Archive for the ‘Fibromyalgia’ Category

One Upmanship

November 22, 2022

I read an article recently entitled Why Is My Friend with Fibromyalgia Trying to One-Up Me? and I could totally relate.

I have several friends who are fellow fibromites, women with fibromyalgia, each to varying degrees and varying function levels. I can speak about these issues with them, comparing yes, but also supporting each other. But I did have one in particular that would always work her pain in the conversation and make it sound worse than anyone else’s could possibly be.

This lady who I am no longer friends with works full time because “she can’t afford not to.” While when her & hubby constantly go out for dinner, go to concerts and socialize, and spend money lavishly, it’s no wonder she can’t afford it. But I’m curious as to how bad her pain really is if she works full-time and does all this other stuff. (Yes, I know that sounds a little judgey, but she makes me angry with this behaviour of hers)

She would berate me for not working, for taking disability. I am on both provincial and federal disability supports. Admittedly, I have in recent years, worked the federal, provincial and municipal elections. This is a single day, paid position. Yes, it is a long day. She thinks because I can do those one-offs, I should be able to work regularly. After those single days of work, I’m toast for up to three, four days later, even have been almost bedridden the first day after. How would I be able to work a regular job if I’m in too much pain & too exhausted after a day of work to even do the very basic daily activities of living?

Even tho we were good friends, she never saw me when I was feeling poor, and didn’t even talk much when I was, at one point, bedridden. So, while she is comparing, she’s not accurately comparing what my true issues are and even then, most of them are different from hers.

She doesn’t really understand that it is not a competition..

I also addressed this topic in a previous post, My fibro is not her fibro.

The Process of Doing Laundry

November 18, 2022

There is something that healthy people don’t realize about those dealing with chronic pain. That is the unrelenting exhaustion that occurs when dealing with and fighting chronic pain. This exhaustion severely exacerbates energy levels so sometimes we can’t do everything in one shot. Laundry is an excellent example of this.

When doing laundry, most people will throw stuff in the wash. When the cycle is done they will throw the clothes from the wash to the dryer and throw in another wash another load to wash. When the dryer is done it will take out the clothes into a laundry basket, fold them, then put them away. Then they repeat as needed.

There’s no way I could do all that. Not with the other things I need to get done in a day. So for me, laundry is a multi-step process.

1. Organizing clothing.

While this is frequently merged with the next step, it isn’t always. If I have a full hamper of clothing, I have to take it all out and separate it into different loads including a gentle load, potentially a white load bleach and then splitting up the colors into two balanced loads. Just the weight of picking up putting down and moving around clothes especially if there’s something heavy like towels, that can get pretty tired and pretty fast.

2. Washing.

From here, I have to get the clothing from the laundry hamper in my bedroom to the laundry room. Fortunately for me my laundry is on the same floor as my bed room. But carrying that much weight and then starting the cycle and making sure all the clothes are in and balanced. Well healthy people don’t think twice about this again it gets really tiring really fast.

3. Drying clothes.

I have a stacked washer dryer so picking up heavy wet clothing from the washing machine and pulling it up above head level into the dryer takes quite a bit of effort. Again most people don’t think twice about something like this. After getting everything in the dryer, making sure all the laundry balls (because I don’t use dryer sheets) are evenly distributed through the load because half the time I forget to do that ahead of time. So this means moving around all these heavy wet clothes, again. Now sometimes it’s a gentle load and that requires me to take things out move them across to the other side of the laundry area and it’s a pretty big space considering, and hang each item up carefully on the drying rack. Fortunately, gentle loads are rarely a big load and lighter in the summer than in the winter.

4. Emptying the dryer.

I can put a laundry basket on top of the washing machine and carefully drag clothing out of the dryer into the laundry basket. This is not the difficult part. The difficult part is bringing it out to the living room which is where I tend to fold my clothes. While they are no longer wet, they still tend to be heavy and I have to carry that from one side of the apartment to the other. Most people don’t think that’s a long distance but when you’re carrying that much weight and yes for someone on chronic pain that’s a lot of weight, that far it can be painful and exhausting. Then if I also have to grab the dry gentle clothing it’s on the drying rack on my way by that makes the basket even heavier.

5. Folding clothes.

I tend to procrastinate, I will admit that so this is partly a problem of my own making. As a result by the time I get around to folding my clothes, I usually have a couple of full baskets of clean laundry. Fortunately I have very little that actually wrinkles. I tend to take my time and organize the clothing as I’m folding it, while I’m watching TV. Watching TV while I’m folding is it good distraction so I don’t notice the pain or the fatigue as much. I will agree that lifting one item at a time and folding it and putting it down it’s not that big of a deal but doing that process over and over and over again for an hour or two, takes its toll. Yes it takes me that long to fold my laundry.

6. Putting Away.

As I fold, I tend to organize everything. T-shirts that go to the dresser together, pants that get hung, go together, hoodies go together, socks in one pile, undergarments in another, and pj’s all together. It makes it easier, but those baskets must also be brought back to the bedroom and the weight can be excessively heavy as I move basket after basket. But again I procrastinate until I’m actually looking in the clothing for specific items.

The issue with putting things away isn’t so much the stuff that goes into drawers, but the stuff that gets hung. I have a walk in closet & most of my clothing hangs from a rod just above my own height. Jean are the worst, not only do I have to get them on a pant hanger correctly, they are also heavier than most of my other clothing & the weight hangs long making it more difficult to maneuver. Especially if I have several pairs of pants, I may not be able to empty all the baskets cuz lifting clothing above my head stresses my arms & back exacerbating the exhaustion of the activity.

Conclusion.

So, not only do I have to do this in steps, resting between, this process can take a few days to work through because the pain and exhaustion severely limits the amount of energy one has.

Being Sick with Fibro

October 25, 2022

So i caught a bug this weekend. Stuffy nose, sore throat, head ache, body aches . Never did take my temperature.. & I noticed something .

The Fibro pain isn’t typically everywhere at once.. it’s usually once place or another, not everywhere.. But you add the body aches & every is now hurting.. yuck.

Cognitive Issues with this Project

September 13, 2022

I have been sewing to some extent, all my life starting with Brownie badges & Barbie clothes.

In Jr high I made a denim pencil case, some board shorts, & a couple of pillows. Growing up I helped Mom with her sewing projects

Over the years I’ve branched out on my own projects. I made myself clothing as some of the plus clothing in the stores just didn’t suit me or were poor quality. I’ve made pants, overalls, capris, dresses, camp ponchos, Halloween costumes, etc.. I even helped my mom make pajamas for my nieces. Then there were covid masks – lots of COVID tri-layered home made covid masks.

I’ve made alterations of different types including simple hems, preplacing elastic waist bands, reinforcing hems, adjusting the fit of dresses, mending of many a dog toy, not to mention tons of buttons & camp & uniform patched &:badges.

So, needless to say, I have had a decent grasp of the concepts with sewing.

Recently, my sister asked me to help her sew slip covers for her outdoor furniture. I agreed before I found out there were 28 cushions to cover.

Now, I know I’ve had cognitive impairments that have impacted my ability to function. Family members have not noticed to what extent this has impacted me, until this project.

Both my Mom and my sister are stunned with the amount of problems I’ve been having. We all agree I am not stupid. I’m quite intelligent but there are so many other ways I’m having issues.

Poor Communication : I think I’ve told someone something that I thought I had. I also have trouble explaining concepts, ideas, solutions in a way that others can understand I will bet I’ve not explained the problems accurately or succinctly enough below to make most people understand issues I encountered. Then solutions to problems (see below) that my sister recommended were the same as mine but just from a different angle but somehow I can not able to explain it. It happened so many times & I was so frustrated with myself that I just let her do what she wanted, sometimes even if I knew it was wrong and I couldn’t explain why.

Ability to Remember / Relearn : I should know basic sewing skills like how to thread a bobbin, which way to sew a hem, how & where to place a seam, knowing what stitches do certain functions, how hard to pull the material through, how quickly to run the machine. These are all basic skills I had and in some cases have taken up to a week to remember or relearn.

Poor Problem Solving Skills : With sewing from our own pattern, I’ve encountered multiple problems, many due to missing the skills above. I had taken me days to figure out solutions to some of the problems for example, seams. I keep reversing my seems and putting the seem on the incorrect side, putting the rough on the outside instead in the inside resulting in many seams being removed and redone. Another is sewing only the fabric required & not accidentally overlapping other parts of the material – I still did this a week after starting. My sister even said my problem solving skills were so bad that I probably would not even be able to work at a job as basic as McDonald’s.

Inability to make corrections: This goes with the problem solving skills. I had a piece of material with one side of velcro on it. I sewed the piece on correctly. However, I had seen it on incorrectly. I had though I’d put the velcro on the wrong side, so I ripped it off. This made the initial blunder even worse, because after I’d switch the velcro to the top, I was then able to see that I had sewing it correctly to begin with, but had reversed the seam. So I had to remove the piece and the velcro again. I had to replace the velcro to the original correct side and resew the side piece coorectly. I was so frustrated and almost in tears because I never would have made this massive double blunder when I was younger.

Spacial Impairment : First, I have a good background in mathematics including social orientation and had even earned a small scholarship as a result, but my sister never had that as a strength. So, as I mentioned above, we were sewing from our own pattern, nothing pre established. It was based on a YouTube video my sister watched. I’ve had alot of problems understanding the way she has wanted me to sew certain pieces on & how they should work together. The only way we were able to visualize how things should be done was by actually putting the fabric on the cushions. Neither of us could get the orientation in our heads. For my sister, that was fine, but for me, it had been a strength and I felt so useless.

It just upsets me, writing this post, to actually write down how many problems I have, how many intellectual skills I have lost. I’m almost in tears. Frustration? Grief? I don’t know.

So because of how obvious it has become, my mom & sister have both suggested I talk to my doctor about these issues Because I can not explain the issues well, my Mom is coming with me, and I’ve asked my sister to write up her opinion. She actually asked me if she wanted her to write it in a way that won’t hurt my feelings. I know it’s bad, so I told her to be blunt & straight up. I know she has great communication skills, so she will be able to express my problems in a way I can never do.

I asked Wendy to write something up for my doctor & accidentally got the date wrong so this is the quick blurb she wrote for my GP.

"So working memory… able to hold things in head to process them, general memory.. asking questions that u had asked a few minutes before, making same sewing mistake many times e.g side sections.. still sew up past stop line after 8 corners, doesn't occur to you figure problem solve this e.g double pin… you came up with solution but I brought up the idea to problem solve this."

I’m pretty sure the issues are due to fibro because I *have* had assessments done and even several MRIs because of it.

I have blood work which I have done and I’ve scheduled a cognitive and memory test for the 29th of August. I follow up Dr Uju I’m September 6th

Concerns About My Post Content

September 9, 2022

Firstly, if you don’t like it don’t read it.

Lately I’ve been getting criticized about the extent of, the detail of & excessive amount of information that I have been sharing on my blog in recent weeks..

Well. It is my blog and I can choose what I like true right, how I write it, the topics I choose and the fact that no I don’t burn my journal every 3 weeks like apparently I’m supposed to. This blog started in, I believe 2009. There are not a lot of people who actually read this so I’m not all that concerned. Pour a lot of the stuff specific names are not mentioned so nobody can complain that I am complaining or commenting but someone or something specific.

This blog is is mine. It is for me to share information including treatments, medications, self care, nutrition, exercise, etc. Also for me to share my feelings and emotions about myself. Others around me. My intimate and personal relationships.

Yes I’m sharing this, and I do know that this is going on to the internet and once it’s there there is no bringing it back. However no one really reads this and as per responses to request for feedback in other posts, no one really cares to share or to have issues with what I say..So I’m going to say whatever I bloody well please..

For courtesy sake I will, have & do give warning on sexual or intimate topics that certain people in my life may not wish to her. And just in general it may be considered an overshare which is why the warning is there. In bright red…

Enjoy this corner of my mind

Cognative Issues, Test Results

September 9, 2022

Bloodwork:

Thee tests I had done were all negative, except that my hypothyroidism medication was at too high a level because of my weight loss.. So that’s been reduced

COGNITIVE IMPAIRMENTS TEXTING

The testing, imo was inconclusive. His word memory test was too easy to remember.. Dog. Tree. Ball. They’re related. Dog pees on tree, dog plays with ball. The shape he had me draw was a symmetrical pattern over lapping itself. With my math background that kinda thing is easy & not sure how it impacts my memory

NEXT STEPS:

So the meds are changed with a follow-up in three months.. if there’s no improvement, I’ll explain why I thought the test was inconclusive & request a redo

Crash and Burn II

August 16, 2022

So I overdid it on the Civic holiday weekend and crashed as a result. I’ve been in a flare ever since.. This is a continuation of Crash and Burn.

As I said, Monday was about the same, pain-wise & still working on my sister’s project, but finally got a decent amount of work done on with this project. I think there was no improvement on Monday because I went to soccer.

Tuesday morning showed some more small improvement. That afternoon was my appointment with Dr Sithaparanathan at Neupath Pain Clinic (formerly CPM). Got my full shots & she gave me big trouble for over doing it. She asked my why I overdid it cuz she knows I’m pretty in tune with my body & it’s pain. I had lidocaine infusion on the Tuesday prior & the pain relief was still in effect which is why I didn’t feel any pending problems I guess the impact work off Sunday night/Monday morning while I slept.

So Tuesday afternoon was better, and was spent again at my sister’s.

I noticed significant improvement in weight bearing on Wednesday. The week prior, I was unable to pick up the sewing machine, even just to lift it from the table My brother-in-law had to come over and pick it up to take it to my sister’s. Today, however, I was running errands, one of which was to get the light bulb changed which required me to take the machine with me. I was able to carry it now. It was a bit of a struggle, but I was able to do it, take it out to the car. Yay!


A set of ushions for my sister's outdoor love seat, one of you have been working on

As you can see, we are getting it done & here’s a view of one of her love seats in case I didn’t share before. This just shows the look we are going for with this completed loveseat.


I got some of my own stuff done that day cuz I was not at my sister’s doing stuff, tho several of my errands were related.

At this point, I was still having trouble getting moving in the mornings – usually afternoons right now. Pain levels are still higher when I wake and still having problems getting decent sleep Sunday – 6hrs, Monday – 6 hr, Tuesday after my shots was good with almost 7½, Thursday – 5¾hr, Friday – 4hrs.

While I’m *in* bed by midnight, I am not tired til at least 2am, some times up until 4am. There are also where I wake in the middle of the night wide awake. None of this helps my sleep. Thursday was bad with a combination of both. I was in bed shortly before 1am attempting to sleep. According to my Fitbit, I dozed off at 3:30am & up at almost 5, wide awake and unable to get back to sleep until 8 but even then for only 3 hours before being wide awake. And people wonder why I am completely exhausted some days.

So, overall, pain got better and better, but I was still getting exhausted each day.

i also began to have problems with my ankle &: my knee. Being on vacation, my knee has been fine.. was even good on Sunday after being off seeing since Thursday. However, being Wednesday of my week off, I’m pretty sure the peddle usage has aggravated my gout. I’m icing it & tossing it in my tensor when I’m doing any significant walking.

Let’s hope, with us not starting back up after the long weekend that it starts to heal up on its own. 🙂

Crash & Burn

August 12, 2022

The August long weekend was spent at home, the first time in several years, even doing covid. Typically I would be up at bff’s cottage, but she wanted the weekend starting her vacation to just be her & hubby..

Instead, I spent it in the GTA. Thursday night I went walking with my friend Tracy as my sister was at the cottage on vacation. We went 5.18 km according to my fitbit. Pace was 7.8 km/hr which is pretty good. Average speed for someone our age is about 4.5km/hr. So a good clip.

Friday was a quiet day, but Saturday started with my mom having a hissy fit about all my stuff in their space, so I spent the afternoon hauling any of my personal belongings & any cub supplies I had from the garage and into the backyard , either to my indoor space or my father’s shed. Between 2 & 6:30, my fit bit recognized three instance of exercise. 2 were classified as walks, but one was registered as sport. This tells you how hard I was working. That evening I went out to a bar with friends. Some were new to our group, so we had some ice breaker activities & lots of chat, getting to know new people. Then off to the dance floor until I left shortly before 1am.

Sunday registered a walk on my fit bit at 12 and I don’t remember what I was doing.. likely at noon I’m still dragging my ass outta bed,, esp when I wasn’t home until 2.. ( I realized layer it was 12 midnight & I was dancing).. I then took the pup to the dog park and we took the longer path. I did yoga for about a half hour & change. *Then* I went to soccer & I was exhausted by the end.

I woke Monday morning, thinking “Hmm.. I’m not too bad.” Then I moved. Boy was I wrong! 8/10, easy, & pure fibro pain. Not alot anyone can do anything for that.. Plus ongoing muscle cramps in my legs on & off until I got some magnesium on Wednesday, which helped..

So I spent the holiday Monday in bed, same with Tuesday & Wednesday other than a painfully slow walk, barely 1km/hr. I was however feeling a bit better each day..

Thursday was spent at my sister’s hanging out at her pool & started working on a project she wanted to do this month. Got in a couple of short walks, minimally faster than the days before.

Saturday & Sunday we also spent working on the project with multiple pool breaks .. I did go out with friends on Saturday which was nice. Then I again went to soccer on Sunday – am I a glutton for punishment or what?

So now we are one week later, pain levels still jumping at a 4-6/10.. depending on the time of day.. Sunday afternoon I was at a 4.. Probably why I went to soccer.

Monday was about the same, pain-wise & still working on my sister’s project, but finally got a decent amount of work done on with this project.

to be continued…

How Am I A Functional Cub Scout Leader

July 12, 2022

Some days I’m not & others I push through to the detriment of .my health.

A Bit of Background

I started in the Girl Guide program at age 8.. I stuck it out earning my Wings in Brownies, my All Around Cord in Guides and most of my Canada Cord in Pathfinders before I got pissed at my leader for not giving me my badges. I was a junior leader for a year and then switched to the Dark side.. lol..

I joined Venturers at 16, continuing into Rovers and joining the leadership ranks as group committee, Scout Leader, Venturer advisor, Service team and finally as Popcorn Fundraiser Coordinator Then my health started to get really bad, I was no longer able to function in Scouting in any capacity & took a 10 year break. After going through hell with my health & my relationship, I returned home and to Scouting

My nephew wanted to be a youth leader with Beavers, so I joined with him. All I did was come to meetings & help. After 2 years he wanted to move up to Cubs, so I moved up with him. My first year was similar to what I did with Beavers, but our contact Scouter didn’t do planning very well and I wanted to expand my wings a little as did one of the other leaders (Raksha) did too. We set up a planning meeting. Akela told is last minute that he wasn’t coming which we were not surprised with cuz he’d only done a few meetings the year prior. So we started planning & an hour later Kaa, who was running our previous week to week program, called & let us know he was moving away & leaving the pack. Thanks for the notice guys.

So, Raksha and I took over the pack. Initially she was Contact Scouter, but I was the one interacting & teaching the youth the most. While it was exhausting, it was rewarding.. & just after our winter camp and spring break, COVID hit. Virtual took off alot of pressure in some aspects, but Raksha & I made a good team, comimenting each other’s strengths. We made it work. It took us 2 weeks to re-evaluate, but we kept going (that push is a whole different story) doing virtual then hybrid , now back full-time (for now) in-person. Unfortunately, we have amalgamated 2 other packs, dissolving them cimpletely. We are currently linked with another group working together as one pack

How I Cope.

I do not work because due to my health I can not be consistent or reliable. That does help. So Tuesdays are spent relaxing, with prep for meetings done on the weekend prior or the day prior.

We have very open communication & have a Facebook chat group for all the leadership. This is used to share information clarify details and to make sure the paperwork for each group is consistent when submitted. It also allows us to keep track of each other like if something comes up & a leader can’t make it, it’s posted there so everyone knows.

This year we have 6 scouters, 1 youth leader, and have grown to about 20 youth. Next year we will lose Raksha, & the youth leader but between the two packs, we will gain 3 Scouters and possibly another youth leader. So there is alot of support and shared responsibilities which makes things so much easier.

My key role is to run the meetings and make sure everything runs smoothly. This starts before opening and ended after closing The scouter who has this role usually has the name Akela. But, our Akela is named Koolaid🤣.

My specific duties include making sure we have the proper equipment and supplies for the meeting. Flags, for outdoor meeting are stored in my garage or my car. Lol. Different leaders may be running the activity but I make sure we have organized what is needed . Sometimes this requires requesting donations, or actual prep work or some organization. I make sure this is in place for the meeting.

The running of activities is shared between us, so I’m usually in a support role during activities I could run almost the entire program, I have the skills, and knowhow to do so, but that would be too much.

I run the meeting At our meeting place (the other pack has a location we use too) or outdoors, I have the cubs set up & take down the flags & totem. I run the opening & closing. I organize the other scouters in their support roles.

The kids see me, despite whether they are registered with my group or the other, as the contact point. For example at Cuboree last week, one of the girls in the other pack came to my tent, passing 4 other leaders tents, 3 of whom were from her group to get help from me. So I’m in the middle of changing & I hear “Koolaid, I’m cold” That was an easy fix – I put her child sized summer bag inside my extra adult sized indoor bag. *Poof* problem solved.

On days where I am not well, I am honest with the other leadership. We have an open & ongoing Facebook chat, so I can let them know. If necessary, make arrangements for anything I have for the meeting to be picked up & to give specific instruction about the meeting. I’m upfront with the youth as well – even have had “Don’t touch Koolaid” nights when my Alloidynia acts up.

Camping with Cubs.

So I’m.sure you are dying to know how I go camping with 20 kids. Well, this camp we actually merged the other Oshawa group with ours for the weekend, so we actually had up to 24 kids at any given time. But we also had additional leadership, 7-8 leaders at any given time.

My tent: I brought my own personal tent that I know how to set up, situated beside third year youth, hoping the younger kids will hit up the other scouters before me (& we know how well that worked). I have a double high queen mattress with a portable power source to run the pump. I have some actual bedding for the mattress. So I can use my sleeping bag more as a blanket, but also have a spare sleeping bag, a blanket & my camp poncho with extra sleepwear should I get cold.

We take advantage of the organizers running a group kitchen so we did not have the stress of cooking & cleaning up outside. Now with winter camp, in a cabin it’s easier to arrange cooking, eating & cleanup. At our last winter camp, our youth leader said he was an early riser, so we gave him kitchen duty both mornings so Raksha & I had some extra time to get ourselves moving

I do not drink coffee, nor am I a fan of tea.. So I’m sure you are wondering how the hell I manage without caffeine. I don’t. To camp I will bring 2 – 710mL bottles of Coke. One for each morning. So I get a slow regular infusion of Coke during the morning, but as soon as that is done, I switch to water, or Koolaid (about 3 calories) for the duration of the day. While I do enjoy hot chocolate, I’m picky plus it’s only offered at campfire. I do not need more caffeine at 10 o’clock at night before bed, bit I will take apple cider if offered. Since I’m exhausted from the day’s activities, I don’t need my body to be artificially stimulated to stay up later than need be.

I also wear ear plugs. Some of the kids get chatty at night and if they aren’t bothering the other youth I can just pop the plugs in & go nite nit.

To wake up, I set my alarm for a half hour before I need to be up for my body to adjust & to take any regularly required & any additionally required meds so that when I’m actually getting up, I have these helpful meds in my system.

More to come in the future….

Tattoos with Fibro

July 5, 2022

I’ve not had any tattoos prior to this year, so I don’t know what it’s like to have any ink done with a body that does not have pain. Honestly because I’ve been dealing with chronic pain issues since adolescent, I don’t think I could have even had the opportunity to do so.

I have 2 pieces done thus far. They are both rewards for my weight loss.

On my upper left arm, a little bigger than I was expecting, is my Scouter Koolaid tattoo I was given the name Koolaid by a patrol of scouts in my early 20s. So, basically is the scouting fleur-de-lis with the Koolaid guy super imposed on top. With the cub sign shown in his right hand.

This tattoo was actually quite painful. I had a hard time tolerating the pain. I was gritting my teeth the entire time but I persisted because I knew it was temporary pain and would eventually stop

On the top of the backside of my right shoulder, I have a butterfly. This butterfly is similar in style to a monarch butterfly but instead of the orange, black and white, mine is coloured inshades of purple and white. It is unique & really cool in that it is almost 3D in nature and you can see the shadow of it behind the butterfly. The text surrounding the butterfly reads “Fibromyalgia Awareness”.

This tattoo was significantly easier despite having more chronic pain issues in the area. For the majority of the work I was able to just sit and relax as he drew on the back of my shoulder. In fact, the upper lettering where I says “Fibromyalgia”, that actually tickled. Go figure There was one spot however that was a problem. Near the end of the work, the artist was adding white for highlights, he hit a flat mole on my back That sent a single big sharp jolt of pain through me. But that was the only pain I had from that one.

The artist, given that these two were my very first two and done right one after the other, he was not only surprised but suitably impressed that I only jumped that one single time. Apparently that is not the norm.

I do have one final one planned as my final reward for reaching & maintaining my goal weight. That one is going to be a collection of roses on my bum/ hip/ lower back in shades of bright pink & purple, maybe blue. The text to accompany that tat is “Neon Rose”, the online alias I have used since I was 16, so long long time ago.

When Lilly passes, I will be getting her paw print on me aswell in commemoration.