Posts Tagged ‘Pace’

Following Doctor’s Orders

August 27, 2021

Previously, i had posted about my pain physician limiting my physical activities – not allowed to go to Cub/Scout camp. . I wrote about why & here’s a quick summary from the post

My pain was creeping up and Iwasn’t doing anything to rest. After spiking again last weekend, I had a regularly scheduled appointment with my pain doc. She reviewed my comments & my paperwork and we had a discussion She said that I was overdoing it & if I kept pushing I was going to significantly hurt myself, possibly slamming right out of my semi-remission. So, she said “No, you are not to go.”

My Pain Doctor *ordered* me to not go to Cub/Scout Camp.

So my Doctor said no, & I’m glad she did! Cuz she was right.

Last Thursday I helped the Howlers clean off the canoes so they could use them. (We don’t wanna contaminate the algae or other slime or bugs of one body of water to a new environment)

On Friday afternoon I helped get everyone off, including the trailers for the canoes & equipment.

Cubs At Camp

On Saturday, I finally woke at 10am on 6 hours sleep cuz my pain was keeping me up. Unfortunately, I woke in more pain than I fell asleep in.

i have a pattern – I feel worse first thing & feel good until I approach bed time.. I hurt in the morning because I’m still – I haven’t been moving or stimulating my muscles while I sleep unless of my restless legs are keeping me up of course. When bedtime approaches, I start too slow down and that makes me more aware of my body and the pain and inflammation that I’ve been ignoring comes to light. I have always been like this as a kid – I would be ill, but better in the evenings & want to go to guides or soccer or dance…

Instead of Cub Camp, Saturday activities ended up included folding laundry and reading a book in the lounger in the backyard. Not alot of activity.

So I went to bed on Saturday night in lots of pain. Woke up Sunday with lots of pain.

Sunday required me to pack for the cottage, which was fun..it took me several hours to get my stuff organized & packed (yet still left swimsuits at home).. Imagine, had I gone to camp, how much pain I would be in. Packing up Sunday morning and making a 4 hour drive home, then unpacking equipment at our storage area. Afterwards, add in me trying to unpack from camp, do some laundry and then repack for the cottage all in a few hours then drive almost 2 hours up here..

imagine if I had tried to do camp, I would not have been able to pack for the cottage, let alone make it here for at least 2 days, possibly up to 4 or 5..

So, as the days have progressed, I’m having to be careful.. We (Lilly & I) ran errands on Tuesday, and spontaneously stopped at a local conservation area to take the pup for a walk (6 km later we are both dying) .. I walked around in the cool lake water to help the pain and heat in my leggs as well as a quick dip for Lil for that & heat relief… It helped a bit..

We took Wednesday easy.. Went about 500m in the kayak before I remembered I had a webinar in 20 minutes! & that was my exercise.. And yesterday I crashed out.. not even making it outta bed until 7 – in the evening..

So while, besides yesterday, I’m doing “ok”.. I was managing pain at about a 4/10. Imagine where I would have been had I gone to camp.. Besides packing, I’d be driving 4 hours to the camp ground, help set up three sites, including tents, kitchens and shelter. Poor sleep Friday night would almost be a given, but up between 7am & 8am for breakfast & on my feet going all day, including canoeing with the kids, hiking, games, skills training, archery, helping with 3 meals a day in some capacity, etc. No breaks, no stops, no naps untill after campfire, if I made it that long, starting at 9:30-10pm start.. so in bed for midnight.

Cubs & Scouts Camping c at Camp Impressa

Sunday would have consisted of breakfast & packing the equipment all up & reorganizing the trailer. Then the 4 hour drive back as I mentioned earlier..

if you add all that activity on minimum sleep, are you really all that surprised that I would have crashed on Monday. Which I kind of did anyways just from packing up with the cottage.. if without that activity my pain levels are at a 4, maybe 5. Imagine what level I would have been at had I actually participated. I figure probably near 9/10 and I tend to go to the ER between the levels of 7 and 8!

Normally, if I’m ‘well’ I can do camp Friday – Sunday, then crash for 2 days.. but I can normally make it through camp.. but I wasn’t starting at ‘well’..

So, yeah I am so glad my pain doc ordered me to stay home..

Post-Christmas Crash 2020

January 1, 2021

Every year the inevitable happens. I manage decently enough getting ready for Christmas, pacing myself trying not to overdo it. Every year I end up failing miserably before the holidays end.

Some years I’ve managed to get through Christmas Day with a nap and crash afterwards. . Some years I’ve actually had to postpone Christmas from the morning to the afternoon and eventually this became consistent as I really get up any day before noon. I’ve even had two years where I didn’t do Christmas with my family or anyone just because my crash hit before the holiday.

The most common reaction is to hit my wall on Christmas Day in the evening… After I get back from wherever I’ve been.. Fortunately, with the improvement of my Fibro over the last almost 5 years, that is shifting.. Crashes are less severe and don’t typically last for week or more on end..

This year, I did well! Before you say that’s it cuz of covid & no one did anything, it’s not true. Christmas this year is not *that* different.

As per the norm, I baked cookies. I give these his gifts to friends, family & my pain physician. It’s not uncommon for me to purchase premade dough however this year I made two different types of cookies from scratch. I have one of those cookies I ended up making up 4 batches. I don’t know how many cookies I made in total but in the end I had enough for two’s cookie swaps with my Cub packs, 3 small baggies, of a half dozen, 8 larger bags of a baker dozen, & 5large bags for almost 2 dozen cookies. I also did up one package of two dozen Brier Rabbit cookies (that’s the recipe I made for of) for a friend of mine who specifically likes that type of cookie.. After all that, I still had some left over.. That’s almost 400 cookies this year.

Cookies From My Cubs

As I usually do, I also did my Christmas shopping in person. I don’t like doing a lot of shopping online unless I know exactly what it is like books. So I do gifts for my sister and her family and my parents every year as well as select friends including my best friend and her family This year I also got a few things for my brother’s family beyond cookies.. Plus stocking stuffers for my Mom and Dad.. So gifts for about 20 people this year.

Because of COVID my deliveries have been different this year.. but I have made them and have had short safe visits with friends. I stopped at my 2nd bff’s on Christmas Eve Day and we had a short safe visit. . Christmas Day was spent with my parents followed by a social distanced gift exchange with my Sister’s family. Afterwards, I stopped by another friend’s later on also for a short safe visit to exchange small gifts. Come Boxing Day, I had a longer, yet still safe visit with my BFF & her family. Finally, I saw another friend that evening and gave him his cookies & gifts..

So Boxing Day evening I hit my wall (My Wile E Coyote IG post shows it well). When I got home about 8:30, I crawled into bed & slept. I ended up overheating in my sleep but you can read more about that here.. Otherwise for the next 24 hours, I slept, only getting up so myself & Lilly could use the facilities and to feed her.

Since then my pain levels have been up and so has my fatigue.. I’ve done very little over this last week. I had a Cub Scout planning meeting on the 27th via Zoom. I’ve had a visit or 2 with Mom & Dad as they only live upstairs.. I fixed a mask, having to replace the elastic & add a third layer. I have watched TV, I have player video games on my phone & I’ve slept.

Do I consider myself bedridden? No.. I’m able to function.. I can get up & take the dog out & Ake myself some food and do liw energy activities. So why am I not doing more? Cuz if I do things will go downhill.. Right now I’m just keeping the course steady so that my body can rest, relax, recuperate and heal..

They Can’t See It.

June 21, 2020

A few days ago my Dad asked me if I was gonna join him & Mom at the cottage this weekend. I said no. He stated they were going to my brother’s on Saturday then come home. I hedged, taking a deep breath, then my Dad stopped, looked at me and says “For Father’s Day.” Well played, Dad. Well played.

So, Satuday.. (Dad decided to just go up to my brother’s on Saturday & not the cottage.) And just getting out of bed, I can tell that this was not going to a great day.

Ok, 2 hour drive to my brother’s.. In the back seat of the van. We did have a pit stop part way up to get out & stretch. I also used my Obus Form back rest in the van. So, it could have been worse.

We got there shortly after 1.. I frgot take take my noon meds until about 2-2:30 only to realize, that while indie bring my Robes, I grabbed the wrong bottle & did not have my prescription muscle relaxer. So, I made do with the Robax instead.

We then spent the entire afternoon in lawns chairs on the grass, then the deck for dinner. As the day wore on, I became in more & more pain, even taking extra Tylenol, more than I’m supposed to.. I had no opportunity to rest, or to even lay down. The day, was not going well, health-wise.

But apparently I hid it well. Mom didn’t even know it was having significant problems. That is until we got in the van for the 2hr drive home. Then she noticed.. & asked if I was ok. Of course, I said no, but there’s not much to do about it.

Then I guess Dad figured that he should get us home faster and it was a really rough & jarring ride. That doesnt help, getting jostled around the back seat as he takes turn quickly and sharply.. But he did get us home 13 minutes faster than expected.

As you can tell by the publish time, it’s morning – a time i rarely see, but cuz of all that happened, I’m still awake and in pain cuz I overdid it.

So, I figure one of the following happened: 1. They Can’t see it. 2. They don’t see it, 3. They won’t see it . 4. I’m getting beat better at hiding it.

What do you think?

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My Acceptance

December 11, 2011

My biggest issue with my medical issues is me. I have so much trouble accepting my limitations. I am still trying to figure out how much I can and can not do. It’s more the can not that is my issue. I used to be way more than I am now. I used to be intelligent; Once upon a time I had an IQ of about 180 which is the beginning of genius. I’m not meaning to brag, just illustrate how much I’ve gone down hill.. I’m now at 130-140, which is considered average (to my knowledge).. That’s a *huge* drop, but it’s all from the fibro.

I used to be physical. I played soccer in a ladies league (the term ‘ladies’ here is used loosely) with 2-3 games a week and I played an aggressive & physical game. I was also involved in scouting, as a youth member, as a adult member, as a leader, as a group or area representative. As a result, I was very physical – hiking, camping, marksmanship, skiing, skating, all in different types of weather. & yes, I have camped outdoors in the cold weather and the snow. I can not do any of that. It’s not struggling with just those losses, but also the loss of the ability to function doing ‘normal’ day-to-day stuff like laundry, cleaning floors, vacuuming, washing walls or windows, and cleaning the bathroom.. Or even worse, I flare after being around my nieces & my nephew.. Moreso my nephew cuz he’s more physical, still into aggressive roughhousing. (Çuz he doesn’t get a lot from Dad – long story, not really Dad’s fault) I should be able to spend time with my family without getting sick. I just don’t know how to. Any suggestions on how to deal with this issue and help me accept my limitations? Feedback would be greatly appreciated. ~ Thanks.

Brain Fog

June 2, 2009

Brain Fog
By Kristy Bassett

Brain fog is possibly one of the most frustrating symptoms I have, not being able to think clearly can lead to major problems. It can not only be embarrassing not being able to think clearly, it can be dangerous.

The first thing to learn when you suffer brain fog is to never participate in any activities where you could be a danger to yourself or to others while it’s there. For me this has meant avoiding cooking and driving when the brain fog is a problem, this may be unavoidable at times, but where possible stick to this rule!

So what can be done? Unfortunately there are no miracle cures to lift the fog, but it can be managed. It’s worth investigating what is causing the fog in the first place.
Possible causes:

  • poor sleep
  • autoimmune disorders
  • hormonal imbalance
  • chronic fatigue/fibromyalgia
  • pain medication or the pain itself
  • allergies
  • iron deficiency and other nutritional deficiencies
  • blood sugar drops
  • dehydration
  • If you are able to pinpoint the cause, it may be possible to treat it simply. For others, the cause may not yet be known, or if it is known there may not be any more that can be done about it.


    Managing Brain Fog:

  • Try to avoid activities that are beyond your capacity, if possible rest is advisable
  • Caffeine: If there is no choice but to be able to function, it is the one time where stimulants such as tea or coffee may be a good idea to get through. This shouldn’t be a routine, but can be a crutch if necessary. Remember that once the caffeine has worn off you will likely feel worse than you did before the caffeine consumption. Warning: regular caffeine consumption is not recommended for those with fatigue.
  • Supplements: MAY help if there is a deficiency to improve energy: the most beneficial to energy are B vitamins, iron and coq10.
  • Manage your pain: (if this is the reason) as well as you can
  • Make notes as reminders: if you have to remember a lot of things in a day, it may be handy to write a list on a notepad to carry around with you, so things can be ticked off and not missed
  • Set reminders: this can be in a calendar, or diary, or through a computer program, whatever is going to be something you check often. Reminders can be for events such as a birthday, or when a bill is due as an example.
  • Take regular time outs: even if you are busy, it’s possible to take 5mins to shut your eyes, or do some stretches. This can help clear your head and stay focused; if your mind isn’t well focused the last thing you want is to overwhelm it.
  • Be sensible with your activities: Finally tackling some great written work may not be the best idea at these times, reading can be a good idea, but keep it something you can easily focus on, don’t add to frustrations just because you’ve always wondered if Dickens really is that good.
  • Work when you’re at your best: If it’s possible, try and work at the best time of day for you. Some people may find that the brain fog is worse earlier or later in the day.
  • Eat regular meals: avoid high sugar meals when you eat. A sugar spike means your sugar will drop. You don’t have to be diabetic to have sugar spikes and drops.
  • Avoid known allergens: both environmental and food allergies.
  • Drink plenty of water
  • Avoid chemical exposure: If you are chemical sensitive, be sure to avoid chemical exposures from creams, cleaning products, etc. Those with chemical sensitivities may find exposure triggers brain fog
  • Open a window if in the car: I cannot actually explain this, but even being a passenger in a car has been a trigger for brain fog for me personally, opening the window a touch can help this.
  • Deep breathing: It could help to clear your head just to do some simple deep breathing, it helps to swing your arms above your head as you breath in, and slowly lower them as you breath out, the action will help open the diaphragm and allow for deeper breathing.
  • Exercise: This recommendation comes with a warning, for some people with certain conditions this could be a very bad idea. If the fog is a side effect of extreme fatigue, physical activity could make it worse, in these cases rest is what’s needed. For others a short walk may clear the head.
  • It may be helpful to keep a diary; this is helpful to monitor any symptoms. Keeping a record of when the brain fog occurs can help identify possible triggers. It also allows you to identify what makes it worse and what makes it better. A little trial and error of techniques to manage it such as those mentioned above will be needed to find what works best for you.

    Source: The Recovery Room – http://www.recoveryroom.com.au


    My own comments:I agree with most of What Kristy has said..

    Pace yourself at all times, and rest as needed. Rest is taking at least fifteen minutes to relax, preferably laying down with your eyes closed, otherwise you are not truly giving your body a break.

    Water is awesome – it helps clean the toxins out of your body, a natural flush so to speak. 8- 8oz glasses of water. Myself I can stomach that much straight water.. I half juice with water when I can.. Makes it easier.. But not too much cuz juice can be high in sugar & calories.. An alternative to crystal light or other 0 Calorie powder if you can tolerate the sugar substitute.

    Skip the caffeine.. In addition to the crashes & everything Kristy mentions there is also the fact that if you drink too late (& how late is too late depends on the caffeine & sugar content) it will keep you up and be detrimental to your sleep..

    Eating regularly is my biggest problem. The recommendation is three small meals a day with three snack in between.. This allows your sugar levels to be more consistent over the day that sparatic eating, as well as the simple 3 squares a day. You are also less likely to snack. If you are going to snack, try & make it veggies.. Keep pealed carrots & celery in the fridge and have a stock of fresh fruit around. I usually avoid raw veggies, ignore the fruit & go for cookies. I do find it easier to make salads at night with dinner than a 2nd veggie because I keep a greens salad mix in the fridge that is ready to go & you can add more if you want; cucumber, radish, pepper, apples, celery, or cheese are options here. Just a tip to make things a bit easier.

    Reminders are necessary for me.. We’ve tried also of different plans and tricks to help with this. We’ve used a white board. We’ve used an automated to-do list on the web. We’ve used an online calendar, as well as a local (on my pc) calendar – this helps keep my appointments organized as well as birthdays/anniversaries, but not daily stuff around the house. We tried post-its, and notebooks but I’d loose them or start a new book/list. I currently have a written to-do list that we re-evaluate daily or every other day to keep me on track, to adjust for pain & fatigue, and to prioritize tasks.

    Avoid allergens – I think this is a no brainer.. gets tested if you haven’t already. I have my environmental testing done.. need to get my food testing done.

    Exercise, in my opinion is necessary, despite what Kristy says. I try to do yoga & aqua fit regularly.. I agree that some are not able to do that much, so even a walk around the block, or one of those exercise videos specifically for Fibromites. I have one and it’s all based in a chair. There is also chair-based yoga in some areas that are available, usually for seniors.

    Kelli