Posts Tagged ‘Weather’

How Is Fibro Reliable

June 3, 2022

The are only two reliable things about Fibromyalgia and chronic pain in general

  1. Our bodies are pretty much always in pain. All day, every day we are in pain to some extent. I don’t think I’ve had a pain-free day, other than heavily medicated, in at least 2 decades.
  2. Our bodies are reliably unreliable in regards to this disease. Consistently inconsistent.

Pain Levels Change

These change, frequently. They ebb & flow.. We can from a 2/10 one day, but the next a 5,/10, then a 3 then a 6,.. Even worse, they can shift hour by hour, especially when it bounces. Goes 5 to 6 to 5 to 6 to 5 to 4 and to screw me up, back up through 5 to 6 again.. Some of our pain is predictable by pattern like weather changes & over exertion, but not even necessarily then..

Now, jumping at lower levels like 1, 2, 3, or even 4 aren’t so bad.. but bouncing at the higher levels is alot harder on the body .

Duration Changes

The shifts in our pain levels can bounce from hour to hour.. They can be sustained for a period of time. Sometimes hours, days, even weeks.. I’ve even stayed steady at a 3 level pain level steady for months at a time. And I have seen no way to predict how long it will last I’ve had the same thing cause a shift and each time the shift (be it up or down) has lasted different lengths of time.

Frequency Changes

Our pain levels, as you can tell from comments above can last a different length of time each time. Sometimes minutes (but that’s usually an outside source!), Hours, days, weeks & as mentioned even months.

Triggers Change

I’ve noticed that sometimes I will get triggered by an activity one time, but not the next. On the reverse, something else that doesn’t normally trigger me will. Inconsistency. Shifts in the weather are a good example. We recently shifted to rain at the end of last week and I got hit hard for a bit, up to a 6, but slowly was able to manage it back down. But the inverse, the week prior we got hit with a similar shift to rain, but there was very little impact to my body.

Timing Changes.

When our pain will change is in no way predictable. Since childhood, I’ve had a tendancy to be better or healthier in the evenings. It’s to do with my circadian rhythms, I think but everyone has that Other than that, time of day has very little impact. There are days where I will suddenly wake in excruciating pain because of the pain. There are days where I will wake naturally & when I make that first move, Whammo! There are days when suddenly, mid-day, pain shoots up. There are days where I woke well and by the time dinner rolls around, I already want to curl up and ignore the world to deal with how bad I feel.

A Side Note – Third Consistency.

In writing this entry I keep noticing that the reference to changes emphasized to the increase. That’s probably because the increase is bad. But I also noticed that I’ve never had the thought, as I’m writing & editing about sharp drops in pain.

  1. Pain can rise quickly, but without intervention, it always drops slowly

I don’t look sick

January 20, 2017

Weather Changes – from +20 to -2

March 27, 2012

I`m up here in Toronto, Ontario, Canada and we`ve been having some really funky weather. Our normal this time of year is about 5C.
The past two weeks have been lovely: mostly sunny with daytime highs hovering just under 20C.. I`ve lost count of the number of days that have broken the historic high temperature here. When it wasn’t warm enuf to break a historic record, it was pretty dang close to! Unfortunately all things must to end, including this gorgeous warm streak.. It took a mere 24 hours to go from late Spring/early summer, back to late winter/early spring. Weather shifts tend to be disastrous, especially dramatic, uncharacteristic ones. Not just to us, our pets and all of God’s creatures too. The worst goes to those of us with conditions such as Rheumatoid Arthritis and Fibromyalgia when the temperature drops or the barometer swings extensively. These are some of the worst days we can have, living in total agony.
Today is one of the worst days in quite a while and I think it’s hitting me harder than normal cuz I’ve been doing really well physically lately, with the nice weather & all.. The worst of the worst is my right arm, just below the elbow, on the outside. I can’t remember the name of the muscle, but when I move it, it screams – Loudly. & I am right handed.. It sucks.

 

FYI, Temperature conversions
0C=32F, 5C=41F, 20C=68F.

Do I Prefer Hot? Or Not?

January 3, 2012
Do I Prefer Hot? Or Not? If we’re talking weather, I am not a big fan of extreme hot (>40) or extreme cold )
As for personal environmental factors, my skin prefers a bit cooler, but the muscles underneath complain for warmth.. When I am on vacation, I can sit in the hot tub for hours, my muscles love it so, however, back in the room I take a fairly warm shower to rinse off the chlorine & stuff, but my body can’t sleep well warm, so I drop the temperature of the water and rinse off the skin in cool water, which feels nice and also closes you pores. Since it’s quick, my body tolerates it.. I’ve even come to adopt it at home, after a long hot shower, drop the warmer to cool, and rinse, especially in the warms spots.. In bed, we have a sheet, comforter & 2 blankets. He rarely uses his, but I use mine significantly more often.. With no fold, it cuts most of the cool air in the apt.. With one fold, I will snuggle in when a fan on.. Or for when my SO kidnaps the bedding, leaving me out cold.. So, I don’t mind being that I’m rare company.. Hopefully we have some news at home..

My Acceptance

December 11, 2011

My biggest issue with my medical issues is me. I have so much trouble accepting my limitations. I am still trying to figure out how much I can and can not do. It’s more the can not that is my issue. I used to be way more than I am now. I used to be intelligent; Once upon a time I had an IQ of about 180 which is the beginning of genius. I’m not meaning to brag, just illustrate how much I’ve gone down hill.. I’m now at 130-140, which is considered average (to my knowledge).. That’s a *huge* drop, but it’s all from the fibro.

I used to be physical. I played soccer in a ladies league (the term ‘ladies’ here is used loosely) with 2-3 games a week and I played an aggressive & physical game. I was also involved in scouting, as a youth member, as a adult member, as a leader, as a group or area representative. As a result, I was very physical – hiking, camping, marksmanship, skiing, skating, all in different types of weather. & yes, I have camped outdoors in the cold weather and the snow. I can not do any of that. It’s not struggling with just those losses, but also the loss of the ability to function doing ‘normal’ day-to-day stuff like laundry, cleaning floors, vacuuming, washing walls or windows, and cleaning the bathroom.. Or even worse, I flare after being around my nieces & my nephew.. Moreso my nephew cuz he’s more physical, still into aggressive roughhousing. (Çuz he doesn’t get a lot from Dad – long story, not really Dad’s fault) I should be able to spend time with my family without getting sick. I just don’t know how to. Any suggestions on how to deal with this issue and help me accept my limitations? Feedback would be greatly appreciated. ~ Thanks.