Libido

November 23, 2020

How fibro & other issues affect or don’t affect my libido. People who know me but do not have interest in this topic as relates to me, like a sibling or parent, even some friends, you just might want to skip this post.

Lol.. No, this is not me & a partner, but a stock photo. 😉

When I was young, before the fibro became an issue, I was only dealing with the early onset of only Endometriosis & CFS. My sex drive, much to the delight of my boyfriends over the years, was high. I don’t know many women who have that strong a libido. I only know of one female whose libido is close to mine. I’d equate my strong libido levels to that of an 18;year old boy. That tells us something.

I have found that the medical condition itself of fibromyalgia does not impact my libido. It does however impact if, when and how I act on that libido. Whether I’m a passive or active partner, how I can move and what positions I can or can’t get into. And there are some days that are just too painful. The mind is willing, the body not so much.

While the fibro has not impacted the desire, what has impacted it over the years is medications. I’ve had two major medications not only decrease but almost eliminate any sex drive I had.

Fentanyl patches completely killed my libido

Fentanyl: I was, at one point, at 50mcg/hr through a fentanyl patch. And because I had slowly been increased to that.. I didn’t initially notice the libido drop.. It was a slow progression to the complete elimination of any interest.. I was also on it for several years and I guess I attributed the drop in drive as a fibromyalgia issue as many women in the support groups have lost their libido to fibro. I only found out that it had completely suppressed my natural urges when I came off it. It took only a few days for it to return. And return it did! Unfortunately I was single at the time.

Cymbalta significantly impaired my libido

Cymbalta: It seems that there are a lot of antidepressants that can impair one’s sex drive. Fortunately, I’ve never had problems with them until the Cymbalta. It was initially great for my depression, but zero help for the Fibro for me.. But when we tweaked it & bumped it up a level, the mood stabilizer part of the medication was better, but within 48 hours of starting the higher dose, the libido died. We tried it for 6 months to see if that side effect would wear off before switching me to a different medication. My sex drive returned in maybe 36 hours, at most.. But again, I was single again, at the time.

Now, these medications may not impact others the same way and I’m sure there are other medications that will impair sex drive of others. This is my experience and my experience only.

Upcoming Move – Keeping Safe

November 17, 2020

No, I am not moving, my BFF & her hubby are.

For the last 2½ weeks I have been going over to her place every other day to help her pack.

I know there will be those concerned about the risk of getting exposed to COVID. Yes, they are moving to the city, Toronto, Canada’s biggest hotspot but we are being as careful as possible.

To minimize any risk to my parents, I’ve isolated from them while I’m helping pack & move.

I am only in one circle at a time.

My bff & her hubby are now my bubble. No, I don’t wear a mask at her place, but they are the only people who I do that with. His job had been modified so that he interacts basically with no one while he does his pickups, not at his work & not with the clients. She currently works from home, but that will shift slightly after her move. In the grand scheme of things, they are low risk of being exposed. Because of running errands & my cub scouts, I’m at a higher risk of exposure than she is as she is only leaving her place to transport items to her new home, a house.

Because I’m only me & Lilly in my immediate household, it is recommended, for my mental health, that I extend my bubble. Helping my BFF & getting to spend some quality time is also good for my mental health & wellbeing.

Immediately after the move I will isolate for 2 weeks, no bubble whatsoever before returning to my parents’ bubble. I will not be helping my bff unpack as my Mom is not comfortable with that.

On the day of, masks. Every single person *must* have a mask before entering any premises. Hands must also be either sanitized before entering, or washed properly immediately upon entering. Signs will be up to help the movers go directly to the room they need to go to, making things more efficient & less wandering. I’m sure I’ll have a Lysol or Clorox sanitizing cloth at all times to wipe stuff down as the movers come and go.

This is the best way to keep everyone safe and at a comfortable level and allows me to help her out.

More info on the move & it’s impact on my Fibro coming shortly.

Soap for RLS

November 13, 2020

Written by Amanda Stout.. I think this is the original: https://www.simplemost.com/bizarre-reason-people-sleeping-bar-soap-sheets/

i never tried this, but I think it’ll try it next time my rls flares up.

The Bizarre Reason People Are Sleeping With A Bar Of Soap Under Their Sheets

It sounds wacky, but you might want to give it a try!

When I was pregnant with my daughter, I’d often awaken in the middle of the night with terrible leg cramps. I was already low on sleep, so these painful wake-up calls really got to me. That is, until my mother-in-law suggested I try putting a bar of Ivory soap under my fitted sheet.

I approached this suggestion with a healthy amount of skepticism, but as for everything else while pregnant, I did some research. What I found was post after post from people with restless leg syndrome (RLS) or leg cramps singing the praises of soap under their bed sheets.

According to a Twitter poll conducted by the TV show “The Doctors,” 42 percent of respondents found relief using the soap remedy. All evidence of using soap to relieve leg cramps is anecdotal and not backed by scientific research, but it is cheap and drug-free, so I decided to give it a try.

And guess what? It worked, I never had another leg cramp!

Reasons Why Soap May Help Prevent Leg Cramps

So, why do people think soap works? Like many home remedies, there are lots of theories about what to use and why it’s effective.

  • There’s no consensus on what type of soap is best. Some have said Dial and Dove don’t work, but others swear by it. For RLS, Dr. Mehmet Oz suggests the use of lavender soap or other soaps with natural essential oils for the potential calming effect. Others use Ivory or Irish Spring.
  • Some believe that the soap must emit something into the air that relieves the cramps. Many advise placing the soap under the sheet near the area where cramping is an issue and changing the soap out every three months or so to make sure it’s fresh.
  • Soap can contain magnesium, so another theory is that it may help with leg cramps caused by magnesium deficiency.
  • Still others believe it’s simply a placebo effect.

More Tips For Relieving Leg Cramps

Muscle cramps have many possible causes. According to the Mayo Clinic, these can include: dehydration, mineral depletion (calcium, magnesium, potassium), muscle fatigue, age, pregnancy and other medical conditions. If soap doesn’t work for you or you’d like to try other inexpensive home remedies there are a range of options:

  • Stretch calf muscles before and after exercise and before going to bed.
  • Drink plenty of water, especially while exercising or being active. Good hydration helps your muscles relax and feel less irritable.
  • Take a warm shower before bed to relax muscles.
  • Try eating a banana, avocado or other potassium-rich foods.
  • Drink pickle juice. The salt, sugar and vinegar may help provide a quick replenishment of minerals lost when sweating.

As with anything, make sure to seek the help of a doctor if you experience extra painful or prolonged issues with leg cramps.

Remembrance Day 2020

November 11, 2020

“In Flanders Field” was written during the First World War by Canadian physician Lieutenant-Colonel John McCrae


In Flanders fields the poppies blow

Between the crosses, row on row,

That mark our place; and in the sky

The larks, still bravely singing, fly

Scarce heard amid the guns below.


We are the Dead. Short days ago

We lived, felt dawn, saw sunset glow,

Loved and were loved, and now we lie

In Flanders fields.


Take up our quarrel with the foe:

To you from failing hands we throw

The torch; be yours to hold it high.

If ye break faith with us who die

We shall not sleep, though poppies grow

In Flanders fields.




I’d like to thank my friend Sargent Jeffrey Elo of the Ontario Regiment for doing virtual meetings with my Cubs, both the 1st & 13th, and our Beavers.. I was surprised & happy with how engaged the youth were during his presentation. With no veterans left from WWI & so few left from WWII, we have to keep remembering the veterans who died in these wars and the so many other missions since then.

Newly Diagnosed? Here are some thoughts for you.

November 9, 2020

Fibro can get you down so much. It can also make life so difficult. But it also brings people together, raises awareness and gets people the help they need – but you need to ask 😉

Here are a few thing to keep in mind to help you on your journey…..

  1. Don’t feel guilty. It’s not your fault. You did not cause this.
  2. With Fibro our lives have changed drastically… Don’t feel bad about not being the person you used to be – it’s not your fault…. Try & embrace who you are becoming – the new you.
  3. Housework will always be there tomorrow – but your time, love, experiences won’t be..
  4. Don’t worry about yesterday as it’s gone. Tomorrow hasn’t come yet so enjoy today, however you can. That might be having a bath, taking meds so you can chill out in front of the tv, going for a walk, or whatever you enjoy..
  5. Never ever feel bad about having to rest. This condition is very stressful on our bodies and with poor sleep we got very little healing sleep, so it’s no wonder your exhausted & hurting.
  6. If people want to know how to help you and what is wrong, they will do research. However, you can point family and friends in the right direction by sending them a link to online sites. ButYouDontLookSick.com has the spoon theory which while for another condition, also applied to Fibro.
  7. ENJOY THE GOOD DAYS! But don’t do too much! Took me about 20 years to understand how to pace myself!
  8. Not everything will work. It is a hit & miss process finding out what combination of diet, activity and medications works for you. For example, my bff swears by Gabapentin but I found it exacerbated my symptoms. I am getting great benefit from medical marijuana, but another friend got zero benefit..
  9. There are a ton of online support groups for Fibromyalgia & chronic illness.. Join one or two.. or six… Most others in these groups are like me & are here for you any time you need to chat – that’s one thing I really love about these groups..
  10. There is NO CURE. Ignore anyone who says they were cured, especially if they are trying to sell something – These people do NOT care about you. Or they are in a remission & delusioned in thinking that they are cured.
  11. Some days will be good, some bad and there’s not necessarily anything you could have done to prevent .
  12. This condition waxes and wanes, so while there is no cure, it is possible to improve.. it won’t last as your disease progresses.. Most people once they figure out what works do not deteriorate. I myself am currently bin a form of remission, with pain levels low, but 10 years ago I was bedridden.. Lots of changes over a long time helped me there.. So there is the possibility of improvement & remission with Fibro. I’m just enjoying the increased functionally & lower pain levels while I can.
  13. Flares happen. Sometimes there is nothing you can do to prevent it.. Myself, I’d say 50% of the time I can tell I’ve overdone it & a flare comes on.. The other 50% is unpredictable.. and yes, despite the semi-remission, I still have flares just not to the extent & frequency as I used to.. For that I am eternally grateful.
  14. Above all, take care of yourself and help yourself to feel better. Other people can wait 😉

My Types of Pain

November 7, 2020

With all the different medical conditions that I have, several of them are chronic pain conditions. Now you must think, because there are so many issues, that the pain would just bleed through, but it doesn’t. Each pain for each condition feels uniquely different from the others. Being able to differentiate between different types of pain and their causes is advantageous in that since I know what is causing the pain I know which treatment would work better

Fibromyalgia Pain – tTis is more muscular and joint pain. I have tropical rubs, muscle relaxation and pain medications to help deal with this

OsteoArthritis Pain – This pain is exclusively in my lower back as I have osteoarthritis in the entire lumbar and tailbone area of my back. Topicals will help this to a point, but anti-inflammatories tend to be the most productive treatment

Myofacial Pain Syndrome Pain- This one just sucks because it is hard to tell between what is the my official pain syndrome and what is just stress. And sometimes they’re both. Treatment for this type of pain is the nerve and trigger point injections that I get from my pain management clinic. Massage therapy also helps me with this .

Endometriosis Pain- Fortunately while I don’t experience this as much as I used to I still get shots from this . Currently I will feel the occasional shot down from my ovary to my leg. Other times is when Demetrio tissue adheres to the bowel and then the bowel moves as stool processes through causing the bowel structure to shift, causing years in the Endo tissue, causing pain. This is typically dealt with using anti-inflammatories and pain medications.

IBS Pain- initially because the endometriosis was located on my bowel I did not have problems differentiating initially between IBS pain and endometrial pain. Having dealt with this since my teen years I have been able to determine the difference between the two. And do a sharp whereas IBS is more crampy. The easiest way to resolve this is to have the bowel movement.

Arthritis Pain – I also have the normal form of arthritis in both my hands and in my knees. Anti-inflammatories typically help but support braces are also advantageous for both my wrists and my knees

Kidney Stone Pain- the first time I dealt with this pain it knocked me off my feet. From what I’ve read this is one of the most painful forms of pain that the human body experiences. It took three lithotripsies and several other false starts to get these treated. Drinking lots of fluid did help in that it would help float the stones away from the ducks so it was not impeding the function of the kidney.

I have experienced other forms of pain such as a pinched nerve, pulled or torn muscle, spring, bone break, concussions, etc. These forms of pain fortunately are short-term, typically less than 3 months unlike the chronic conditions above.

Happy 50th, Laura.

November 2, 2020

Today, Laura would have been 50 years old.

For those who don’t know the backstory, I’ve always called Laura my sister. Technically, she was my sister-in-law but I have known her since I was 12 or 13. We were also friends in our own right through soccer & field hockey.

Laura was a Toronto police officer recently returned from maternity leave. While responding to an emergency burglary call for an elderly woman, her vehicle was hit by a civilian. Her police cruiser spun, throwing her partner from the vehicle but wrapping her around a tree. The civilian was never charged with anything, not even failing to yield to the emergency vehicle.

Laura with Paige, only hours old.

A new mother, a caring sister, a supportive daughter, a good friend, a loving wife and a great police officer, her life was tragically cut short and we miss her. .

Laura J Ellis, nee Sharp

November 2, 1970 – February 18, 2001

Rest In Peace

Happy Halloween

October 30, 2020

F.A.S.T. on World Stroke Day

October 29, 2020

This year World Stroke Day is today on Thursday October 29th. this is one of those medical conditions that I do not have but it’s still near and dear to my heart. One of my closest friends had a series of small strokes several years ago. If they hadn’t been dealt with they could have led to a major stroke which could have left us without him. He is doing relatively well, but still does still have some lingering residual effects from his strokes.

So given that today is World Stroke Day I thought it would be a good idea to reinforce the signs of a stroke – F.A.S.T.

Act F.A.S.T
Recognize the signs of stroke

F – Face. During a Stoke, commonly, the person will loose muscular function on one side of the body. This is easily seen in the face as it tends to droop. Ask the person to smile. If the normal smile does not immerge or is very lax, this is a sign of a stroke

A – Arms. Again, with muscular function impaired, one side of the body is significantly weaker. It the person is unable to raise both arms to the same hight easily, this is a sign of a stroke.

S – Speech. Slurred speech, the ability to talk is a result of the weakened musculature in the face. The inability to use correct words or understand others around is disconcerting. Both of these situations are signs of a stroke.

T – Time. Time to call 911. Every second counts with Simone having stroke. If they are unable to relieve the pressure, permanent damage, serious permanent damage, even death can occur. So, even if you are not sure, better safe than sorry.

My COVID Test

October 27, 2020

On Friday of the Thanksgiving weekend, I started feeling unwell. I had symptoms consistent with secondary symptoms of COVID. So, sore throat, headache.. That’s in addition to the nasal congestion due to allergies and pain/ache & fatigue due to Fibro & CFS. But it was the nausea and vomiting that was the concern.

However, I had no primary symptoms. So, no fever, no cough. And I was cleared up, feeling better & completely symptom free, other than the allergies stuffy nose.

Now, cuz of the consistency with COVID symptoms, the Scouts have requested a COVID test before I return to working directly with the youth. And I get that. So I booked a test.

COVID Testing

So I missed our meetings that week.. I was supposed to be going back over trail markings then have each lair make their own trail for the other lair. AND I have the kits for the following virtual meeting. So I had our group chair come over & put everything in her van for the meetings. Fun fun fun.

So back about the test. I went online & did the self assessment on Sunday morning when I was still unsettled. That said to take the test & so I booked it.. First available was the Tuesday,, so I booked it.

So, I get there. Now, everyone has to book their appointments prior, so I was surprised when there was a socially distanced luneup for those of us who are booked in. It turns out they had no waiting room and you went straight in, to your testing room.

The testing room was a single office with a chair & a small metal instrument table. I sat down. The person administrating the test came in, dressed in complete PPE from head to toe. She confirmed I was me.

She had me look up advised me it would be quick, only about 10 seconds.. The swab felt weird and a little uncomfortable, but it turns out she was wrong. It only took 6 seconds.

I was informed that the results will be available online between 48 hours and 7 days. If I did not get a result in 7 days I was to contact Public Health. I was also informed that if my test was positive I would hear back from Public Health within 48 hours.

I was then sent out the back door. I did not interested with any other patients & other than the actual test, I was socially distant from everyone.

48 hours later, and I have not heard back from Public Health. But it’s 72 hours, my results were posted on the internet. Negative.

My COVID Test Result : Negative

So while I missed the trail markings meeting, my negative test result enabled me to go to the hike we had this past weekend with my cubs.. Yay!

That hike was a whole other experience!