About

Hi all.. My name, obviously, is Kelli Ellis.. I also go by NeonRose, or Koolaid in Scouting.

I was diagnosed as “having symptoms consistent with fibromyalgia” by a rheumatologist in 2006.. I’ve been trigger point tested so many other times since then I actually helped one pain doctor learn where the points exist. I was that doctor’s first fibromyalgia patient.

I think I had CFS first in highschool with my endometriosis.. I believe that the fibro started after me having mono one summer in college in 1993.. It was a very slow progressing in deterioration. I did not handle it well. In total I currently have 28 diagnoses, most of which interconnect.

Since then, I’ve survived narcissistic doctors, impartial doctors, ignorant doctors, a toxic & abusive relationship, an unsupportive hospital environment, and mental as well as other physical conditions.

I’m here to share my experiences & my journey with you and hopefully create a dialogue..

Let’s talk!!