Posts Tagged ‘The Other Shoe Will.Drop’

Is Fibromyalgia Progressive?

January 15, 2021

In a word, No.

It is not a progressive disease in the technical medical sense.. However it does wax and wane as things change in your life.. For many people this does appear to be progressive as their body fails more as they get older.. but as you find better strategies and medications to cope you can also swing the other way and improve.

If Fibromyalgia was progressive, how could people have symptoms improve, partially, like me or full remission that does, only rarely mind you, happen..

I was, at one point almost completely bedridden, but am now able to live a relatively ‘normal’ life. Lots of slow prolonged changes have happened over the years with strong support for this to eventually lead me to my current improved health.

Before you tell me I don’t have fibromyalgia because my symptoms got better, there is zero chance I have something else. Dr Alison Bested, who at the time was the absolute top of world in the field of Fibromyalgia & CFS/ME, confirmed my diagnosis. When I was referred to her I had already had several blood tests taken, seen her in the environmental health clinic and had a diagnosis of “symptoms consistent with fibromyalgia” by rheumatologist. And her private practice, she sent me for additional blood work. This blood work required two trips, two separate trips, a minimum a week apart to get enough blood needed to run all the tests she requested to ensure that there was absolutely nothing else. Everything came back negative or normal. I have Fibromyalgia & Chronic Fatigue Syndrome.

Believe you- me.. I am aware and grateful that I am doing well. I know my body will again swing the other way.. Until then I am enjoying this upswing in my issues.

So, fibro, while not progressive, it does give that impression as there does tend to be more downhill than uphill.