. It also provides a creative outlet. I also enjoy doing word searches and have, on recommendation on my therapist, started to colour and have other crafts options available to me.

For my fibromyalgia and an emotional aspect, I have a councilor and have been placed on anti-depressants. While my time with her is limited I do find that I feel better after I speak with her. Additionally I have the support with my SO. While sometimes he can not understand and becomes frustrated, I know he only has best intentions where I am concerned.

How do I cope? Not well. Other than the limited exercise mentioned above, the odd screaming match and the rarer still church visit, I have no real outlets.. Which sucks. Before I got sick, my outlets for frustration and anger and stress were physical. With the fibro, I have lost that. Any suggestions are welcome 🙂